Can anyone tell about the Lenire system and neuromodulation?

[TimsGuitar]

Hello all my name, and I am new here and I am from the United States. I stumbled upon this sight while googling info about Tinnitus on the internet, and if you have Tinnitus then you know that it does not really matter where you are from. Anyway, I have been looking up info about the Lenire system, and I understand that it is something that I may have actually started in the UK, and that it is something that is very new to the United States. Most of the things I have read about it so far are good, but does anyone here actually any experience with this? It also might be helpful if anyone can direct me to some more reviews on it. I am aware that not all reviews are honest.

Thank You,

Tim.

[Happyrosie]

welcome TimsGuitar. You are in the right place here.

Personally I’ve not used Lenire and other posters may have their views. The best site (other than here) to get information about Tinnitus is Tinnitus UK. Their website is full of useful information including Lenire,

There are many sites about T and they are just after your money. There are no cures, as such, but ways to deal with it.

[TimsGuitar in reply to Happyrosie]

It's been kind of frustrating because it's new and very few people have used it. There likely will be a cure for T one day, but until then there are lots of scams. However this is FDA approved here in the states.

[TinnitusUKPat Partner]

Hi, Tim's Guitar.

I would say one resource to use for a US perspective on Lenire would be Treble Health's YouTube channel. They don't have a vested interest in the technology but have published a number of previous videos on it, including an interview with chief scientific officer, Professor Hubert Lim. This is an overview based around the FDA approval for the technology - youtube.com/watch?v=ZnpJjhq...(Not working as expected?)

The general guideline is that Lenire, in the focused testing which has been carried out, seems to work best for people with subjective tinnitus - effectiveness for people who have pulsatile tinnitus or myoclonus symptoms would be unclear.

A neuromodulation therapy should provide two simultaneous forms of stimulus - sound and electronic pulse - which can help to shift our brain's focus on tinnitus and direct it elsewhere.

The Royal College of Psychiatrists in the UK has an introduction to neuromodulation on their website - rcpsych.ac.uk/mental-health... - which explains how it is used and some of the methods.

As Lenire isn't primarily a psychological therapy, it wouldn't be included in this round-up - the closest parallels to it on the RCoP article would be rTMS and tDCS, I think.

With best wishes

Pat

[TimsGuitar in reply to TinnitusUKPat]

Thank You.

[Ruud1boy]

I was amongst the first wave of Neuromod's commercial patients and bought the device maybe 4yrs ago. Used it compliantly for 18mths, but never saw any improvement in my T over that time I'm afraid. There were stories of other users suffering adverse affects & their T actually getting worse. Another Lenire user - Ade the Pade, don't know if he's still on this forum - said he'd been advised by medical professionals that neuromodulation for tinnitus was too risky - too much danger of unintended consequences.

If you can afford it, I'd still recommend doing it. You might have more luck than I did, but go into it with your eyes open.

[TimsGuitar in reply to Ruud1boy]

Do you have pulsatile T? The above post says it is less effective for that.

[Ruud1boy in reply to TimsGuitar]

No, I don't have pulsatile. Severe, subjective bilateral T for c.8yrs

[Philip6]

There are quite a few reports of Lenire making tinnitus worse. An internet search will find a forum of Lenire users on Tinnitus Talk, the consensus of opinion is that it doesn’t work. The trials of the device were very strictly controlled, you had to be under 30 and have had tinnitus for no more than 5 years. According to Treble Health the results of the trial were worse than if you had masking hearing aids and CBT. Tinnitus UK actually say there is evidence of harm using the device.