Tinnitus. Hell: Hi all i have suffered Severe... - Tinnitus UK

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Tinnitus. Hell

chris1961uk profile image
10 Replies

Hi all i have suffered Severe Tinnitus for 15 years. at 4.5Htz. it is constant and loud. Dr’s have no idea how to deal with it. i have been driven into Dark places many times. and its only my Strength that has stopped me ending my life. i call mine ( The Black Dog ). i wish there was help. but i have done the course. many GP’s. local hospital. and The john Radcliffe in oxford UK. which is one of the top hospitals in the uk. with no chance of help.

so if there is any Medical Institutes with clinical Trials Going on now or in the future please consider me.

Mr Christian Watson

swindon

Wiltshire

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chris1961uk
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10 Replies
TinnitusUKPat profile image
TinnitusUKPatPartner

Good morning Christian. I'm sorry to read that your tinnitus is causing you distress. If you want to keep an eye on current and future clinical trials, the National Institute for Health Research is one website to keep an eye on - bepartofresearch.nihr.ac.uk/

The current research which we're aware of is usually listed on this page on the BTA website - tinnitus.org.uk/Pages/Categ...

I hope this helps.

ShakeelaBTA profile image
ShakeelaBTA

Hello and welcome to the British Tinnitus Association forum.

Do feel free to ask any questions, I hope that you find this a helpful and supportive place to help you manage your tinnitus.

We have some resources that you might like to check out in addition to our home here:

tinnitus.org.uk (information and support details)

takeontinnitus.co.uk (free tinnitus management programme)

If you’d like to sign up to receive ‘Focus’, our new free monthly e-newsletter, you can sign up at tinnitus.org.uk/forms/conta...

Helpline 0800 018 0527 (Monday-Friday 9am-5pm) (outside the UK you can call +44 (0)114 250 9922)

Kind regards

Shakeela

chris1961uk profile image
chris1961uk in reply toShakeelaBTA

as you are aware. not all of us can be given a helping hand for relief. as to my post. i have been seen by many Dr’s and consultants. i'm sure they would have helped is they could. i have even had a lovely Consultant who got up set that she could not help me. even when she could clearly graph the frequency damaged 4.4Hz.

regards

chris w (uk)

Maryanne99 profile image
Maryanne99

Hi Chris I have t I have had it 14years i have been to Nottingham and done research with no luck also been to Harley Street private also Grey's Inn rd NHS i live in Dorset and have been using hearing aids and they help a lot i still have problems with the t and at times wish I wasn't here but get on to your audiologist and I am sure they will help you dig deep and fight on

chris1961uk profile image
chris1961uk

Thanks for the reply. when like us its driven us to (Wits end). its good to see on here that im not the only one. who has little hope.

jmallordturner51 profile image
jmallordturner51

Nobody knows the constant stress and depression that we live under. I have been suffering for 54 years and the past 9 months severely. I wish you peace brother.

chris1961uk profile image
chris1961uk in reply tojmallordturner51

you too. we’re strong people. just gets tired some days 😊

Jeepster76 profile image
Jeepster76

Hi Chris, it is really sad to hear how badly your tinnitus is affecting you but well done for not giving in to it. It is interesting that you have been able to pinpoint the frequency, I have not managed to do that. Have you considered going to a private clinic? I am currently undergoing treatment at the Tinnitus Clinic in London’s Harley Street, my Audiologist is Mark Williams and the treatment I am having is called TDT or Tinnitus Desensitisation Therapy, which involves wearing in-ear devices that mimic the frequency of the brain-generated sound (the Tinnitus), with the idea being to retrain the brain to tune out the frequency - the fact you know the frequency of yours may well help as it will mean that setting up the devices (if TDT is the appropriate treatment) is easier for them. I am about half way through the six month programme so cannot yet say how effective it will be, but if you are interested you can find out more on their website about this or one of their other treatments (thetinnitusclinic.co.uk). Sadly, the treatments are not covered by bupa (which I am lucky enough to have through my job), but bupa did cover the £300 cost of the initial ENT and Audiological consultation at the clinic. Whilst I appreciate that these treatments are by no means cheap, they do offer payment plans to help people who can’t pay up front, but the way I see it is that if I can afford to spend a couple of thousand on a car then why wouldn’t I use that money for my health instead and buy a car that cost me less than £500. Anyway, sorry for going off on a tangent, but I hope and pray this reply points you to somewhere that can help you start to beat the tinnitus.

God bless, John.

Maryanne99 profile image
Maryanne99

Hi Chris any joy with your audiologist did you get to see one regards hearing aids

chris1961uk profile image
chris1961uk

tried all options through medical. Dr’s. and Consultants. my days are very dark and some days i dont want to hear it any more. 25 years of no silent moments.

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