Went to GOSH today for scan and afterwards to see consultant as instructed on Friday. Grace had to be carried in as her leg muscle is really hurting and she had no sleep because of this . All her joint and new ones shoulders and hips all rated at 10/10 for pain. I thought ( sounds awful) but great they will see her ill!
No they would'nt as no recorded of Grace today!!!!! Thankfully I took ipad which had emails to and fro about Grace being seen today. We have to go back Friday to see another doctor who wants to do all the tests she has had all again. Her hands and arms are really bruised ( which doesn't normally happen) from Fridays blood taking, surely the have enough!
Well I have no emailed a length letter to the consultant she is meant to be under asking what is going on as we where meant to go in for a few days?....what the time scales we should be looking at etc. I really feel unless her life is endanger know one is taking us seriously. I am sure this is not normal .......... My next step I guess is to involve Pals at the hospital ?
One fed up mother!!!!