SAS. Are you tough enough?

[ade-the-pade]

Folks, I haven't posted for a while. I am not cured of T so still living with this horrible condition. I look at the forum but it saddens me to hear of people in despair with T.

I enjoy watching the TV series "SAS, are you tough enough?". They put a dozen candidates through gruelling physical torture, exercise, cold water, crazy abseils etc. The final things that they face is distressing noise and lack of sleep. This breaks the toughest of them!!!

This can be a normal days for a lot of us.

This is just a reminder to all out there that we are a tough bunch. We carry on with our hidden disability and face challenges that would break others.

Keep up the good fight everyone.

[Hidden]

Hi like many new to Tinnitus I have had it for 7+ years and the early days and months were something one can't describe I wanted to not wake up from this horrible condition but you learn to adapt and live with it I'm glad to say my T doesn't bother me except when I get ear infections I wrote on here about and you learn the do' s and don't 's of. Keeping your T under control.

David

[Jimmuck]

Hi Ade. I was thinking about you just the other day! Someone was asking me if there was any treatment available for tinnitus and I was telling them about your experience with Neuromod and how everyone on here was praying it would be a success for you and the others who tried it. I am not on the forum very often these days but anytime I popped in, I never saw any posts from you so I began to wonder if you had overcome the initial setbacks and it had actually worked. Your post confirms my worst fear so it's back to square one and I feel heart vexed for you after all you went through. If Neuromod is still in business, perhaps they will continue with their research and development and eventually produce something which will really work to ease the suffering we all endure. Best wishes.

Jimmuck

[ade-the-pade in reply to Jimmuck]

Hello Jimmuck. Great to hear from you. Unfortunately the Neurmod did not work for me. It made my T much worse and added nausea to the mix. I now have to take more meds to live with the nausea. The whole thing knocked me for six and it took a big effort to get through it.

It was right to try it as it may have been the magic bullet. I am not hearing of anyone who reports success and it is attributable to the device. MY ENT doctor was very much against the device as there are too many variables. The brain can respond in so many negative ways.

I don't use the forum as much as it saddens me to see so many people struggling to live with T.

It remains a hidden and hateful condition with no cure on the horizon.

I hope that things are improving for you. Thank you for you post.

Wishing you peace and quiet.

Ade

[Jimmuck in reply to ade-the-pade]

Hi Ade. I am so sorry to hear your condition has worsened and now you have to contend with nausea into the bargain. At least you had the courage to try the treatment and if it had been a success, I would have been first in the queue to sign up for it as some days, I am just about at the end of my rope. To be honest, at times I think I have cracked it and it doesn't bother me much but there are days when it is just so invasive, I feel the old pangs of panic grabbing me, just as they did when it first appeared three years ago. An audiologist I used to see once said to me it was just a noise and it wouldn't kill me so get over it...I thought my wife was going to punch her lights out! Her flippant statement just about sums up the medical profession's attitude to tinnitus and we are more or less told to pull ourselves together and get on with it. Maybe if tinnitus made our ears grow to ten times their normal size they might take the condition a bit more seriously! I am fairly certain somebody somewhere will come up with a cure for this condition at some point and the chances are, it will be a medicine sourced from nature. I just hope they do it soon! Wishing you all the best for the future.

Jimmuck

[ade-the-pade in reply to Jimmuck]

Hi Jimmuck

Thanks for the kind words.

I fully understand your wife's feeling when someone gives you ridiculous advice. I have high pitched whistling and Hyperacusis 24/7.

One head Audiologist said "just ignore it", An ENT Doctor told me it was like a ticking clock and I will soon forget it. A GP told me not to worry as "I was not dieing!!!" I had hoped that there is a broader spectrum of patients than "Terminal ill and not terminally ill.

However, it was the Audiologist who really angered me. He did not give a SH$T about me and he showed irritation.

On the plus side, I have met some lovely people who really wanted to help me manage this condition.

Here's to a cure!!!

Ade