A Different me!: Thank you for some lovely... - PBC Foundation

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A Different me!

Oidra profile image
9 Replies

Thank you for some lovely comments. I did panic after I pressed the post button thinking that perhaps I was being frivolous when so many are still trying to find their way with PBC. If anybody thought that I apologise.

I have been on Health Unlocked for many years and I don`t think I can be the only person to look at their original photo and say "Who is that?" But I am also very thankful I am still around to show " the different me".

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Oidra profile image
Oidra
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9 Replies
Ktltel profile image
Ktltel

Hi,

I sure didnt take it any other way but a newfound freedom. And a happy one at that. I still dye my hair. I'm 58. Just haven't emotionally got to that place yet where I feel comfortable going completely grey. One day. Probably sooner than later.

Thanks for sharing❤

in reply to Ktltel

I didn't mean to sound critical of someone who colours their hair from choice 'tho. I am 100% pro choice! x

There's no such thing as a frivolous comment on here - it's our space to say whatever we like and I am sure that everyone is very pleased to see you that you posted and that everyone values the dignity and friendship of each other.

butterflyEi profile image
butterflyEi

Dear Oidra

I think all of us with PBC appreciate a bit of frivolity and positivity. For those trying to find their way with PBC I believe it is helpful to see that a life can be lived and lived well above the symptoms. I have not been brave as you have and my picture is of a flower that opens overnight and is gone the next night but it comes back every year. I do not know what it is called but it is beautiful.

You are a good example for us all.

best wishes

in reply to butterflyEi

Dear butterflyEi, I'm not brave enough to give to give a picture, or even a name, but just the date of the most changing day of my life. Is that a mountain flower? It is very lovely.

best wishes

butterflyEi profile image
butterflyEi in reply to

Hidden It has been planted in someone's garden, half way up a mountain in warmer climes than the UK but it seems to be of the cactus family. My handle is in memory of my mother Ei, after her death a butterfly came to delight me hence my handle butterflyEi. From the 81 I take it you have been diagnosed a goodly while. I was diagnosed in 2006 but had presented in mid 90s with symtoms.

in reply to butterflyEi

I apologise for not answering sooner - I did reply and internet connection failed before I posted. Message was disappeared when internet came back in service!

What a beautiful gesture, planting that flower somewhere special for your dear mum. A living memorial in the world. I'd like to borrow the idea. As to my special day, I don't remember when I was diagnosed, (neither day, month nor year) but I'll never forget the day my son was born!

It's lovely to get to know people. I never realised this until very recently. PBC should take most of the praise for teaching me. Life's mysterious?

Best wishes,

It was lovely to read such a positive post. Wishing you well.

See how much joy you unfolded with your post Oidra.

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