Brick wall

[jbradford42]

No body to turn to I’ve suffered from mild T for years about two years ago i woke one morning and it was screaming in my head. Over the last two years I’ve been coming to terms with it but as soon as you think you’re beating it bang it moves up a stage. About four times in the last two years I’ve had to deal with these jumps but now I’m at my end I cannot deal with my level of screaming anymore. I’ve tried everything I Know of of doctors hospitals acupuncture pills the lot. It’s got that bad I’ve had to turn to alcohol at night to help me sleep. Who wants to drink every night certainly not me but I have no choice. My T is serious it’s that bad I really don’t know how I’m actually dealing with it I’ve never took drugs in my life but if can help then if anyone knows something I don’t then please help as the going down the Tinnitus normal and official route does not work. I AM ABSOLUTELY DESPERATE

[HissingSid]

Have faith as brick walls can either be dismantled or demolished. They are not a permanent feature so hopefully one day your “Berlin Wall” can be toppled. Always believe in that possibility. Without hope you have nothing.

[jbradford42 in reply to HissingSid]

Thanks lad but one can only takes so much.

[TinnitusUKPat Partner]

Dear J, it's clear that you're having a lot of problems today. Do you think that it would help to talk to somebody on our Helpline - 0800 018 0527? Or the webchat service on our website, tinnitus.org.uk - look for the 'Let's Chat' icon?

Great advice from HS - try to view your tinnitus as something which you will be able to manage, not something which you have to beat or get the better of (that's more likely to increase your stress levels and make the tinnitus louder than anything).

Please take care and know that the community here are able to share their experience and get you through this difficult patch.

[jbradford42 in reply to TinnitusUKPat]

Hi thanks for reply the last spike was over a week and a half ago it’s not settled. I have got stress in my life at the moment but talking to someone is not easy. I’m a grown man and I know I would break down this might just tip me over. I really do appreciate your help.

[TinnitusUKPat Partner in reply to jbradford42]

It is difficult to talk about some of the problems we have - we're here if you need to talk to us, whether that's via the forum over the weekend or on the phones next week. Let's hope that things pick up for you soon. Take care.

[Jimmuck]

HI J. I know exactly how you feel as I was in a very similar position very recently and was literally at my wits end, due to a prolonged spike which was driving me insane. I had many spikes before over the last three years but the intensity of this one was off the scale. I tried all my coping strategies in vain and I honestly thought if this was going to be permanent, there was no hope of leading a normal life. That's the bad news. The good news....it finally began to settle towards the end of last week and although it's still at a high volume, I can cope with it. Knowing what your trigger points are is invaluable as you can avoid them and in my case it is tiredness and stress without a doubt. I know you dont like taking drugs but sometimes, you have to bite the bullet and see if they help. In my case, during a spike, I take 20mg of Amitriptyline. 10mg in the morning and 10mg at bedtime and that helps me get a good night's sleep. I avoid naps during the day as they are an instant trigger and I always get outside for exercise every day. Avoid alcohol as that is also a trigger and avoid any quiet places as the silence will make the brain focus on your head noise. Keep yourself busy with hobbies, listening to music, painting, walking, crosswords, anything that makes you concentrate is worth trying to get the focus off the tinnitus. I suffer badly with this condition but as my wife often says, the graveyards are full of people who would gladly swap places with you if they could! Yes it's tough to get through this but eventually you will. I hope things get better for you soon and you find some peace. Best wishes.

Jim

[getchegary in reply to Jimmuck]

Hi Jim

I am curious about your T spiking after a nap. I avoid naps we well but sometimes when I nod-off for just a few seconds, my T spikes ferociously. Have you any ideas as to why this happens?

Grant

[Jimmuck in reply to getchegary]

Hello Grant. I discovered some time ago that taking a nap instantly triggered a huge spike in my tinnitus so I did some research on line. I found a report which explained why this happens and in essence, it is similar to rebooting a computer, the computer being the brain. It checks the " system" to make sure everything is working correctly and when it discovers there is something missing in the audio section, it generates a noise to fill the void and keep everything balanced. My original post will still be on here so have a search for it if you want to read the full thing. Best wishes.

Jim

[jbradford42 in reply to getchegary]

It’s just keeps getting louder don’t know why every time I think I’m beating it bang up it go’s it’s been two years now since my first spike and I’ve had about four since bearing in mind I did have mild T for twenty years.

[jbradford42 in reply to Jimmuck]

Cheers buddy I have had a lot of stress in my life lately with my step son who moved in with us but hopefully he’s moving out soon I know it sounds bad but we just don’t get on. Thanks again J

[Suz_2]

hi I was wondering how you are doing these days with yr tinnitus - hope there has been improvement