Any advice what to take ?

[WoodyT]

Hi , I’m Zoë . I’ve had T for the last 5 months . Nov 18th 2018 is when the living hell started . I’m not sure what was the exact cause , but it started in the right ear , then progressed into the head and left ear . I had been recently using ear buds to listen to music , whilst walking the dog, but not on a high volume . Had an ENT app in Feb . She said it was noise trauma that had caused the T and my career in the Ambulance service ( sirens ) hadn’t helped ! So ...... they gave me hearing aids . Tried them out for several days . That’s when everything changed ! I started falling over with loss of balance. Had horrendous vibration run through my head into my face . I felt so sick . This triggered awful anxiety! I’m now living every day with vibration , Hyperacusis and screaming tinnitus .

I was wondering if anyone else had experienced these symptoms and how did they treat them ?

Regards

Zoë

[ShakeelaBTA]

Hello and welcome to the British Tinnitus Association forum.

Do feel free to ask any questions, I hope that you find this a helpful and supportive place to help you manage your tinnitus.

We have some resources that you might like to check out in addition to our home here:

tinnitus.org.uk (information and support details)

takeontinnitus.co.uk (free tinnitus management programme)

Helpline 0800 018 0527 (Monday-Friday 9am-5pm) (outside the UK you can call [phone])

Kind regards

Shakeela

[Blackpink101]

Hi. My T started in a similar way. I had a second attack of cold in a month. Like the night before the symptoms appeared, i heard the T in my left ear. I was watching a drama with earphones at 60 percent volume. I panicked. Like a lot but thought that maybe it will disappear when i wake the in the morning. But it persisted. The doctors said that it maybe due to cold and will be over when i recovered but i never did. The T is still here and it keeps changing tones and i am annoyed and anxious as hell. I’m having my final exams and just cant sleep at night. I hope that it gets better for you. For all of us.

[WoodyT in reply to Blackpink101]

Panicking is the worst thing you can do ! Try and relax ... easier said than done . Breath through your anxiety . Distract yourself from the noise .

I’m preaching to you and all the time , I’m feeling the same ! Remember, we are all together, with this dreadful condition .

I’ve just contacted my health insurance policy , who has told me , tinnitus is covered on their policy . I’ve requested to see A Dr Surentheiron in London , which hopefully my GP will agree too , tomorrow . He is a specialist in ear and balance disorders , so hopefully , il get some guidance with this .

Please stay positive . Talk to your family and friends .

Let’s hope there’s a cure soon .

Take care

Zoë xxx

[Blackpink101 in reply to WoodyT]

Thank you. Joining this community has been the best thing that I’ve did since my T started. All of your love and support really gets me through the day 💖🙏🤧

[WoodyT in reply to Blackpink101]

I will be thinking of you with your final exams .... please stay positive ! We WILL be cured one day . There are lots of trials out there - The Neuromod trial in Ireland, sounds promising . Xxxx

[dsh2358]

Hi

I also have the dreaded symptom !

For me I take low dosages of Aprazolam

And also CBD Oil 1500 Mgs

This does not take away the T BUT it lowers the Volume where I can enjoy

Life it also contains my Anxiety which

Is a big part of Tinnitus. The dosage

Of Aprazolam is .05 who’s is Half a Mg

I hope you find this helpful!

DSH🇺🇸

[WoodyT in reply to dsh2358]

Thank you so much for your advice .

Unfortunately we are not prescribed Alprazolam in the UK 🇬🇧. I’ve already asked the GP , but he flatly refused and said , the drug was used for our American friends . It’s so frustrating, when a drug helps with this awful condition and you’re denied it !

I’m due to visit the GP ( again ) today and ask to see a neuro- Otologist as soon as poss .

Thank you once again

Regards

Zoë xxx

Let’s hope for quiet days ! Xx

[dsh2358 in reply to WoodyT]

Hi

Yes we have the same problem here

But I was on it before the shit hit the fan with all these illegal drugs. Yes it’s very

Frustrating that we have to suffer because of people who abuse it .

Have you tried a Pychiatrist for the Meds

Sometimes there willing to prescribe you the low dosage. Anyway good luck and I wish you well my friend !

DSH🇺🇸