Gezzybear has a question

[GEDB1]

Hi Guys

I wrote a bio which was really mainly my questions regarding Tinnitus. Is anyone able to advise as I am a young 49 with young child and so would really like a heads-up from people with experience on what to do?

Wishing you all well..

[bournville]

hi I’ll probably get massively slapped down for this but i understand there is a 2 to 4 week window from onset where you can take the steroid prednisolone and it may help sort the problem. If I could change anything it would be that I had been put in front of someone quickly who could’ve prescribed that for me knowing what I know now. Don’t do this and self medicate off your own bat but it may be worth discussing with a sympathetic Doctor.

[GEDB1 in reply to bournville]

Bourneville.. Thanks so much for your kind reply. I will certainly pursue the doctor with all my strength. This is already puting a strain on family life as I have no gumption to do almost anything and it's hard for others to understand. Thank you.

[ArtyPants46]

Hi there!

I am a 47 mum of three and have experienced similar. I’ve had loud tinnitus for 2 years then 18 months ago experienced vertigo and nausea. It was very scary. My doc initially thought it was labyrinthitis and I was convinced it was Ménière’s disease but I’ve been diagnosed with chronic vestibular migraine.

Important to try and see the ENT asap and to get a hearing test (it is worth getting this done asap with a private audiologist as they are very knowledgeable on ears and can help guide/reassure you while waiting for the ENT).

The main thing is to not stress too much which I know is easier said than done. The tinnitus will become more manageable and there is medication if you experience nausea. My main things to cope have been daily exercise - swimming is best for me, walks in the woods, healthy diet, good sleep (white noise at night) and a positive attitude.

Good luck!

[GEDB1 in reply to ArtyPants46]

Arty Pants. Thanks very much for the advice... All good stuff there. And good luck with your own situation and best wishes. I will especially note the last and middle paragraph.. Thank you

[SimToTheWorld]

You already have some good advice here. My contribution is that I wish I had seen this video when I started my journey with Tinnitus.

I hope it helps you.

youtu.be/y4zuVk5STuM(Not working as expected?)

Also, don't expect a lot from ENT, I would check online which ENT doctors work at your local hospital, then find your nearest private hospital and check their profile on their website (almost all NHS doctors work at local private hospitals as well) to see if tinnitus is listed as their speciality. You can even phone the private hospital and ask which of their doctors is a tinnitus specialist. They don't need to know you are not going to make an appointment. Then when you get refered to your local NHS hospital you can ask to be refered to that specific doctor.

Also check that your local hospital has a tinnitus audiology specialist. They are the best people.

[GEDB1 in reply to SimToTheWorld]

Sim.... Thank you so much. I wholly appreciate the time taken by you and all who have made this effort for me. Thank you!!

[Fridays_Child_62]

I have read your Bio and your ear complaint seems like something I experienced a few years ago. I had a vibration in my right ear that sounded like a car engine outside or a washing machine in the next room. If I covered my ear, it was louder and I could hear it was a physical vibration within my ear. I also had episodes of erratic tinnitus during this period, but I already had high-pitched tinnitus. The Doctor thought it was Labyrinthitis but I didn't get any dizziness, apart from feeling a little unsteady (but that may have been caused by my heart). The vibration disappeared after a few weeks but left me with other ear issues. One was sudden ear twitching or fluttering that I still sometimes get to this day. I think these things evolve and I suggest that you try to remain positive that you will get through this.

Regarding your high-pitched tinnitus, I think you should find that it settles down after a while - it may remain but you will get used to it and your brain will push it to the background. If it's disturbing you at night and affecting your ability to get to sleep, you could consider a sound-therapy machine to mask the tinnitus or distract your brain from it.

[GEDB1]

Friday, Thank you. I am currently using alexa for white noise or ocean sound or thunder. Thanks for the suggestions.. I have heard that the brain will eventually push it to the back so I hope for that if this continues.. Thank you...