I have choroidal melanoma : Hi, I'm 1... - Young Adults with...

Young Adults with Melanoma

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I have choroidal melanoma

FurryFox profile image
7 Replies

Hi, I'm 17 and 15 days ago I was diagnosed with melanoma. I wasn't told a stage, just that it was at the back of my eye and that I'd be getting plaque radiation treatment. On July 10 I go in for surgery but I'm terrified. I have to write this out because after reading on it I'm terrified I'll be dead before I'm 30. Here's a photo of the treatment.

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FurryFox
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7 Replies
Robynfine profile image
Robynfine

Good morning! I bet you are scared! I don’t have ocular melanoma but I do know someone that does have it. He was diagnosed 10 years ago and is doing get. Don’t give up hope! Yes, this sucks and it is scary but there is hope. Looks like you are having the same treatment my friend had. He leads a pretty normal life now. I hope this helps! Take care and good luck!

Robyn

FurryFox profile image
FurryFox in reply toRobynfine

Thank you, I'm glad to know others have been able to live normal lives in spite of this

Robynfine profile image
Robynfine in reply toFurryFox

I call it “new normal”. Because you will have your battles like we all do, but you can do it!

wings59 profile image
wings59Ambassador

Hello! I also had ocular melanoma. I was treated three years ago, I was 29 when I was diagnosed. How has your diagnosis been with school? I was almost done with my masters degree when I was diagnosed. I had to take a semester break due to the diagnosis.

I opted to have my eye removed. There’s quite a few support groups on Facebook, if you’re not on them already. I would recommend the Ocular Melanoma & Eye Cancer Patients Forum.

FurryFox profile image
FurryFox in reply towings59

I was diagnosed over the summer, I'm actually leaving for Miami tomorrow and surgery is Tuesday

VivaciousMo profile image
VivaciousMo

Hi :) I read a great book about a woman with ocular melonoma who got very proactive about her health and diet and is alive now many years later and in good health! I'm trying to remember the name of it! I have it at home so email me if you want it and I will send you the title. Moriah.lenhartwees@gmail.com

You've got this! Your youth and your determination will help you! Prayers and good thoughts coming your way!

Moriah

Caradog29 profile image
Caradog29

Hi, I know it’s way down the road now, but how did your op go and how are you now. I had a plaque removed 3 weeks ago.

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