Lemrac66.: I am 66 Myloplastic. And... - The UK Mastocytos...

The UK Mastocytosis Support Group

598 members253 posts

Lemrac66.

Lemrac66 profile image
0 Replies

I am 66

Myloplastic. And systemic mastocytosis.

For mylo i on no medication.

For mastocytosis i taking 3 cetriizine .and 1

Lotradine a day.

Have heard nothing from guys since 13 july was supposed to have appointmen in 5 weeks.

My back aches .as my shoulder hands knee feet .

Just had lung infection. My doctor wonders if it could be the mastocytosis. Some days feel really awfull. My tongue feels like it swells up not saying it is.

Can anyone advise. I finding it very distressing

Sorry for moaning

Written by
Lemrac66 profile image
Lemrac66
To view profiles and participate in discussions please or .

Not what you're looking for?

You may also like...

Covid19 vaccine

Hi all, I have mastocytosis and joined today looking for info on which vaccine would best suit...
Stone17 profile image

Systemic Mastocytosis and Ehlers Danlos Syndrome hypermobility. Does anyone else have this combination of diagnoses

I was diagnosed with Postural hypotension / POTS some years ago but in 2022 the Cardiologist...
Marcilhac profile image

Might I have Mastocytosis rather than MCAS?

Hi, I experienced a very strange phenomenon last night that I've never had before and it's made me...
Chancery profile image

Advice please,

Hi everyone, I'm starting to really struggle now. I'm pretty sure I've...
Sotonowl profile image

Could MCAS a possibility?

Hello everyone, I have been wondering for a while if I could have MACS. Last year I was...

Moderation team

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.