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PBC Foundation

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All posts for May 2016

New here - possible PBC Diagnosis

Hi. I have been dealing with abnormally high liver enzymes for a couple of years now (and since I avoid the doctor like the plague, who knows how long I have...

Hi. I have been dealing with abnormally high liver enzymes for a couple of years...

AllieCraw

•8 years ago

26 Replies

foggy?

Hi everyone, so this week I've been noticing some fogginess in this brain of mine. I'm usually a word person - good with words - can find the one I want and...

Hi everyone, so this week I've been noticing some fogginess in this brain of mi...

Becca75

•8 years ago

9 Replies

Advice and information

Had a heart wrenching week since I found out about PBC. Went for an ultrasound yesterday and got the results today when I visited the doctor. He said I have...

Had a heart wrenching week since I found out about PBC. Went for an ultrasound ...

Chazzy

•8 years ago

31 Replies

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Fibroscan

On my way to hospital to have a fibroscan, hope i will get the result to day, fingers crossed :o) XX

On my way to hospital to have a fibroscan, hope i will get the result to day, fi...

dollydaydreams

•8 years ago

11 Replies

OCA gets a green light from FDA

http://www.fiercebiotech.com/intercept-pharma-gets-accelerated-fda-ok-for-liver-drug-ocaliva

http://www.fiercebiotech.com/intercept-pharma-gets-accelerated-fda-ok-for-liver-...

Betonarme

•8 years ago

8 Replies

Update

I went back to Rheumy and he still says the muscle pain is from osteo and pbc. He put me back on tramadol for a month to see if it would help this time if not...

I went back to Rheumy and he still says the muscle pain is from osteo and pbc. H...

Lisa15

•8 years ago

1 Reply

Question archive

Found these interesting - from the Canadian pbc society http://www.pbc-society.ca/archived_questions.html

Found these interesting - from the Canadian pbc society http://www.pbc-society....

Becca75

•8 years ago

6 Replies

Anyone have symptoms like mine?

I have not been diagnosed yet, but my Dr thinks I may have it. I started itching on my hands and feet so bad I wanted to sand the off then I got very sick for...

I have not been diagnosed yet, but my Dr thinks I may have it. I started itching...

Littletonya

•8 years ago

26 Replies

Newly diagnosed what does my future hold

I am Charlotte. I'm 30. Just been diagnosed with PBC waiting to find out who's stage I am by ultrasound. I have positive AMA and slightly abnormal liver...

I am Charlotte. I'm 30. Just been diagnosed with PBC waiting to find out who's s...

Chazzy

•8 years ago

31 Replies

Insurance

Help i need insurance for a possible cruise

cazer

•8 years ago

22 Replies

Insurance

Help need insurance for possible cruise.

cazer

•8 years ago

4 Replies

My 7 Steps to Health

So, I've had a lot of improvement in my health after being diagnosed with PBC and NAFLD (Fatty Liver Disease). People have asked me how I did it, so here's a...

So, I've had a lot of improvement in my health after being diagnosed with PBC an...

chynablue

•8 years ago

32 Replies

MRI Update - Disease Reversing

It's been 6 months since my last MRI scan. I got the new MRI results today. The doctor says there is a lot less fat in the liver, so the Fatty Liver Disease...

It's been 6 months since my last MRI scan. I got the new MRI results today. Th...

chynablue

•8 years ago

16 Replies

Holiday time!

Well holiday time is here and with an impending journey to civilized parts of the world where mosquitto and sand fly are common I am wondering what to put on...

Well holiday time is here and with an impending journey to civilized parts of th...

butterflyEi

•8 years ago

16 Replies

Cholesterol

Hi all, my doctor wants me to take statins because my cholesterol is - non fasting, 8. I heard that PBC caused high cholesterol and that taking Urso would...

Hi all, my doctor wants me to take statins because my cholesterol is - non fasti...

kandiepat

•8 years ago

10 Replies

PBC and gastric band surgery

Hey everyone...I have primary billary cirrhosis (PBC) and I am considering having a gastric band - I also have fatty liver. I was scheduled to see a surgeon...

Hey everyone...I have primary billary cirrhosis (PBC) and I am considering havin...

emzglo

•8 years ago

8 Replies

another autoimmune disease?

When I saw my specialist she also tested me for autoimmune hepatitis along with Pbc - from what I've read the presence of another autoimmune disease as well...

When I saw my specialist she also tested me for autoimmune hepatitis along with ...

Becca75

•8 years ago

7 Replies

numbers

I see people posting about some numbers and I'm not good with the short forms for them - but I thought I'd post mine... At my last blood test a week before my...

I see people posting about some numbers and I'm not good with the short forms fo...

Becca75

•8 years ago

5 Replies

Sudden rise in ALP

Hi everyone, I am a non responder to urso and my liver numbers have been gently increasing for the last 5 or 6 years. In January my ALP was at 350 and my ALT...

Hi everyone, I am a non responder to urso and my liver numbers have been gently ...

dreamy

•8 years ago

14 Replies

Miserable

I was dx. In 2015 with pbc. I am a 60 year old woman. Looking back at my test results, I have had this since 2011 and the dr I was seeing at the time treated...

I was dx. In 2015 with pbc. I am a 60 year old woman. Looking back at my test re...

Patriatk1

•8 years ago

18 Replies

Help me and answer my question please!!!

Hi Im 14 (I know you're supposed to be 16 on this website) and my mum was diagnosed with pbc at 21 (she is 46 now) and as her Daughter there is a chance that I...

Hi Im 14 (I know you're supposed to be 16 on this website) and my mum was diagno...

Emily_H_

•8 years ago

14 Replies

Blood Tests

How often should I have my blood tested in a year? Now attend nurse led clinic once a year instead of liver specialist. Bloods referred to at last appointment...

How often should I have my blood tested in a year? Now attend nurse led clinic o...

jrobertson1

•8 years ago

7 Replies

Newbie here

Hi, I had been having lots of trouble with bile build up, pain and high LFT's I originally had a stone so they removed my bile duct but my LFT's were getting...

Hi, I had been having lots of trouble with bile build up, pain and high LFT's I ...

Yvonnejulie

•8 years ago

5 Replies

Esa and bacdated money

I had my health asserment last week on 5th of may 2016 and I'm waiting for my back dated money wondering when I receive the money into my account do I have to...

I had my health asserment last week on 5th of may 2016 and I'm waiting for my ba...

LorriiiNightingale11

•8 years ago

9 Replies

Scan results

Hi all I have not put a post on here for a while but I thought I would just let you all know I've been back to see my liver consultant and he said that my PBC...

Hi all I have not put a post on here for a while but I thought I would just let ...

Cherry69

•8 years ago

5 Replies

Liver biopsy date 😯

Well next weds afternoon I will have my liver biopsy to see what is going on apart from the pbc ( nafld or autoimmune hepatitis) Can anyone tell me what sort...

Well next weds afternoon I will have my liver biopsy to see what is going on apa...

Jml123

•8 years ago

13 Replies

Omg the itching is driving me crazy!!!

Everything itches - my back especially and my arms legs and face - it's ridiculous. I went for a few days without reactine to see how I would be and tonight I...

Everything itches - my back especially and my arms legs and face - it's ridiculo...

Becca75

•8 years ago

9 Replies

Does ursodiol/actigall/ursofalk give you foggy head?

Hi all, recently my bloodwork showed positive AMA and I was prescribed ursodiol. I also take Creon as well because I've found it helps with digestion. I find...

Hi all, recently my bloodwork showed positive AMA and I was prescribed ursodiol....

oscarmild

•8 years ago

4 Replies

Osteoarthritis Specialist Centres - UK south

I'm posting this on more than one forum, as osteoarthritis is such a common condition. Just wondered if anyone can recommend a specialist centre for...

I'm posting this on more than one forum, as osteoarthritis is such a common cond...

badpiglet

•8 years ago

6 Replies

there's an app!

I get to test it :) yay!

Becca75

•8 years ago

8 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for May 2016

New here - possible PBC Diagnosis

foggy?

Advice and information

Fibroscan

OCA gets a green light from FDA

Update

Question archive

Anyone have symptoms like mine?

Newly diagnosed what does my future hold

Insurance

Insurance

My 7 Steps to Health

MRI Update - Disease Reversing

Holiday time!

Cholesterol

PBC and gastric band surgery

another autoimmune disease?

numbers

Sudden rise in ALP

Miserable

Help me and answer my question please!!!

Blood Tests

Newbie here

Esa and bacdated money

Scan results

Liver biopsy date 😯

Omg the itching is driving me crazy!!!

Does ursodiol/actigall/ursofalk give you foggy head?

Osteoarthritis Specialist Centres - UK south

there's an app!

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