Increases in Levo??: I have had my levo increased... - Thyroid UK

Thyroid UK

140,930 members166,052 posts

Increases in Levo??

loopyhels profile image
7 Replies

I have had my levo increased 3 times and I am now on 125mg per day. I feel great each time after a couple of weeks for around two weeks then Bang..slump back down!! Does this mean its still not enough yet or a sign that my thyroid is going down hill again? I have Hashi's and my Endo says that my thyroid is packing up and has mapped my struggling gland..going down hill fast...

Written by
loopyhels profile image
loopyhels
To view profiles and participate in discussions please or .
Read more about...
7 Replies
PinkNinja profile image
PinkNinja

It's quite common to feel better for a bit and then go downhill again. It means that you still aren't at your optimal dose. This is why it is important to increase every few weeks until you reach your optimal dose. It also may be because your thyroid is gradually getting worse. Your endo seems to know what he is about. You may find you need another couple of increases yet, if your thyroid is failing completely. Just keep going along with your endo's increases until you feel well. At least you are feeling well for a couple of weeks after each increase, which is a good sign that you will eventually be well on levo :)

loopyhels profile image
loopyhels in reply toPinkNinja

Thank you for that. I am seeing him again on the 14th so I take it he will increase the dose again..Just so annoying...He showed me the graph last time where my thyroid is failing and it is packing up quiet quickly..but then they think I have had Hashi's since about 18 so its not surprising it has taken hold now...

betty profile image
betty

Snap, I do the same.

Jackie profile image
Jackie

Yes, It takes ages for the dose to be right for you. Powerful drug so, it must be slowly, in fact a lot of docs say 6 weeks for increases so you have done well. Make sure your Free T3 has been tested as, you may need T3 on a script. Also if seeing an endo the other blood tests should have been done especially vit D ( hormonal) . They should have certainly done the Free T3 test. If not sure phone the consultants secretary or ask at your next appointment, GP or consultant. All the tests are automatically sent to GP and if any good should have been sent to you from the endo.

Jackie

loopyhels profile image
loopyhels in reply toJackie

I am having a blood test done next week for FT3/T4/TSH again so they can have a proper look at whats going on..Feel dreadful again today..Can hardly move,dizzy,double vision..Really feel like poo...My Cushings test came back negative too..I have just had my 8 weekly B12 shot so its not that..

Jackie profile image
Jackie

Hi If you need T3 on a script , the FT3 test will be low in range, I need mine at the top of range.It takes a month to really wrk, starting dose usually 20mcg, split and taken 12 hours apart if possible. Increases after more tests as needed.T3 does lower the TSH. It sounds as if you are just not right yet T4 normally top third of range. it usually takes about a year on treatment to reach the right levels and then slightest thing can make it go " off"

Best wisshes.

Jackie

loopyhels profile image
loopyhels in reply toJackie

Thank you sweetheart xx

Not what you're looking for?

You may also like...

Struggling with levo

Hi Firstly a quick run down of my history..diagnosed with graves in 2018 thyroid was serverly...
birkie profile image

Thyroid Hormones Worse after 9 Weeks on Levo

Happy Sunday folks.i Bloods - all input welcome... thank you ! (A) Summary: - 9 weeks on Levo (4...
Cola4444 profile image

Now off all meds in preparation for TRH Test.

Last time I tried this, I felt better for a couple of weeks, then went down hill pretty quick. This...
DeniseR profile image

Supplement to take

Having a thyroid prob over 20 years now on meds daily , just the last year my health is going down...
pbuk profile image

Increase in levo

Hi GP has agreed to increase of 75mcg levo from 50mcg with a retest in 6-8 weeks is this ok. Thank...
Odessa profile image

Moderation team

See all
helvella profile image
helvellaAdministrator
Jaydee1507 profile image
Jaydee1507Administrator
PurpleNails profile image
PurpleNailsAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.