Reversing tinnitus by stopping meds?

[frejsb]

Hi folks, I’ve done some research but haven’t been able to find anything useful. My tinnitus has hit what I HOPE is the maximum level I will experience, and I’m ready to try anything. The thing is, I’m chronically ill, and take duloxetine, nefopam, propranolol, amitriptyline and lisdexamfetamine daily, as well as ibucodeine and/or cocodamol PRN. I know they have caused my T to reach this point, so my question is - will it go away if I stop taking all this medication? If I were to do so I would of course taper off gently with the support of my GP but I want to know if it would at least be worth a try; then, I could start from scratch and figure out what I really need to be able to function without causing the T to return.

I’m interested in hearing your experiences, if you have done this successfully or tried it and it didn’t have any effect, or anything in between. This is my last ditch attempt at survival. Thank you in advance x

[Vic24]

Hi! I’ve done some research on me. As I have written many times, the spikes of my T are caused by:

- High/low BP

- weather changes

You should take first some medication for stomach and Probiotics.

The doctors discovered smth wrong with me, namely low DAO( smth about too much histamine in my body). I started taking one pill named Daosin .

, I wouldn’t advise you to give up medication. Only if your GP agrees.

I think that DIET is very important.(I have suffered from T for 18 years),

Good health!

[Saorfhlaith22 in reply to Vic24]

What Diet do you follow?

[frejsb in reply to Saorfhlaith22]

I have a healthy balanced diet with additional multivitamin and vitamin d supplements. I’ve had recent blood tests which showed no deficiencies or issues at all.

[Saorfhlaith22 in reply to frejsb]

👍 thanks for replying

[frejsb in reply to Vic24]

Thank you

[frejsb]

Thank you. I have already done “some serious research” and came up empty, which is why I made this post to gather first-hand lived experience. I did also aay I would taper off carefully with my GP’s help and obviously wouldn’t stop anything life saving, I didn’t think that needed to be said. SSRIs and many other medications take a while to completely leave the system once you stop taking them, so just missing a dose or two wouldn’t really make any difference. Thanks for sharing though.

[Austen17]

Hi there. I'm sorry that your tinnitus is causing you such difficulties. I've come to the conclusion that for me some medication seems to make it worse (in my case antihistamines and codeine) but then so do other factors. If I am ill, stressed or tired, for example, everything feels worse compared to when I am relaxed or happily busy, when everything recedes into the background (I have tinnitus and pulsatile tinnitus).

I am also living with a chronic condition and I think the stress of that for me, makes my symptoms worse. But then your experience might be completely different.

I would say be gentle with yourself and take your time deciding because I suspect that it may be difficult to get a definitive response. Good luck.

[frejsb in reply to Austen17]

Thank you Austen that’s really helpful. I am struggling to be happily busy because the discomfort of any mid-level noise at all stops me wanting to go out and socialise or listen to music, podcasts, watch tv or cinema etc. I have an audiologist appointment next week so I’m hoping they will be able to confirm that it will eventually ease on its own. I’ve only just finally managed to get my pain and ADHD under control so I REALLY hope it’s not the meds fault. Thank you for your kind words.

[intachassan]

Hi ‘sorry to hear you have multiple health conditions just like myself but my experience with T has been challenging even after i stopped amitriptyline through mine is pulstile tinnitus on my right ear only🙏🏻

Saying all this its tuff very hard dealing with acceptance while in time our brain habituates and make is easier to cope on daily basis & baring in mind it can spike for no reason whatsoever from whooping sounds to ringing from buffering to whistle

I to have tried just about everything even going abroad for second opinions but now focusing on TMS treatment in hope the noise level will decrease

I myself have been suffering for almost 2 years but recently noticing positive changes bit by bit day by day

We live in hope that one day it will get easier to cope and get on with life uninterrupted by the none curable illness also when i look around and see people who can’t smell touch or walk in aid then i say be thankful that there are people in worse pain then we are

I hope these short words comes with comfort to you and wish you all the best in your journey through life it self

Regards intac