Lenire: Hi, I'm pretty new to this thread, but... - Tinnitus UK

Tinnitus UK

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Lenire

EireAtaxic profile image
17 Replies

Hi, I'm pretty new to this thread, but have been on healthunlocked.com for about a year.

I've had T constantly for over a decade. Earlier today I pulled the trigger on Lenire.

I submitted my audiology report and am within acceptable levels. Next I need to be assessed by audiologists. As far as I understand they assess your suitability. If they deem you unsuitable they advise you what type of hearing aid will help. This is what I am aiming for, the hearing aid advise or the knowledge that Lenire will help my situation. To be honest I cannot afford Lenire and if I borrow it would be for something that may or may not help me.

Has anyone any personal experience with Lenire?

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EireAtaxic profile image
EireAtaxic
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17 Replies
Happyrosie profile image
Happyrosie

I don’t, EireAtaxic, but the British tinnitus Association website reviews the product on its website, have a read.

doglover1973 profile image
doglover1973

Hi there. Please read the report on the BTA website - as Happyrosie suggests. What surprised me is that 16% of people in the clinical trials say their T got worse. That's 1 in 6! Being a natural pessimist I wouldn't fancy my chances but it's a personal decision. If you decide to go ahead - Very best of luck 🙂

1966366 profile image
1966366 in reply to doglover1973

Never had you down as being a "natural pessimist" dog lover! 😂 Have a good day and a lovely weekend ✌️

doglover1973 profile image
doglover1973 in reply to 1966366

Thank you 1966366 I'll take that as a compliment! Hope you have a good day too. Have you thought any more about TDT? Since you mentioned it I've looked high & low but not been able to find any reports. Even the BTA don't review it. It’s a puzzle .

1966366 profile image
1966366 in reply to doglover1973

I had an ENT appointment on the 5th of this month and asked the consultant for advice/opinions on this: she has no idea whatsoever about it!?! There's several tinnitus clinics littered around the UK offering the treatment, but I am currently waiting for a private consultant via the Musicians Union for tests and I hope to be able to get a better understanding of the situation. I really am despondent with ENT: five years later and I have just been offered CBT. I did this privately yonks ago! Just going around in circles. Do you have any further plans?

doglover1973 profile image
doglover1973 in reply to 1966366

To be offered CBT after five years is frustrating - to say the least ! I hope you have more success with the Musicians Union. It's still early days for me. I'm off to ENT for the first time shortly. Not expecting anything - except good HA's somewhere down the line. Hopefully 🙂

1966366 profile image
1966366 in reply to doglover1973

As long as you fully understand that HA's amplify sound for those who have partial hearing loss due to a partially functioning Cochlear - working well enough to detect some sound, and despite some of them that have apps such as white noise, are not the best thing ever to deal with T. I hope you get a nice, shiny silver pair, I think that these are the latest ones available on the NHS. Good too! 👍

doglover1973 profile image
doglover1973 in reply to 1966366

I have considerable hearing loss in one ear so I'm hoping HA's will improve my hearing more than anything. Shiny, silver ones sound nice 🙂

1966366 profile image
1966366 in reply to doglover1973

I do apologise! More matt grey, but from what you said about your ear, I think that they will do the job of improving your hearing splendidly! Fingers crossed x

Spurdog1 profile image
Spurdog1 in reply to doglover1973

Lol Maybe doglover1973 anticipated a 1-3 reaction, so 1 in 6 is brilliant.

doglover1973 profile image
doglover1973 in reply to Spurdog1

Haha . That tickled me Spurdog1 😀

Spurdog1 profile image
Spurdog1 in reply to doglover1973

As long as nothing else did. HAHAHA HA

Philip6 profile image
Philip6

If you do an internet search for people who have used Lenire and have had a reduction in their tinnitus you will struggle to find anyone. Their trial involved a very narrow group, you had to be under 30 and had T for no more than five years. The device is similar to that offered by the Tinnitus Clinic but cheaper. I hope it works for you, you may be lucky.

EireAtaxic profile image
EireAtaxic in reply to Philip6

I haven't decided to go with Lenire. I am looking at going through their suitably assessment. I won't be delighted if they told me I was suitable. They told me if I was unsuitable for Lenire they would advise me what hearing aid would suit my condition.

Philip6 profile image
Philip6 in reply to EireAtaxic

Good luck.

Suz_2 profile image
Suz_2

i seen online that it works for some and not for others ( about 50/50) - do u have reactive tinnitus that goes up with noise - or are u ok with sound therapies and sounds in general - i wouldnt be able to do Lenire as I hv reactive tinnitus which goes up with sound therapies and noise

EireAtaxic profile image
EireAtaxic in reply to Suz_2

Constant buzzing, a few different tones in one ear, one tone in the other.

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