Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,391 members • 8,002 posts

All posts for January 2019

Pbc

Hi everyone Hope everyone is ok. I went to see my new consultant yesterday as my atl have gone from 40 to 238. They did blood tests and also a scan and have...

Hi everyone Hope everyone is ok. I went to see my new consultant yesterday as m...

janine541

•5 years ago

10 Replies

Meet up in Dc

Every week Saturday people with autoimmune disease meet in the library at 1 to 3pm. This is the address if anyone close to DC like to meet

Every week Saturday people with autoimmune disease meet in the library at 1 to 3...

Sachin1234

•5 years ago

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hope this is true...

Turmeric can treat liver disease Oct 31, 2010 08:03 AM By Staff Reporter Scientists from Saint Louis University have found that a crucial chemical in...

Turmeric can treat liver disease Oct 31, 2010 08:03 AM By Staff Reporter Scien...

Haking

•5 years ago

7 Replies

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Cystitis

Anyone suffer with Cystitis. I have just got it again after just a few months since my last bout.

Anyone suffer with Cystitis. I have just got it again after just a few months si...

Biddyb

•5 years ago

1 Reply

Microbladed eyebrows - question for the ladies 😁

My dear ladies...first of all, I don't know what I would do without this community. I have so many questions related to this stupid disease and I always get...

My dear ladies...first of all, I don't know what I would do without this communi...

Beatris03

•5 years ago

3 Replies

cancer and PBC

I have just been diagnosed with cancer and had surgery but to stop the recurrence I have to take Laprozel which is not good for the liver, I was told if I take...

I have just been diagnosed with cancer and had surgery but to stop the recurrenc...

Haking

•5 years ago

1 Reply

Numbness in heels of feet

Hi all, I’ve noticed that lately in the morning after a nights sleep the heels of my feet feel numb, as if the bloods been restricted to them, my toes seem...

Hi all, I’ve noticed that lately in the morning after a nights sleep the heels...

sylviaj

•5 years ago

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Liver Transplant

Hello everyone I haven’t be active in the blog lately but I wanted to share my great news. I got a liver transplant on Tuesday and now I’m recovering in the...

Hello everyone I haven’t be active in the blog lately but I wanted to share my g...

Prettyeyes79

•5 years ago

43 Replies

Dry eyes

Can someone in UK please recommend some excellent eye drops for dry/itchy/stingy eyes? Thank you. 😊

Can someone in UK please recommend some excellent eye drops for dry/itchy/stingy...

Beatris03

•5 years ago

22 Replies

PBC and sinus problems?🤷🏻‍♀️

I think this may be a bit unrelated, but has anyone had success (or not) with sinus surgery? I have suffered, on and off, for the last 30 years with allergies...

I think this may be a bit unrelated, but has anyone had success (or not) with si...

HealthyChik

•5 years ago

27 Replies

Newly diagnosed to PBC - help please

Hi, Firstly may I say how relieved I am to find a this community, foundation for PBC as a daughter of a newly diagnosed mother. Last week my mum was...

Hi, Firstly may I say how relieved I am to find a this community, foundation...

gurps89

•5 years ago

5 Replies

Pain relief

Hi I have just been told I have pbc, but am very confused as to what pain relief tablets I can take I believe nsaids are no nos but what else is there.

Hi I have just been told I have pbc, but am very confused as to what pain relief...

S2k0

•5 years ago

9 Replies

Massager

Please, does anyone know where I can order/buy a gentle, heated hand massager for use on my fingers, palms, wrists and elbows? Possibly even my toes and feet?...

Please, does anyone know where I can order/buy a gentle, heated hand massager fo...

movinalong11

•5 years ago

2 Replies

Cataract, Liver/Pancreas issues, Elevated M2 AMA, NAFLD and now Dupuytren's, I am only 45!

Was diagnosed with Liver issues/poss PBC in 2009 after elevated alk phos for 10+ years and Elevated M2 AMA (negative in 2003 but positive in 2009, rechecked...

Was diagnosed with Liver issues/poss PBC in 2009 after elevated alk phos for 10+...

Cooper6

•5 years ago

12 Replies

Cost of urso. Where can I order it?

I live in the US. My insurance covers the Ursodiol and my cost had been $10 a month. It is still covered, but my cost jumped to $191!. I used a Good Rx coupon...

I live in the US. My insurance covers the Ursodiol and my cost had been $10 a mo...

Triciawc

•5 years ago

23 Replies

When to start meds?

How high do your akt.phosphotates have to be before they start giving you meds? I was told that I would get medication when my test showed an elevated...

How high do your akt.phosphotates have to be before they start giving you meds? ...

Anitaray

•5 years ago

5 Replies

PBC research

Does anyone know if there’s any PBC research happening, I would like my identical twin sister and myself to help as we both have Hashimotos thyroidosis and...

Does anyone know if there’s any PBC research happening, I would like my identica...

Joanneconnor

•5 years ago

11 Replies

My Endocrinologist won’t refer me for my PBC

Got diagnosed 9 months ago through auto antibody tests, my doc is leaving the referral to my Endo and he doesn’t think I need Urso in until I have symptoms...

Got diagnosed 9 months ago through auto antibody tests, my doc is leaving the re...

Joanneconnor

•5 years ago

19 Replies

hello

Hello everyone I hope you are all doing welll.....It seems that I have not been on here for some time but, I actually had to make a new account because I could...

Hello everyone I hope you are all doing welll.....It seems that I have not been ...

Alley27

•5 years ago

17 Replies

Healing

I've started to notice I don't heal as well as I used to, like a simple cut takes weeks to heal..is this part of pbc and if so why ? Ann

I've started to notice I don't heal as well as I used to, like a simple cut take...

Pinkcrush

•5 years ago

7 Replies

Are these ok for PBCers?

Hello 🙋, I'm totally struggling with my diet (as always 😔) I'm wanting to exchange a couple of meals a day with Atkins protein shakes. I'm "not" going on...

Hello 🙋, I'm totally struggling with my diet (as always 😔) I'm wanting to exc...

Ktltel

•5 years ago

49 Replies

Platelet Count High

I had my routine 3 month blood work done a few weeks ago.My ALT & AST are finally normal.My ALK is at 147.Lowest it has been since my diagnosis 2 years ago.My...

I had my routine 3 month blood work done a few weeks ago.My ALT & AST are finall...

PBCTracy

•5 years ago

2 Replies

PBC Cause

I wish we could put our heads together and find a reason why we otherwise healthy women all got PBC. Was it the Shen Min hair thickener vitamins I took for...

I wish we could put our heads together and find a reason why we otherwise health...

scthompson

•5 years ago

51 Replies

Sleep

Hi everyone, is it usual to just crash mid afternoon and sleep. I am asking because its unusual for me to do this until now. I worked 3 days in a row, in...

Hi everyone, is it usual to just crash mid afternoon and sleep. I am asking bec...

Vespa27

•5 years ago

8 Replies

Hair loss

Hi all does anyone suffer with hair loss I seem to be losing a bit more than usual was wondering if it's side affect of PBC meds

Hi all does anyone suffer with hair loss I seem to be losing a bit more than usu...

1959L

•5 years ago

21 Replies

newly diagnosed

I am 55 years old and I was diagnosed this past December with PBC. initially I was shocked. I had never heard of this disease and all its complications and...

I am 55 years old and I was diagnosed this past December with PBC. initially I...

Anitaray

•5 years ago

9 Replies

Muscle pain or pbc related?

I am still awaiting biopsy results for suspected PBC. Before the biopsy i had pain in my right side back extending to front, this has increased a week post...

I am still awaiting biopsy results for suspected PBC. Before the biopsy i had pa...

Podiatristkaty

•5 years ago

7 Replies

A Different me!

Thank you for some lovely comments. I did panic after I pressed the post button thinking that perhaps I was being frivolous when so many are still trying to...

Thank you for some lovely comments. I did panic after I pressed the post button ...

Oidra

•5 years ago

9 Replies

Supplemental Insurance

What is the best medicare plan and/or supplemental insurance plan for PBC? I will soon be divorced ,after 33 years, and I must find my own insurance plan. I'm...

What is the best medicare plan and/or supplemental insurance plan for PBC? I wil...

Chickie

•5 years ago

13 Replies

The Itch

Haven't been on here for such a long time with having pain apps etc then they have been changed etc etc. Anyway I have started the itch my back is covered red...

Haven't been on here for such a long time with having pain apps etc then they h...

Jude1

•5 years ago

2 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for January 2019

Pbc

Meet up in Dc

hope this is true...

Cystitis

Microbladed eyebrows - question for the ladies 😁

cancer and PBC

Numbness in heels of feet

Liver Transplant

Dry eyes

PBC and sinus problems?🤷🏻‍♀️

Newly diagnosed to PBC - help please

Pain relief

Massager

Cataract, Liver/Pancreas issues, Elevated M2 AMA, NAFLD and now Dupuytren's, I am only 45!

Cost of urso. Where can I order it?

When to start meds?

PBC research

My Endocrinologist won’t refer me for my PBC

hello

Healing

Are these ok for PBCers?

Platelet Count High

PBC Cause

Sleep

Hair loss

newly diagnosed

Muscle pain or pbc related?

A Different me!

Supplemental Insurance

The Itch

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