Lemrac66.: I am 66 Myloplastic. And... - The UK Mastocytos...

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Lemrac66.

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I am 66

Myloplastic. And systemic mastocytosis.

For mylo i on no medication.

For mastocytosis i taking 3 cetriizine .and 1

Lotradine a day.

Have heard nothing from guys since 13 july was supposed to have appointmen in 5 weeks.

My back aches .as my shoulder hands knee feet .

Just had lung infection. My doctor wonders if it could be the mastocytosis. Some days feel really awfull. My tongue feels like it swells up not saying it is.

Can anyone advise. I finding it very distressing

Sorry for moaning

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