Hello, I do hope everyone is well or as well as can be.
I've been studying my tinnitus condition for around 12/15 years. I encourage everyone to do the same. Most Tinnitus associated publications or organizations are merely window dressing and will only serve to keep you confused and on the medical merry go round, IMO of course. If you want any serious relief you really have to take responsibility and begin to take notice of your environment and investigate it properly. After all, we are all products of our environment and our environment has never been so polluted with Electrical and RF/Microwave smog from towers and Satellites as it is now. The last 25 years has seen an unprecedented increase in these types of technologies and a hole host of new health conditions have presented themselves on scales never seen before.
As a Mechanical Engineer and Precision Machinist of 30 years. I've always endeavored to take a methodical and systematic approach to try and understand not only myself but the environments I inhabit and how these environments effect me. You really have to pay attention and not try and "switch off" like some people might tell you! Its easy to ignore or dismiss things but once your paying attention and with a little education you'll learn to trust your observations without being too overwhelmed by your surroundings.
Now i know its not always possible for people to remove themselves from most day to day environments and what I'm about to tell you might seem impossible for many of you, but for some of you it shouldn't be too difficult and its 100% repeatable. Now there are serious conditions that must be followed if your to discover what's NOT causing your tinnitus. And when you know what isn't causing it, you can start to point the finger at what might be! The most important condition is to leave any electronics at home. The second is finding the right location.
I've been very fortunate to be able to visit some very secluded places in the far North West of Scotland (off the beaten track), away from all modern infrastructure. No phone signals, no people, no houses and with high mountains all around you and in close proximity.
As most of you know its at night when its quiet that tinnitus is at its loudest. I have on every occasion at very particular locations had 100% relief from Tinnitus. The first time 14 months ago i was utterly dumfounded that I'd stumbled upon a place where my tinnitus had completely disappeared, even if only for one night. For me not a day of relief has gone by so when your settling down for the night and its so incredibly quiet and you can hear your blood pumping, you known your on to something. I tried this 4 months later and i had the exact same results.
I intend to take someone with me next time who i trust so they can share in the experience.
So my final point is. Get away, explore, aboard maybe, find mountains which are accessible and try it for yourself. If you've planned your trip correctly then there's every chance you'll experience the same as I have. I'm absolutely sure of it.
These big technology company's think they have us all locked down but they haven't and when enough of us realize we've been played then we can start to effect change.
Bless you all & take care
David
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Bigears1
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Hi there! Any chance you can make it longer than a day/night at some point? See if it's sustainable rather than just simply within a period of novelty?
I could certainly. Not sure what you mean by novelty though? I'm sure you can appreciate how relentless tinnitus is so one night of complete silence and a second night a few months later satisfied my understanding. But yes my next trip will be longer for sure. Finding locations like the one i mentioned, getting to it with enough provisions requires a lot of preparation. Especially in the winter months.
This is where the research should be, all these organizations are just pocketing the money for doing sod all. Its scandalous.
Well, you said you went for a day, or was I wrong? A day isn't very long for your relief to be attributable to the environment when it could simply be the newness ("novelty" of only one day) of the environment, having been only one day. So next you try to see if it will be durable and persist longer than a day, perhaps longer and longer, that's when you might say it has to do with the environment, and not just the newness of it. See how long it lasts, and does the relief continue on or does it end at some point. Because the "novelty" of the new environment can be a confounding variable until you have eliminated it as a contributing factor... Right now you have an x and a y, two variables. Well, which one caused the relief, you can't say. You must solve for x or for y, assuming one contributes and one does not. After which it would be the environment itself that you might attribute the relief too. Alternatively, if it is the change and not the environment itself, then maybe what helps is taking little trips or changing up where you are for a bit and see if brief changes don't help. That's doing research when you are your own experimental group of one, or "n=1." You said you were an engineer, so think of it as an equation and you have to solve for one, the single, independent variable... Unless you're already firm that both the change and the location are contributing to the relief. Right?
And yes, chum, I have tinnitus. Have done for 30 years.
I see your point, but I may not have explained mine. I've been to Scotland hiking and camping in the hills probably close to 100 times over the years. Fully aware of the tinnitus in all kinds of weird and wonderful place. So to find certain locations with certain characteristics where its completely gone and its repeatable. I'm sorry but that's significant in my book.
Yes that's the idea, to test and then retest and then test longer. Well I'd love to join you but I am about 5,000 miles away so Scotland is out of the question. I've had my tinnitus for 30 plus years.
I do know how to test my hypothesis lovely. I think there's no pleasing some people unfortunately. I think your kind of still missing the point though. Nevermind.
I don't usually contribute but I do check in sometimes and saw your post and felt the need to comment in view of the ensuing replies. I have no idea if your theory and experience is a valid one but you are entitled to your views and theories so long as they are not harmful to others as much as anyone else. I hope you continue to benefit from whatever you personally believe gives you relief. We are all different, and yes I have tinnitus and we all make our own choices.
currently I’m in a remote place in Africa (though yes I’ve got WiFi). Because I’m happy and fulfilled I just don’t notice the tinnitus - which I’ve had for sixty years or so - and it’s only because I’m reading this post that I’ve noticed it. Except when falling asleep, the local cuckoo or the owl keep me awake and then I hear the T.
Hi, I understand what you are saying, but I find that when ever I go on holiday my T is always more subduded which I think it`s just my brain having differant things to focus on and when I return home my T goes back to it`s normal annoying level.
Very interesting post. Thanks for sharing your experience. Just hearing you describe the places you visit was relaxing to me and calmed my Tinnitus.
I have had Tinnitus for many years now and have been on a journey to reach the point where I do have relief from my Tinnitus 99% of the time in any situation.
This has been achieved by dialing down my anxiety and my Tinnitus, like so many others is calmer when I am calmer.
So reading your story this would suggest to me that your experience of being out n nature is so relaxing for you you that your Tinnitus moves completely out of focus.
This is amazing - well done
We are all so wonderfully different and there are so many ways for all of us to find ways to achieve this inner peace. Being out in nature is certainly one of mine.
This of course wont work for everyone and its unlikely that the same scenario will have the same effect on others as we are all so wonderfully different. But it does highlight the possibilities of how well we can live with Tinnitus and the importance of us all to continue searching for our own perfect spot on the map or, more broadly the things that relax us the most
So while I don't support a pilgrimage to this specific location as i don't believe its anything specific about that particular spot that's special i do support the notion that being out in fresh air, with no technology spot, stunning views will for many give them a positive experience with their Tinnitus.
Just reading through the responses and I must say Marion and Big Ears that we are not being kind to each other in some of the comments. As 2 people that share a common challenge i would expect you could have found some middle ground here. Appreciate with such an emotive subject that it can be easy to hit a nerve and its of course reasonable to be excited my the prospect of finding locations that can help calm Tinnitus and reasonable to be skeptical and wanting more relief. This conversation could have been had while still being kind to each other.
Sent with care and in the spirit of bringing us together
I totally agree with the sentiments here. Anything that works even for just one person should be celebrated and shared. If there is any chance that it might work for one other person, for any reason at all, then it must be worth passing on.
Thanks to everyone for their contributions. It's great to know you're not alone.
I agree 100% that T is caused by transmissions especially mobile phones. For 36 years I worked in communication technology. The world's first texts were sent from Vodafone (Newbury in the UK silicone valley). I worked with these guys. In the 80's, much was in infancy, and Vodafone engineers told me the mobiles they're developing heat the cells in the brain next to the ear, via frequency heat. Think microwaves. Does anyone else feel pain during a mobile conversation, by their ear? The first generation of mobiles were worst. For us oldies who remember them! Thank you Bigears1 for sharing.
Although I guess it's possible that some tinnitus is caused by some sort of transmission that is not my experience. My tinnitus started in 1988 at a very loud gig I was playing at. No mobile phones at that point. It's not really changed much since then. Sometimes really bad sometimes bearable. I don't think phones have anything to do with it. What I believe is that my state of mind affects it. The more relaxed and at ease I am the better the tinnitus is.
I don't feel pain when the phone is next to my ear.
Maybe you've been sensitized then? It could well be that I have too. I went to a lot of raves in the late 90s. Never suffered with tinnitus in the 2000s though. Fact remains it isn't hard for current telecommunication infrastructure or RF technology in genral to make that sensitisation a lot worse and more I believe. And you dont need to have hearing damage to suffer with tinnitus either. Plus I know the difference between being distracted as you say and relaxed. I'd be with you if it wasn't for the fact I was able to hear my own blood pumping and it was repeatable. I can remember straining to try and hear the tinnitus sound and for the life of me I couldn't hear it. And it's not like I can count on one hand when I've been relaxed in the last 15 years. So interesting points all the same. Theres a lot more going on here than people are being led to believe imo. Thanks.
Not exactly sure what you mean, sorry. If your hearing both then that sounds very concerning. The point I was trying to make was it was like being in an anechoic chamber. Not something the public get to experience or even know what one is so they dont know any better. For the uninitiated, it's the quietest of quiet rooms designed to keep all frequencies out. All the sounds inside are amplified. And in my case it was hearing your heart beat in complete silence.
The sooner people realise tinnitus, the "Hum" etc are, in the vast majority, environmental problems from external sources, the better for everyone.
Thank you Bigears1 for sharing 💕. I truly like your thought pattern. Simply escaping to nature's world is always a good thing. I'll note and see if this makes a difference.
Once they have you in the bag, so to speak, that's it. You are their captive. For those of us blessed with an intellect, we can at least pretend we get the final say ourselves.
Thanks for the replies. Its a shame but not a surprise the truly patronizing and slightly dismissive comments tend to be from accounts with thousands of replies to there name. That should tell you something. Its not uncommon at all. All social media has the same characters that frequent forums. I don't need to explain why that is.
The fact remains that there are quiet areas, unfortunately though making them public would compromise them.
"We are all products of our environment and our environment has never been so polluted with Electrical and RF/Microwave smog from towers and Satellites as it is now. The last 25 years has seen an unprecedented increase in these types of technologies and a hole host of new health conditions have presented themselves on scales never seen before."
Is this true of Tinnitus? I remember reading about references to Tinnitus references as old as time. Long before technologies etc
I think we need to be careful when discussing these things your theory may mislead people which in turn may delay recovery. Your experience is great to read and proves to me that finding that relaxing thing that works for us can really help our Tinnitus reaction.
I am sure we have much to learn about the impacts of microwave background/mobile phones and the impact on our health but are you saying you believe Tinnitus is caused by the above?
The tinnitus effect for want of a better word can be caused by a number of things, yes. Anyone whos been to a club will know there ears can ring for days. Any loud sudden noises can cause a tinnitus effect as well. In my experience the effect does not persist and certainly not for years, a few days at most maybe, depending on the severity of the noise that is. These effects are all measurable. External source, internal effect, in the case of tinnitus and loud noises.
Its the same for radio frequencies, the difference being the external source is not always "noticeable" but the effects are and they are measurable.
There are persistent unwanted radio frequencies, which have been a around a lot longer than you might think, over a hundred years in fact. Radar is a good example which acts like a mechanical force resonating bone structures (Frey Effect) (Microwave Auditory Effect). This is why only you can hear it.
Its a linear measurement because its considered a constant mechanical force. These types of technologies, RF/Microwave/Pulsed/VLF/VHF/Ultrasound, which i can assure are not new by any stretch are well documented to cause tinnitus and other auditory/biological effects.
What's relatively new (60+ years) is the scale on which these frequencies/technologies have been adopted domestically and deployed world wide. Most people are either too distracted or even care in some cases to notice. This is for a number of reasons which we wont go into here now. Basically it comes down to ignorance, willful in many cases. IMO.
The only people who are misleading or at the very least doing a disservice to human kind are the ones NOT talking about RF technology and its relationship to the auditory effect not to mention the biological effects which is another very important topic of great concern.
Its a very serious situation we find ourselves in, which in my opinion is why we don't get to hear much about it on the main stream. We all have to take responsibility and find out for ourselves. Its much easier to blame the individual for having some arbitrary ailment which keeps people ignorant of all the facts.
Hence why we have the window dressing lobby purporting to help people, NGO's/So called charities/ industry funded studies, etc etc etc.
I know its a lot to take in if your genuinely new to this conversation but i cant stress enough how important it is....
Don't take my word for it. Go investigate it properly. Once you understand the basics of how easy it is to reproduce the tinnitus effect it will be much harder for these organizations to mislead you.
I will add that its perfectly fine to talk about these things, do your own investigations and ask questions. The algorithms and in some cases moderators will try and place conversations like this in a limited hangout but it cant shut the conversation down completely. Many people are talking about tinnitus as its related to RF/Microwaves/etc. Beware negative comments around this topic, there are concerted efforts to keep this topic in a domestic context out the mainstream by people with an agenda.
So I had a read up on the subject and its my personal opinion that your view that this causes Tinnitus is nonsensical and should be filed in the "Earth isn't flat" We did land on the moon" "Elvis didn't shoot JFK" "CBD Gummies are great" Category of the Forum.
Joking aside and no offence intended I think people who are new to Tinnitus may read your post and have false hope that their condition isn't a noise generated internally so I felt compelled to review and comment.
I wont be contributing any further to the post so let people read and they can make their own mind up.
You are very lucky to be able to find these serine locations and I hope you continue to enjoy visiting them
I'm sure your environment to some degree will contribute to causing t, or affect it at times, in the same way that hyperacusis or sensitivity can be set off / heightened by certain sounds / events, or maybe just builds up over time eg a lot of power tools, gigs etc.I've found when I travel eg a long road journey and the sound of the road surface for say 2 hours temporarily numbs it to a point where it's not audible and then it takes time, normally .5 to 1 day for the PT to return - often at a raised level. Sometimes when I am in a new place t will be better, sometimes worse. I think it's just our brains dealing with transitions. Is it possible that the wind noise up north acts as a more natural white noise to contribute to hearing things less?
I had covid recently and at the start couldn't hear my PT for 2 days - again I think because my brain was dealing with so much else, then it came back worse (partly from congestion). Someone at work with covid without any t said she could hear a pulsing but she was congested so I advised not to focus on it and try and get decongested - otherwise I think that could well have led to her developing it from being aware of it. I've used laptops and computers for years but never really used mobiles much and only use speaker on them now. I also think everyone's ears are different even if we have the same structures - ie some of us may be more susceptible to developing issues - if you think about how many oeople as they age have hearing issues (some level of deafness), I don't think it's too different to have sensitivity issues. All I know is now I try and protect my hearing as much as possible ie using ear protection when using any power tools as in reality they are quite loud and some will also vibrate more than what most people think which may cause additional issues.
TMJ for those of us with it and teeth grinding leading to our jaws sitting differently is imo bound to affect the ear membrane which is right next door.
I think basically there's several issues and we are all different. What may help is us trying to understand our similarities and differences, both short and longterm to look at common causes where things overlap, only then will possible actions be taken ie wearing hearing protection with just a drill etc. or getting industry standards changed for the common good.
This is why the nhs only act on what they can see from scans etc.
I'm still very nervous about having skull surgery (based on nhs scans) to try and thicken my internal bone just because it's a bit thinner - there's a chance it may not work and I'll be scarred for nothing. Surely the bone thickness has been the same for years and the cause is more likely to be hyperacusis - that aside it's not going away and my brain hasn't adapted to overcome it after over 5 years of having PT.
Now when people think of radiation poisoning what's the first think that comes into there head. Chernobyl??
Well to a degree that's a fair comment given the woodpecker radio antenna is only a couple miles away from it. Anyway.. Radiation poisoning is everywhere, were surrounded by it on a daily basis.
And like the Pentagon Colonel said in this video, at high doses it's just like a bad flu.
Radiation poisoning causes lactic acidosis which is like a bad flu which in turn can cause hypoxia and much worse in the elderly. Some of the medications given to "Covid" patients in hospital are the sameones they give to chemotherapy patients.
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