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PBC Foundation

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All posts for March 2014

muscle and joint ache

I am finding that I am getting a lot of muscle and joint ache in my arms and hands. Sometimes the muscle ache actually becomes quite painfull and Im not quite...

I am finding that I am getting a lot of muscle and joint ache in my arms and han...

rynick

•10 years ago

12 Replies

Hi All Is it safe to take ursodeoyxcholic acid whilst breastfeeding?

I was diagnosed with PBC recently after having my second child, he is 7 month's old and I am still breastfeeding. I mentioned this to the consultant who said...

I was diagnosed with PBC recently after having my second child, he is 7 month's ...

Vixta75

•10 years ago

6 Replies

Hi, I have been put on Rifadin three weeks ago by my consultant to help stop the itching. At the moment it does not seem to help.

Has anyone else been given this? I take .75 ml morning and evening.

hotdog

•10 years ago

8 Replies

Want to take advantage of all our features? Just log in!

Here is Website for lab requirements to determine PBC

Found it. Go to Www.arupconsult.com. Type in PBC. Take it from there. Lists REPEAT- guidelines etc. All there on this site. As I said initially was...

Found it. Go to Www.arupconsult.com. Type in PBC. Take it from there. Lists ...

Hidden

•10 years ago

1 Reply

A Poem for when down and depressed

I found this on the internet on New Year's Eve last year when I had a bout of the blues (am on tablets for low mood) and was made redundant from work in the...

I found this on the internet on New Year's Eve last year when I had a bout of t...

Ginger_11

•10 years ago

4 Replies

New Drug Trials

Just found this on the Canadian PBC website, possible conclusions to new drug at end of April 2014: DOUBLE-BLIND PHASE OF INTERCEPT’S PHARMACEUTICALS PHASE III...

Just found this on the Canadian PBC website, possible conclusions to new drug at...

Ginger_11

•10 years ago

Be the first to reply

I now know!

Hi ladies It seems that I do indeed have PBC! But very early stage! My liver auto antibody profile is M2 ++ positive 3E (BPO) ++ positive Mitochondrial Abs...

Hi ladies It seems that I do indeed have PBC! But very early stage! My liver au...

skywalker

•10 years ago

9 Replies

WRONG PBC DIAGNOSIS

Admitted to hospital in September - chills sweats back pain fever did all tests from gallbladder to liver found nothing. Dr. did AMA test. Said had PBC. Gave...

Admitted to hospital in September - chills sweats back pain fever did all tests ...

Hidden

•10 years ago

23 Replies

MEDICAL

going for a medical for my ESA through DHSS being put through a medical by a nurse from ATOS any info or help would be grateful thanks Sadie x

going for a medical for my ESA through DHSS being put through a medical by a nur...

sadie21

•10 years ago

5 Replies

periods

hi I am 46 over the past couple of months ive been having my periods twice a month I have been diagnosed with pbc over 3yrs I just want to know is it just my...

hi I am 46 over the past couple of months ive been having my periods twice a mon...

sadie21

•10 years ago

4 Replies

Diagnosed 2 years ago . On Ursodial. Past 2 months started put on a lot of weight,Active as I was before. Most weight in waist area. Why?

Nevaehddg

•10 years ago

9 Replies

Naloxone Infusion

Has any one had the naloxone infusion? It's to treat my itching. I've been to see a dermatologist today and have to go in hospital for 5 days to start the...

Has any one had the naloxone infusion? It's to treat my itching. I've been to se...

amrakida

•10 years ago

1 Reply

I am wondering if anyone has been diagnosed with Stage 3 PBC? My LFTs had been elevated for years, but finally diagnosed in Feb.

I have been on Ursodial for a month and my LFTs have dropped considerbly. My bilirubin and albumin have been normal. Has anyone heard of survival...

I have been on Ursodial for a month and my LFTs have dropped considerbly. My bil...

Doodlebug1

•10 years ago

2 Replies

Has anyone experienced Hepatic Encephalopathy and being treated with Lactulose?

Hidden

•10 years ago

5 Replies

How high were your LFTs when you were diagnosed and what stage were you in

Hello everyone, I was diagnosed this week and waiting on my biopsy to be scheduled. I'm in the US and they require that to diagnose stage and start treatment....

Hello everyone, I was diagnosed this week and waiting on my biopsy to be schedul...

NotorDJP

•10 years ago

5 Replies

Can I use a potassium based salt instead of normal sea salt to control the sodium intake?

nishahathi

•10 years ago

3 Replies

For interested parties: PBCers Conference Info / July 28-30, 2014 in Las Vegas, NV USA I plan to attend and promise to post follow ups!

PBCERS 11TH CONFERENCE “PBC: EDUCATE, INSPIRE & ACHIEVE” Location: Flamingo Hotel & Casino, Las Vegas, NV Date: July 28, 2014 thru July 30, 2014 Join us for...

PBCERS 11TH CONFERENCE “PBC: EDUCATE, INSPIRE & ACHIEVE” Location: Flamingo Hot...

JennerLayne

•10 years ago

7 Replies

Hi all, please can you describe the itch many of you have. Does it come with a blistery rash at all? Have a lovely day

LenaChandler54

•10 years ago

7 Replies

I spent a day running from two different Hospitals getting all my information. Then I made an appointment with a new Doctor. He is highly

2006

•10 years ago

5 Replies

Ginger11

Hi I have just completed a couple of months on the Alkaline Diet and I must admit, I feel better, have more energy and have lost weight! I was diagnosed with...

Hi I have just completed a couple of months on the Alkaline Diet and I must ad...

Ginger_11

•10 years ago

1 Reply

March 2014 - Passing along a 'good news' link to a press release supporting improvements with Obeticholic Acid (OCA) in patients with PBC

I'm sharing information I ran across today in regard to clinical trials with Obeticholic Acid or OCA. The study showed that patients who received OCA in...

I'm sharing information I ran across today in regard to clinical trials with Obe...

JennerLayne

•10 years ago

10 Replies

Diagnosis and scheduling biopsy

Hello all! As some of you know I have been waiting on a diagnosis. My specialist today said that I have PBC, but he wants to know how active it is and stage...

Hello all! As some of you know I have been waiting on a diagnosis. My speciali...

NotorDJP

•10 years ago

9 Replies

Saundrella posted here on Sunday 16th, about the liver protecting properties of NAC or N-Acetyl Cysteine. Does anyone know if it helps PBC?

It's an interesting piece, and my Physio actually mentioned this 'amino-acid' treatment to me the other day (he has other liver issues). However no one has...

It's an interesting piece, and my Physio actually mentioned this 'amino-acid' tr...

GrittyReads

•10 years ago

4 Replies

Teeth sensitivity?

Has anyone experienced teeth sensitivity. I have AIH/PBC overlap. I am on Urso, budesonide and azothioprine.my teeth, not my mouth, hurt especially when I eat...

Has anyone experienced teeth sensitivity. I have AIH/PBC overlap. I am on Urso,...

ZiggyBean

•10 years ago

4 Replies

Hi just looking for info which I probably know :( won my esa appeal waiting on back pay but owe DWP for overpayment will they take backpay

Fredafrogg66

•10 years ago

3 Replies

Urso dosage

I was diagnosed a few weeks with PBC. Today I was put on urso. I am taking 1000mg per day. 500 in the am, 500 in the pm. Is this too much? I weigh 52 kg

I was diagnosed a few weeks with PBC. Today I was put on urso. I am taking 1000m...

Pea1234

•10 years ago

34 Replies

Employment law

Hi does anyone know how I stand at work if I ask to reduce my hours, I'm finding it really hard at the moment with the fatigue and joint pain . I work full...

Hi does anyone know how I stand at work if I ask to reduce my hours, I'm finding...

Kieraferret

•10 years ago

10 Replies

IMPORTANT LIVER PROTECTION

N-Acetyl Cysteine N-acetyl cysteine (NAC) is an amino-acid derivative (small protein) with over 40 years of scientific research to back it up. NAC’s powerful...

N-Acetyl Cysteine N-acetyl cysteine (NAC) is an amino-acid derivative (small pr...

Saundrella

•10 years ago

8 Replies

Can anyone recommend Travel Insurance covering Pre exsisting medical conditions?

I often have difficulties getting insurance due to my husbands diabetes and all his complications, our last annual policy couldnt be renewed as he had a heart...

I often have difficulties getting insurance due to my husbands diabetes and all ...

ReiversMrs

•10 years ago

15 Replies

Is there any kind of bread that is better for us then others? I know we should eat fruit and vegetables, low salt, nothing fried etc!

2006

•10 years ago

14 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for March 2014

muscle and joint ache

Hi All Is it safe to take ursodeoyxcholic acid whilst breastfeeding?

Hi, I have been put on Rifadin three weeks ago by my consultant to help stop the itching. At the moment it does not seem to help.

Here is Website for lab requirements to determine PBC

A Poem for when down and depressed

New Drug Trials

I now know!

WRONG PBC DIAGNOSIS

MEDICAL

periods

Diagnosed 2 years ago . On Ursodial. Past 2 months started put on a lot of weight,Active as I was before. Most weight in waist area. Why?

Naloxone Infusion

I am wondering if anyone has been diagnosed with Stage 3 PBC? My LFTs had been elevated for years, but finally diagnosed in Feb.

Has anyone experienced Hepatic Encephalopathy and being treated with Lactulose?

How high were your LFTs when you were diagnosed and what stage were you in

Can I use a potassium based salt instead of normal sea salt to control the sodium intake?

For interested parties: PBCers Conference Info / July 28-30, 2014 in Las Vegas, NV USA I plan to attend and promise to post follow ups!

Hi all, please can you describe the itch many of you have. Does it come with a blistery rash at all? Have a lovely day

I spent a day running from two different Hospitals getting all my information. Then I made an appointment with a new Doctor. He is highly

Ginger11

March 2014 - Passing along a 'good news' link to a press release supporting improvements with Obeticholic Acid (OCA) in patients with PBC

Diagnosis and scheduling biopsy

Saundrella posted here on Sunday 16th, about the liver protecting properties of NAC or N-Acetyl Cysteine. Does anyone know if it helps PBC?

Teeth sensitivity?

Hi just looking for info which I probably know :( won my esa appeal waiting on back pay but owe DWP for overpayment will they take backpay

Urso dosage

Employment law

IMPORTANT LIVER PROTECTION

Can anyone recommend Travel Insurance covering Pre exsisting medical conditions?

Is there any kind of bread that is better for us then others? I know we should eat fruit and vegetables, low salt, nothing fried etc!

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