Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,391 members • 8,002 posts

All posts for July 2014

Cross over liver diseases

hi all, I have been diagnosed with both anti mitochondrial antibodies (AMA) (primary biliary cirrhosis) and anti smooth muscle (ASM) (autoimmune hepatitis)....

hi all, I have been diagnosed with both anti mitochondrial antibodies (AMA) (pri...

normaM

•10 years ago

15 Replies

Just saying hello...

wow, I had never heard of PBC until this week. I have had and itchy palms and soles of my feet for a about a year and discomfort under the right side of ribs...

wow, I had never heard of PBC until this week. I have had and itchy palms and so...

tnfilmgirl

•10 years ago

12 Replies

Urso side effects?

Hi all I hope someone can give me some ideas on this as I'm feeling very down at the moment. I was diagnosed with PBC in Oct last year and put straight on...

Hi all I hope someone can give me some ideas on this as I'm feeling very down a...

CheshireEm

•10 years ago

11 Replies

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Follow up appointments

I was diagnosed with pbc in January and am due a follow up appointment at the end of August. Does anyone know what I should be expect/ what's best practice? I...

I was diagnosed with pbc in January and am due a follow up appointment at the en...

Lucylongstockings

•10 years ago

3 Replies

Pbc

Jen11804 3 minutes ago I'm new here. I was diagnosed with pbc in the past few weeks. I've had itching of my arm for month and unusually tired. I've always...

Jen11804 3 minutes ago I'm new here. I was diagnosed with pbc in the past few w...

Jen11804

•10 years ago

39 Replies

Odd

What is pbc + ald

Tonbarton

•10 years ago

3 Replies

Attending PBCers conference in Las Vegas Sun-Wed. Do you have specific Q's you'd like me to ask the presenters? Anyone else here going?

Hi All! I know many of you are located in Europe, some 'down under' and many of us geographically dispersed elsewhere around the globe, including the USA...

Hi All! I know many of you are located in Europe, some 'down under' and many of...

JennerLayne

•10 years ago

11 Replies

Help please ... flu-like symptoms

Diagnosed w/ PBC late Feb 2014, blood work has continuously improved since starting Urso. My problem is that I feel like I have the flu (achy muscles and...

Diagnosed w/ PBC late Feb 2014, blood work has continuously improved since start...

Abigail53

•10 years ago

4 Replies

pbc

I seemingly have PBC which I never heard of, I have been suffering for years with itching, rashes etc, nine years ago after two years of pure torture, of...

I seemingly have PBC which I never heard of, I have been suffering for years wit...

ali-d

•10 years ago

6 Replies

Lymph nodes

I wonder if any of you have had sore lymph nodes under the arms from PBC? Magnolia

I wonder if any of you have had sore lymph nodes under the arms from PBC? Magnol...

Magnolia

•10 years ago

7 Replies

Anixiety

I suffer from anixiety could use some advice on how to cope with fears I have one being alone and driving

I suffer from anixiety could use some advice on how to cope with fears I have o...

mysharona61

•10 years ago

3 Replies

Swollen lymph nodes

Hi. diagnosed with PBC some years ago. Recent routine scan showed swollen lymph nodes around pancreas. Obviously worst thoughts entered my head and doc talked...

Hi. diagnosed with PBC some years ago. Recent routine scan showed swollen lymph...

FFC75

•10 years ago

3 Replies

How to rule out pbc...is an ama enough?

Hi everyone, I'm new to the forum. I'm very confused about how to definitively diagnose or rule out PBC, and AIH. A recent yearly physical revealed my ALT...

Hi everyone, I'm new to the forum. I'm very confused about how to definitively ...

Valerie3001

•10 years ago

4 Replies

VERY confused

I was diagnosed 18 months ago with PBC. My gastro Dr. at that time, as well as my hepatologist, told me that I do NOT have fatty liver disease. Now I have a...

I was diagnosed 18 months ago with PBC. My gastro Dr. at that time, as well as m...

WendyMarie

•10 years ago

1 Reply

Urso unavailable??

I have been on Urso 18 months. Recently told by 2 pharmacies that Urso is on back order & will be at least a month before it is available. I find that very...

I have been on Urso 18 months. Recently told by 2 pharmacies that Urso is on bac...

WendyMarie

•10 years ago

11 Replies

Biopsy yes or no?

Hi I keep reading on here lots of comments that here in the uk they tend not to do biopsys for diagnosis. Not true. It all depends where you are. I have high...

Hi I keep reading on here lots of comments that here in the uk they tend not to ...

teddybear7

•10 years ago

26 Replies

Urso?

Each time I get fill to a new prescription the chemist give me a different brand or the generic version. Rather annoys me. Any way my question is the current...

Each time I get fill to a new prescription the chemist give me a different brand...

Lisacj

•10 years ago

8 Replies

Liver Pain during menstruation

I may have posted this before, but have you found that you get more of the liver pain we all get when you menstruate? I have the back and side pain worse...

I may have posted this before, but have you found that you get more of the liver...

NotorDJP

•10 years ago

27 Replies

what do you take for minor aches and pains with pbc.

Just would like to ask what everyone takes for just minor aches and pains. My mom was just seen by her liver specialist and he said to take tylenol versus...

Just would like to ask what everyone takes for just minor aches and pains. My mo...

andrea042473

•10 years ago

13 Replies

Does anyone else just have th each/pain under ribs as their only symptom?

I feel fine except for this almost constant ache under my right rib cage.sometimes feels like something is growing there.when I press on however it's not...

I feel fine except for this almost constant ache under my right rib cage.sometim...

cazz22

•10 years ago

9 Replies

Occupational health , nhs

After occupational health had not agreed with illhealth retirement, I now have another chance , with support from my work, and help from Robert here in the pbc...

After occupational health had not agreed with illhealth retirement, I now have a...

meandmypbc

•10 years ago

2 Replies

Drug trial NGM282

Hi Everyone If I get past the screening phase I may be participating in this drug trial. It is aimed at people between 18 and 75 who have a PBC diagnosis with...

Hi Everyone If I get past the screening phase I may be participating in this dru...

skippydownunder

•10 years ago

4 Replies

Does anyone have hep c and pbc? My doctor wants to put me on treatment for hep c before he treats my pbc.

POZY

•10 years ago

2 Replies

I was diagnosed with PBC about 10 years ago but I do not have any of the symptoms. I do not think I have PBC.

I was prescribed Urso which I still take - god knows why. At my annual medical my live function bloods show normal. Yesterday I visited the consultant at...

I was prescribed Urso which I still take - god knows why. At my annual medical ...

Goks

•10 years ago

10 Replies

Patient is suffering from Pbc stage 2 and irregular menstrual bleeding. Please tell me some remedy for this.

dhirajshilpi

•10 years ago

3 Replies

How long does it take to get your back payed money the ESA owe you after winning a tribunal? Most ive seen as been over a year ago posted???

So now we are in 2014 is there any change in the time slot???

Infodoc

•10 years ago

1 Reply

my doctor says I have health concerns according to MRI on my brain....been off work fo 3 months now..and am thinking of early retirement .

I am nearly 59 now,,,,,what should my next move be.

dunedinScot73

•10 years ago

4 Replies

I have pbc and also arthritis. The two are probably linked, but my recommended treatment for the arthritis includes sulfasalazine pills.

Sulfasalazine is not good for the liver, although I'm told it is the least detrimental of the effective medications available for the arthritis, combined with...

Sulfasalazine is not good for the liver, although I'm told it is the least detri...

mm11

•10 years ago

8 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for July 2014

Cross over liver diseases

Just saying hello...

Urso side effects?

Follow up appointments

Pbc

Odd

Attending PBCers conference in Las Vegas Sun-Wed. Do you have specific Q's you'd like me to ask the presenters? Anyone else here going?

Help please ... flu-like symptoms

pbc

Lymph nodes

Anixiety

Swollen lymph nodes

How to rule out pbc...is an ama enough?

VERY confused

Urso unavailable??

Biopsy yes or no?

Urso?

Liver Pain during menstruation

what do you take for minor aches and pains with pbc.

Does anyone else just have th each/pain under ribs as their only symptom?

Occupational health , nhs

Drug trial NGM282

Does anyone have hep c and pbc? My doctor wants to put me on treatment for hep c before he treats my pbc.

I was diagnosed with PBC about 10 years ago but I do not have any of the symptoms. I do not think I have PBC.

Patient is suffering from Pbc stage 2 and irregular menstrual bleeding. Please tell me some remedy for this.

How long does it take to get your back payed money the ESA owe you after winning a tribunal? Most ive seen as been over a year ago posted???

my doctor says I have health concerns according to MRI on my brain....been off work fo 3 months now..and am thinking of early retirement .

I have pbc and also arthritis. The two are probably linked, but my recommended treatment for the arthritis includes sulfasalazine pills.

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