Change in sounds: Hi 5 years into the and the... - Tinnitus UK

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Change in sounds

SUS776 profile image
16 Replies

Hi 5 years into the and the noise that l had habitation too was a hiss now its changed ro like siren did this happen to any one else feel bit disheartened as anxiety creeps in with new sound.

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SUS776 profile image
SUS776
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16 Replies
Karlos99 profile image
Karlos99

hi there mine changed after about six years. Went from one sound that wasn’t too intrusive to three sounds that were horrific. The early days of this were bad but you do habituate again. I still have my bad days but most are ok. I just keep myself busy and at night wear a sleep headband. I can function perfectly well. All the best

SUS776 profile image
SUS776 in reply toKarlos99

Thanks feeling hopeful ☺

Suz_2 profile image
Suz_2 in reply toKarlos99

do u hear yr T all the time - in the daytime as well??

Karlos99 profile image
Karlos99 in reply toSuz_2

yes 24/7.

pigeonCl-HU profile image
pigeonCl-HU in reply toKarlos99

Hi Karlos, I am new here, you have mentioned a 'sleep headband', could you please tell me what it is?

Sorry if it is a silly question but I am struggling with this new condition, T....

pigeon

Karlos99 profile image
Karlos99 in reply topigeonCl-HU

it’s not a silly question. A sleep headband has speakers inside. They’re Bluetooth (no wires) and you can connect them to your phone. You can then listen sounds, music, podcasts or whatever you want to distract you from the tinnitus to help you sleep. I got mine from Amazon. It’s called musicozy. £20. Any more questions or advice feel free to ask.

pigeonCl-HU profile image
pigeonCl-HU in reply toKarlos99

Karlos thank you so much for your reply, and for making it easy for me to ask questions.

At the beginning, when I read that T is forever, I felt doomed. Honestly. I so love Silence. The silence of a quiet day in my garden with just the birds and my dogs for company.

I guess no use to yearn for the past, we have to deal with the present. I glean hope from what I read here on this forum. I believe what people say about habituation, although at times it takes something akin to blind faith to believe that it is at all possible.

But it must be possible. Or else we would all be in a place we don't want to be....

Thank you again for your advice; should I opt for a sleep headband, it would be musicosy for sure.

pigeon

Karlos99 profile image
Karlos99 in reply topigeonCl-HU

you’re welcome. The realisation I’d never experience silence was something I really struggled with in the early days. The thing is though, those thoughts do nothing but prolong your habituation time. The tinnitus is here and we can’t change that but we can change how we react to it. Accept the tinnitus then get into the mind frame that it’s unimportant. Then you’ll soon start to see improvement. All the best.

pigeonCl-HU profile image
pigeonCl-HU in reply toKarlos99

Thanks Karlos, I realise that this is now how it's going to be, only it is so difficult to accept. But others have done it, and I shall do everything I can in order not to prolong my habituation.

Changing the subject....reminds me of when conservationists speak of habituating mountain gorillas to the presence of humans. It takes years, but it is achievable. So here is to Hope.

pigeon

Karlos99 profile image
Karlos99 in reply topigeonCl-HU

it won’t take years. Be positive. Mine took about 2 months. You can do it. Just keep telling yourself the tinnitus is unimportant. Try not to get too upset and react negatively to it. All the best. Any more help or advice just ask.

pigeonCl-HU profile image
pigeonCl-HU in reply toKarlos99

Thank you Karlos, I know what you are saying is absolutely right. I suppose telling myself T is unimportant....I am not there yet. But I see what you mean, and I agree with you. You have done it, which is great.

It seems to be true, that the more you fight that thing the more it will defeat you. One way of not fighting it, is not dwelling on it, which I don't.

We all of us have sustained a loss, the loss of Silence, but I see people get on with their lives, which is really positive. We have no choice, so we might as well.🙂

Again thank you for offering help and advice, we all need it when we feel lost.

pigeon

psycholady666 profile image
psycholady666 in reply topigeonCl-HU

I would also struggle with no silence, as I love silence! . But I find that out in nature eg by the sea - T is not noticeable as nature’s sounds take over.

pigeonCl-HU profile image
pigeonCl-HU in reply topsycholady666

Ahhh, the sea....always been a magical place for me. It's lovely that you are able to spend time by the sea. You understand then what I mean by 'Silence'. When I walk in the park T seems to recede , good riddance!

Suz_2 profile image
Suz_2

my T changed 7 weeks ago and now it louder and more bothersome than before - i am much more anxious than i was last year, and that was a difficult year with the T . - just hope my brain can adapt

Karlos99 profile image
Karlos99 in reply toSuz_2

yes the same happened with me. My anxiety went through the roof and I had panic attacks that lasted days instead of hours. It levels out though and your brain adapts. It will get easier. Try and stay positive and try to keep calm. The less you respond to your tinnitus the quicker you’ll habituate. Good luck.

RobWG profile image
RobWG

Hi

My sound changes quite often, it's normally a high pitched hiss. It changes to ( and back from) a solid tone now and again and a few other subtle variants.

Initially I found that very difficult, each change would certainly move me back in the habitulisation phases but over time I ve got used to it as Tinnitus itself so when it occurs I know a bit of time and I'll start ignoring it.

Hope it improves for you.

Regards

Rob

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