Its three days into my challenge of writing a blog post each day for a month to mark Tourette’s syndrome Awareness Month in the USA. But today, I’m asking for some help from UK ticcers and parents/carers of kids with TS. As you may well be aware Cameron has put a temporary halt to his plans to reform the NHS and as part of those plans Cameron and some of the other politicians involved in these plans have been up and down the UK listening to the opinions of healthcare professionals. But what about the patient groups? Well, I’m off to London on Thursday to attend a meeting for patients/service users to voice their opinions on these reforms – this is where you guys come into it, we all know that quite often GP’s knowledge of TS can be a bit patchy and as part of the coalition’s plans GPs will be in charge of the lion’s share of the NHS budget and will be making the decisions about how that money will be spent on you or your child’s care. What I would like to know about is what have your experiences with your GP been like? Where they helpful? Did they refer you to a good TS specialist? What is their knowledge of TS like? I would like some examples of both good GP experiences, and some bad to use as evidence to support my argument on Thursday.
I look forward to hearing your stories, please message me or comment in the box below.