Now this is a Major Problem : There is T like I... - Tinnitus UK

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Now this is a Major Problem

jbradford42 profile image
9 Replies

There is T like I used to have, and T that I have now, this is not a spike. Been like this for months now both ears absolutely screaming its unbearable I’ve been to the doctors and hospital numerous time for a head scan and to get hearing aids. So Ive seen audiologists for my hearing and a specialist for my scan and that was normal. This is really getting to me now I’ve handled it in the past but now I have to turn my aids up to full to hear over me screaming in my head. Does anyone anywhere know of anyone I could turn to. I’ve run out of ideas.

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jbradford42
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9 Replies
HissingSid profile image
HissingSid

I have "liked" your post to show that I have read it. Wish I had some answers for your current plight but I am afraid that I do not have any. All I can do is wish you all the best and hope that your T sounds calm down again to a bearable level at least. Lots of good luck!

jbradford42 profile image
jbradford42 in reply to HissingSid

Cheers mate

flyingfeline2 profile image
flyingfeline2

Sympathise. I've had tinnitus for 20 years but recently it has been getting noisier and more intrusive. No idea why. I am doing more Mindfulness than I used to. Sometimes that helps. Sometimes not. I've found that distraction is one of the best things and music, of course. Sleep deprivation seems to make it worse. Does diet make any difference for you?

jbradford42 profile image
jbradford42 in reply to flyingfeline2

Hi bud thanks for replying, but don’t think I could change what I eat to late for that and would not know even were to start.

flyingfeline2 profile image
flyingfeline2 in reply to jbradford42

Too much sugar late at night can cause problems, I’ve been told.

Sugars and carbs. I don’t always manage it but if you can steer clear late at night, so much the better! And yes, sometimes a little alcohol helps me, too. Ashwaghanda I've really found sends me off to sleep. Also a tea drink just discovered. Sainsbury's actually. Mindful which contains lemon balm, chamomile and ashwaghanda again!

Mille23 profile image
Mille23

What is the main reason to your tinnitus ? Do you have Hearing aids because of low Hearing or for masking your tinnitus.?

I have dysfunction of the eustacian tubes, have difficulties in popping my ears, fullness in the ears. And now my tinnitus is screaming too. I think of Allergi due to spring time. Just a thought. Wish you all the Best.

jbradford42 profile image
jbradford42 in reply to Mille23

Hi, yes I have hearing aids and they drowned it out a bit at first but over the last two years my T has jumped up three times. Now it’s really loud the worst it’s ever been and what scares me is how loud can it get. The sad thing is I’ve had to turn to alcohol to sleep. Cheers thanks for replying

Wringing1212 profile image
Wringing1212 in reply to jbradford42

Hi J,

Been a while since I've replied to your posts. My T has gotten worse lately and I myself have given in to looking for answers "again" rather than my escapism or habituation. I've met many people who suffer severe T and vertigo etc. one person has been a shining example of a successful long term T survivor. Even the audiologist looked to her as an example. With all the money to be made from ineffective treatments, they still acknowledge that a couple glasses of wine in the evening, seems to help people cope better than meds.

My audiologists recommended,off the record, that if I was psychologically relatively invulnerable, this may be the best theoropy. The problems is, like most drugs, you tend to want more and more, so limiting yourself is the key. I prefer red wine.

It's not a cure, and I still feel like I'm reeling towards a crash with a horrible destiny, but find between keeping busy with projects, listening to the same dam song in my head, and feeling I'm lucky because others have far worse problems, keeps me smiling most of the time.

It's OK to try to become comfortably numb, which is a state of mind.

My first audiologist from 2000 was right when he said "think of it as your friend who's always there. Listen to low music, and don't try every remedy offered because it will just make it worse."

I've found, having a project that commands 100% of your attention helpful. Yes, I do notice the crazy spikes, out of the blue, but overall, the time emmersed in a project is when I've found I've ignored my screeching, humming and woofing for the most stints.

(I don't know how loud it can get, but I think I'm going to find out, like it or not. At that point, I'll be asking you for advice.)

Cheers and my best to you,

Ringing1212

Hi jbradford

Sorry to hear you're having a hard time with the T

After having it for over 40 years and using benzos for the last 4 years

I finally am not troubled by it anymore at all

I did this simply by redefining the T as an illusion or delusion

So, NOT REAL, and certainly not worth worrying about

And I haven't had benzos for 5 months now!

See my post from 5 months ago, if interested

Good luck!

Alps

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