UP and food intolerances

[Jazzsinger77]

Hey guys,

I have UP and have recently been experiencing periods of fatigue particularly in the early afternoon and evening.

I’ve never had any known allergies but I’m wondering whether high histamine foods might be triggering my mast cells and this could be related to the fatigue.

Has anyone else had this and what do you do?

I’m loathe to cut out bread and all dairy as I’ve been eating this my whole life and felt fine for most of it, but I have bought the following to reduce histamine triggering:

Quercitin, DAO enzyme, vitamin C, magnesium and a decent multi vitamin. I have also started taking a antihistamine (benedryl )

Do yo think that any of these could help with the fatigue through reducing the histamine release?

[Jess-UKMasto Partner]

Hi Jazz. Diet in Mastocytosis is highly variable from person to person. While some people benefit from a low histamine diet (which high cuts down on the amount of actual histamine you eat, but doesn’t affect how much histamine is released as I understand it). My personal experience was like yours in that I noticed that after lunch I didn’t feel well. I started keeping a diary to see what I was eating before not feeling well. I was in my 20s and had never had food allergies before (and none came up on testing back then and I haven’t bothered to repeat it) but when I stopped eating the things that were associated with those bad afternoons I felt better. How religious we are about our diet often depends on how bad eating the things makes us feel... If you keep a diary for a bit and identify some possible culprits I would encourage you to consider dropping only one thing at a time for a couple of weeks so that you get a clear sense of whether it helps. And you don’t want to cut out anything unnecessary and end up with a diet that doesn’t have the nutrients you need. It’s a bit tedious but worth it if the improvement in your quality of life is significant. You are the only person who can judge that!

Obviously for anyone who is having serious reactions to food (any swelling in the mouth or throat, low of consciousness etc) then that isn’t an optional decision since the reactions could be life threatening.

Xx

[Jazzsinger77 in reply to Jess-UKMasto]

Thanks so much Jess-UKMasto . A good reminder and very helpful approach.

[MarieWK]

Hi Jazz, changing my diet has changed my life and diet has a massive impact on my systemic masto. However I found it not entirely straightforward to figure out. There is so much info online and it gets very confusing. I had great help from a nutritionist firstly to get my digestion up and running again and afterwards trying to pinpoint trigger foods, but also to find helpful supplements. I am now at a point where I feel almost like my old self. I hope this helps you and I wish you the best of luck. Marie

[Jazzsinger77 in reply to MarieWK]

Thanks it does yes. I will probably get some advice from a nutritionist too.