Hi, I'm pretty new to this thread, but have been on healthunlocked.com for about a year.
I've had T constantly for over a decade. Earlier today I pulled the trigger on Lenire.
I submitted my audiology report and am within acceptable levels. Next I need to be assessed by audiologists. As far as I understand they assess your suitability. If they deem you unsuitable they advise you what type of hearing aid will help. This is what I am aiming for, the hearing aid advise or the knowledge that Lenire will help my situation. To be honest I cannot afford Lenire and if I borrow it would be for something that may or may not help me.
Has anyone any personal experience with Lenire?
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EireAtaxic
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Hi there. Please read the report on the BTA website - as Happyrosie suggests. What surprised me is that 16% of people in the clinical trials say their T got worse. That's 1 in 6! Being a natural pessimist I wouldn't fancy my chances but it's a personal decision. If you decide to go ahead - Very best of luck 🙂
Thank you 1966366 I'll take that as a compliment! Hope you have a good day too. Have you thought any more about TDT? Since you mentioned it I've looked high & low but not been able to find any reports. Even the BTA don't review it. It’s a puzzle .
I had an ENT appointment on the 5th of this month and asked the consultant for advice/opinions on this: she has no idea whatsoever about it!?! There's several tinnitus clinics littered around the UK offering the treatment, but I am currently waiting for a private consultant via the Musicians Union for tests and I hope to be able to get a better understanding of the situation. I really am despondent with ENT: five years later and I have just been offered CBT. I did this privately yonks ago! Just going around in circles. Do you have any further plans?
To be offered CBT after five years is frustrating - to say the least ! I hope you have more success with the Musicians Union. It's still early days for me. I'm off to ENT for the first time shortly. Not expecting anything - except good HA's somewhere down the line. Hopefully 🙂
As long as you fully understand that HA's amplify sound for those who have partial hearing loss due to a partially functioning Cochlear - working well enough to detect some sound, and despite some of them that have apps such as white noise, are not the best thing ever to deal with T. I hope you get a nice, shiny silver pair, I think that these are the latest ones available on the NHS. Good too! 👍
I do apologise! More matt grey, but from what you said about your ear, I think that they will do the job of improving your hearing splendidly! Fingers crossed x
If you do an internet search for people who have used Lenire and have had a reduction in their tinnitus you will struggle to find anyone. Their trial involved a very narrow group, you had to be under 30 and had T for no more than five years. The device is similar to that offered by the Tinnitus Clinic but cheaper. I hope it works for you, you may be lucky.
I haven't decided to go with Lenire. I am looking at going through their suitably assessment. I won't be delighted if they told me I was suitable. They told me if I was unsuitable for Lenire they would advise me what hearing aid would suit my condition.
i seen online that it works for some and not for others ( about 50/50) - do u have reactive tinnitus that goes up with noise - or are u ok with sound therapies and sounds in general - i wouldnt be able to do Lenire as I hv reactive tinnitus which goes up with sound therapies and noise
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