Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,412 members • 8,075 posts

All posts for January 2019

ALP levels at diagnosis

Hi - I’m being monitored on suspicion of PBC. I’m curious for those that were diagnosed at an early stage, how elevated was your ALP? Mine continues to decline...

Hi - I’m being monitored on suspicion of PBC. I’m curious for those that were di...

Pamcakes718

•5 years ago

22 Replies

Anyone experiencing blepharitis with PBC?

I know dry eyes are a symptom, but blepharitis is a more serious consequence. Does anyone have any suggestions on how to treat it and prevent re-occurence?

I know dry eyes are a symptom, but blepharitis is a more serious consequence. D...

smokylake

•5 years ago

7 Replies

Yellow eyes

Hi everyone! Hope everyone had a great new year Does anyone have yellow eyes and jaundice to the skin with pcb? If you do did you take or do anything special...

Hi everyone! Hope everyone had a great new year Does anyone have yellow eyes and...

Prettyeyes79

•5 years ago

6 Replies

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Question

Hi can anyone tell me if a fibroscan is the same as an ultrasound, and is it better than an ultrasound. Thanks

Hi can anyone tell me if a fibroscan is the same as an ultrasound, and is it bet...

Vespa27

•5 years ago

5 Replies

Pain left hand side

Hi all, I have read people who get pain the the right hand side of their body however mine is left hand side, just to the left and around the bottom of my...

Hi all, I have read people who get pain the the right hand side of their body ho...

Shashwoo

•5 years ago

3 Replies

Elevated ana, ama and alt

This is my stat results after my alt went 94 from 50...my ana and ama titter are higher than previous 4 years ago.. My alt went down to 89 and ast normal with...

This is my stat results after my alt went 94 from 50...my ana and ama titter are...

Sachin1234

•5 years ago

15 Replies

Cramp

Hi another question as I am rather fed up with cramp.....feet legs hands.....sometimes from my big toe up to my groin and my hands, wrists and arms very...

Hi another question as I am rather fed up with cramp.....feet legs hands.....som...

Vespa27

•5 years ago

15 Replies

Drop in steroids

Hi I am on prednisolone and lowering my dose each week. I am now on 12.5 mg from a whaking 40. The thing is, my urine has changed colour, its a bit darker,...

Hi I am on prednisolone and lowering my dose each week. I am now on 12.5 mg fro...

Vespa27

•5 years ago

6 Replies

Cod oil

Did you have any luck w CBC oil and cirrosid

71Redhead

•5 years ago

2 Replies

Hypothyroidism

Good morning all. I’m doing a little research here. How many of you with the diagnosis of PBC also have low thyroid? My fatigue is off the wall right now,...

Good morning all. I’m doing a little research here. How many of you with the d...

Jeanb47

•5 years ago

52 Replies

Specialist referral

Hi everyone, This is a question for UK members. Do you get treated by a gastro dr or liver specialist? I’m currently under a gastro consultant at my local...

Hi everyone, This is a question for UK members. Do you get treated by a gastro ...

Hils67

•5 years ago

46 Replies

PBC Diagnosis

I’m hoping someone can provide some insight. I have had elevated ALP for the last 4 months. It was at 240 immediately following a thyroidectomy but as of...

I’m hoping someone can provide some insight. I have had elevated ALP for the las...

Pamcakes718

•5 years ago

11 Replies

Cholesterol rising

Hi all. Was diagnosed with Pbc last year. Non-symptomatic, discovered during routine bloodwork for physical. Liver enzymes slightly elevated. First...

Hi all. Was diagnosed with Pbc last year. Non-symptomatic, discovered during rou...

jplitt

•5 years ago

7 Replies

Consultant appointment

Hi everyone, I am due to see liver consultant on 10 th Jan and what with the recent very bad flare I have been fighting...i am wodering what questions to ask....

Hi everyone, I am due to see liver consultant on 10 th Jan and what with the re...

Vespa27

•5 years ago

3 Replies

Happy New year.

Wishing everybody healthy and happy New year xx

Vespa27

•5 years ago

2 Replies

Worried

Quite a difficult subject however... My right armpit has stopped working. No deodorant works. Heard it could be a symptom?

Quite a difficult subject however... My right armpit has stopped working. No de...

BabyK

•5 years ago

2 Replies

Newly Diagnosed PBC & SS

Hi all, I am so glad that I found this community :) I was dx with Sjogrens in November and put on 200mg of Hydroxy twice a day. I was dx with PCB on...

Hi all, I am so glad that I found this community :) I was dx with Sjogrens i...

Shashwoo

•5 years ago

6 Replies

Pbc

Happy new year x

janine541

•5 years ago

3 Replies

Newly diagnosed I have many questions.

Hello I am new to this forum. I have recently had a liver biopsy and have received the pathology report saying I have chronic hepatitis with features of...

Hello I am new to this forum. I have recently had a liver biopsy and have receiv...

Jess5377

•5 years ago

21 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for January 2019

ALP levels at diagnosis

Anyone experiencing blepharitis with PBC?

Yellow eyes

Question

Pain left hand side

Elevated ana, ama and alt

Cramp

Drop in steroids

Cod oil

Hypothyroidism

Specialist referral

PBC Diagnosis

Cholesterol rising

Consultant appointment

Happy New year.

Worried

Newly Diagnosed PBC & SS

Pbc

Newly diagnosed I have many questions.

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