Advice for Hearing aid , reviews or experience... - Tinnitus UK

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Advice for Hearing aid , reviews or experience using lenires bimodal

Pr2girl profile image
5 Replies

Hello

My husband has got T in one ear , we are on week 9.

It came in suddenly and hasn’t stopped…..currently using ENT provided hearing aid from slight loss they detected in one ear…..I’ve got 2 questions if anyone could please help :

1 - What setting should he have it on……white noise or the setting that amplifies the sound

2 - has anyone tried Lenires bimodal neuromodulation device, it’s something we’re looking into, even if it can help in the slightest

Thank you for your time

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Pr2girl profile image
Pr2girl
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5 Replies
Happyrosie profile image
Happyrosie

You haven’t had a reply yet, and whilst I’ve no personal experience (maybe other posters will pile in) can I refer you to the British Tinnitus Association website? Info there on volume control. If you put Lenir into their search box you’ll find stuff.

Pr2girl profile image
Pr2girl in reply toHappyrosie

Hi yes please

Graham-E profile image
Graham-E

Hello,I have a NHS provided combination Bluetooth Hearing Aide and it has amplification and then that plus the sound of the sea. I can flip between these two modes.

I’m sorry I have no experience of the other type you have or are thinking of having.

Best G

surreycccfan profile image
surreycccfan

Hi,

In regards to hearing aid settings, its really best to discuss the set up on the aid with your audiologists as they have access to your audiogram. The white noise (or sound generation) element of your aid is there to help with sound therapy (used to be called masking) to help you not just cope with your T but also help the brain adjust to your T. In the same vein although the amplification is there to help with hearing loss it can also help with habituation as brings external sounds 'forward' for the brain to focus on rather than our T. As Happyrosie says there is lots of info on the BTA website but I would encourage you to discuss with your audiologist/ENT to ensure it is set up correctly. Apolgies for te vague answer but each of our T is unique so not really a one size fits all for this question.

In regards to Lenire I have not used it personally but have read lots of reviews both on healthunlocked and other forums. From what I can see there are mixed results and no binary, this works or it doesn't answer. I know Lenire have just released a new scientific paper based on latest research and the BTA is crafting a response to this. In the meantime here is the BTA view on Lenire tinnitus.org.uk/tinnitus-an... . I think we all go through cure searching when we first get T, have you explored some of the evidence based approaches to help you manage your T?

Hope this helps in some small way. Stay safe

TinnitusUKPat profile image
TinnitusUKPatPartner

The other points made above are very helpful. From our perspective at the BTA, this is our view on tinnitus and hearing aids. As SurreyCCCfan indicates, tinnitus is a condition which affects people uniquely and there are few universal guarantees about what you 'should do' - it doesn't seem to work in quite that way. There is an approach which works for your husband and that may take him a while to find, thorough experience as much as anything.

tinnitus.org.uk/hearing-aid...

The Lenire device shows effectiveness for some users, less so for others. Trials to date have been limited in size and participation but the publication of a recent research paper in Nature magazine is seen as a step forward, given the kudos afforded to that journal.

nature.com/articles/s41598-...

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