What help is available to help make a claim ... - Vasculitis UK
What help is available to help make a claim for DLA. My son has CSS and has been refused DLA. Any info would be great thanks mand.
The Trust is a member of an organisation called "Benefit & Work". Susan Mills is responsible for sending information to members. The info we have helps when first claiming and for appeals. You can contact Susan by sending a private message - via Directories found in the top section of this site. Or go to the Trust's website - vasculitis-uk.org.uk - for John and Susan's e-mail address.
Patricia
Yes, I can send you some information regarding DLA.
You must appeal...98% of all people with Vasculitis who has been refused DLA won their appeal. If you message me with your email address I might be able to send you some info on DLA and appeals. Also you maybe able to speak to someone who has already been through the appeal procedure and won. Susan
I got refused DLA, I appealed and waited a year and a half, I had to stand before a tribunal, by the time I got there I couldnt hardly walk anyway, I won the appeal but only the mobility componant, I couldnt get the care, God knows why, but at least I won the mobility, it was for just over a year, they review it every year or so, I got a blue badge also, but it all runs out together so I have to go through the whole process again, and I will, I cannot get about. Keep on trying and NEVER give up is my answer
Pat and John & Susan have already offered excellent advice but as someone who has jumped through the DLA hoops I'd be happy to help with your appeal if I can? Feel free to message me and/or ask either of the above for my e-mail address.
Healthy wishes.
Martin
just wondering if you can offer me any advice on a dla appeal,i just read your comments and any help would be great.i suffer from wg which affected kidneys,very short of breath and also hypertension,thanks in advance for any help.
I support the above comments - I used the Benefit and Work service after I was turned down for ESA and their help was invaluable. They gave very practical examples that helped me describe how the condition affected me, so give it a go, you won't be disappointed.
I would gladly help too and have been along this path 3 times. Do email me. And also consider using the Citizens Advice Bureau to help word your son's application or appeal - they are experts at this.
Keep going.....you will get there eventually.
i Zebra, thanks for offering to help. My son used the citizen advice for his application and appeal but lost. He has tried once before do you think its worth trying again thanks mandm.
benefitsandwork.co.uk If you check this website out they might be able help. They charge just under £20 pa and you can download any of the available documents. Vuk are members and we are allowed to share some information but not all. if you message me I can look for you or you could join yourself. This company have helped so many people with Vasculitis and appeals and gaining DLA and ESA.
Susan
As I said in a previous annswer I have had CSS for 17 years.I had to go to a tribunal last wednesday because my DLA has been taken away. Highest mobility , middle care. After I went in and answered questions from all 3 members of the tribunal they decided to return the DLA but they reduced my care. This was a monor victory because my care needs have not diminished although they seemed to think they had. I am going to appeal this decision even though there is a risk of the whole decision being overturned. It is causing me to have terrible anxiety attacks but I just can't give up the fight. Keep appealing and get help and advice from as many peple as possible.
Audrey
