Very little improvement in symptoms of weakness and fatigue since dose increase over the last 3 weeks. Still feel gravely ill. Took myself back to A&E today with additional symptoms of nausea, sore neck, tender lymph nodes in neck, headache, nervousness/ anxiety and crippling fatigue. I have absolutely no appetite and feel anxious / jittery all the time. It is like a bad trip. I am very emotionally labile too and keep feeling v intense emotions of sadness, fear or despair.
I’m only taking 62.5mcg levo. Latest bloods in previous post would indicate hypo but I now feel hyper too. How can this be?
I’ve been told to return to hospital for more hormone tests tomorrow as doctor said could be my sex hormones as well but he wasn’t specific.
Does anyone have any idea what could be going on? I’m terrified.
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Low vitamin levels often play into the many symptoms of being hypo. Inparticular your low ferritin will be causing a multitude of issues alone. I've attached a list so you can see how varied the symptoms can be.
Have you tried any dietary changes yet? Reducing carbohydrates can help some hypo people, eating smaller amounts more frequently. If you have positive antibodies then strictly eliminating gluten can help.
I appreciate my vits and minerals are low and this won’t be helping. However, given that I’ve lived with much lower ferretin levels than these for a long time (It’s been as low as 3 and I did experience palpitations and fatigue but this feels different and way more intense). I did not have any of these severe symptoms until I started treatment - I can’t believe that a vitamin deficiency is what is making me feel so acutely unwell. There must be something else going on.
I am supplementing with good B12, B complex folate and D.
I've just had a read through some of your previous posts and read about your pulse going up on standing and fainting episodes. These can be features of something called POTS - Postural Orthostatic Tachycardia Syndrome which does happen sometimes alongside hypothyroidism. It might be worth mentioning it to your GP and doing some back reading.
The doctor at the hospital checked my BP and pulse several times sitting, standing and lying down so am guessing he was thinking the same but I can ask specifically tomorrow about POTS.
There’s an interaction between thyroid hormones and iron/ferritin though. It helps your body convert T4 to T3. And from many years of observation here on the forum, I’ve noticed those with low ferritin levels often seem to struggle to raise levothyroxine levels without feeling hyper like symptoms.
Are you taking any iron supplements at the moment?
Hi , I'm sorry to hear that you're feeling so unwell at the moment. Have the drs checked your corisol levels or could you be going through the menopause at the moment . Through experience if your cortisol levels aren't quite right this will affect your mood and fatigue aswell .
I hope that the doctors are able to give you some answers, please don't despair it sounds like the doctors are checking your bloods and if it is your sex hormones which could suggest an imbalance this will make you feel pretty unwell also .
I wish you all the best and hope you're feeling better soon
Having read a post or reply, I've noticed that you might wish to correct your post or reply. For example, you might have followed up with a reply to correct a mistake.
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Hi , I'm sorry to hear that you're feeling so unwell at the moment. ..............
and then immediately followed it up with this:
That should read cortisol , sorry
I'm just pointing out that rather than adding another reply (and leaving your mistake in place), you could have edited your reply. It just makes it easier for anyone following your replies.
I didn't mean to make you feel bad about it. But we have many members who have no idea you can edit and that was why I replied as I did. And we do sometimes have issues which prevent editing. Try refreshing the page - that often clears problems.
Suggest you listen to a series of Dr. Weston Child's pod cast on You Tube to gain a greater understanding of thyroid health . Maybe you don't need thyroid replacement at all. Since 2013 ( I have begun to believe most doctors don't have a clue on how to diagnose and treat thyroid issues) I know an elevated TSH December 2012 cause my PCP to order Levo and keep elevating doses of Levo as I got more and more disabled. I was put me through 4 3/4 years of hell and disabled me and since August 2017 I have been working to restore the quality of my life and I believe I may finally be on the right track with T3 Conversion Booster . Not a full month, but I am beginning to feel changes that are real encouraging . Not endorsing any products, but this has been my experience and I am truly grateful !
Guggul extract (Commiphora mukul) (oleogum-resin) 500 mg – Guggul is a botanical compound gathered from the sap of a tree native to India that has been used in Ayurvedic medicine for centuries. Studies have shown that this compound has broad benefits on inflammation, liver health, obesity, and acne. In addition, it has also been documented to have pro-thyroid benefits as it increases iodine uptake into the thyroid gland and enhances thyroid peroxidase function.*
Rosemary Extract (rosemarinus officinalis)(leaf)(5% rosemarinic acid) 50 mg – By acting as a powerful antioxidant and anti-inflammatory agent, rosemary extract may help protect the thyroid gland from inflammation-induced damage. It’s also been shown to have beneficial effects on T4, T3, and TSH, and may promote TSH receptor function. On top of these pro-thyroid benefits, it’s also been shown to have anxiolytic and anti-depressant effects.*
Ashwagandha (withania somnifera)(root) 50 mg – Acting as an adaptogenic compound, Ashwagandha has been shown in studies to increase T4 and T3 levels, normalize the TSH in patients with subclinical hypothyroidism, and improve cortisol regulation. This isn’t even taking into account the beneficial effects that Ashwagandha has on weight loss and the building of muscle mass, both of which are problems thyroid patients struggle with. These combined benefits make Ashwagandha one of the best adaptogens for thyroid support.*
Zinc (as zinc citrate) 5 mg – Perhaps one of the most well-known thyroid-supporting nutrients, zinc helps directly support T4 to T3 Conversion as well as the binding of thyroid hormone to the nuclear receptor due to its incorporation in the zinc-finger domain. Zinc is included in this formula in an effective dose sufficient to support this function while also limiting your risk of developing GI distress which is common with other forms and doses of zinc.
Selenium (as l-selenomethionine) 100 mcg – Selenium is required for important enzymes, called selenoproteins, to function. These selenoproteins help convert T4 to T3 in various tissues and support the production of glutathione in the thyroid gland. In low selenium states, your thyroid gland is more prone to oxidative damage when it creates thyroid hormone which puts you at increased risk for autoimmune thyroid disease. Replacing selenium not only protects the thyroid gland but also supports the production of T3 directly. Selenomethionine is one of the most usable forms of selenium which is why it’s included in this formula.
There are many members who have found one or more of those ingredients intolerable or too much. For example, anyone who has been consuming brazil nuts is likely already to have sufficient selenium - and this could be too much. Excess selenium is categorically a bad idea.
We've had a number of members report they cannot tolerate Ashwagandha.
I also suspect you simply do not realise that Childs has posted literally hundreds of videos on YouTube. And I think most, if not all, end up recommending one or more of the products HE SELLS.
Of course, he might say something sensible at times. But it always comes across to me that increasing sales is his main aim.
Thank You ! I just shared my experience . December 2012 I was 62 years old slightly overweight, but healthy as a ox, but over worked by working 2 jobs for 10 years and then having our life upended when my husband's company went out of business we were scrambling to keep "all of our plates in the air" with one child in college and another one who dropped out cause of money. I was healthy as an ox just over worked and over stressed and when I had a elevated TSH the doctor insisted I had hypothyroid and over night my life was a nightmare ! Not wishing to have a fool for a doctor as they tell you in nursing school I trusted " my educated and licensed physician " as I had more and more hyperthyroid sx and physically crippled. When I complained I was told I just didn't know what it was like to feel normal as he continued to insist I needed more Levo and by Jan. 2014 my BP was slightly elevated and then there was the cocktail of 2 BP drugs . I was in "perfect treatment " according to the doctor, but I had more symptoms than I can list here. I was in real bad shape our situation changed and I had time to be at home and decided I wanted/had to reclaim my life from healthcare . I read and read and viewed pod casts , talked to others on another site I believe "Patients Info" any way I worked up the courage to start to wean myself slowly having informed the doctor . Within a year I was off all 3 medications. Dandelion Root I use for my BP that has returned to my almost former BP ( prior to Levo) and I have tried to balance supplements to support Thyroid Health, but it is really hard when you don't have the money for reliable lab tests . I keep a log on sx and vital signs and yes I have listened to a good many of Dr. Child's pod casts over the last 5 years and decided to give his product T3 Conversion Booster a 30 day trial . It is not magic, but I do think I am feeling an improvement and to be honest I am happily surprised and just shared my experience like many others do. I will cease to report on my progress or lack of process or any product name if that is what is required , but I have been through a Health Hell I never needed to go through and reading reports of others from this site and the former one I lost track of I am guessing I am not alone . I appreciate the support I have received on this site more of a organic bend and if I have violated rules I am sincerely sorry . It was not my intent. I am over joyed to perhaps seeing a light at the end of this health hell I was needlessly put through! Again thank you
But we have a continuous stream of new members and admins simply have to highlight potential pitfalls.
I most certainly do not believe that standard medical training, even specialist, manages to handle thyroid issues well.
That is to a significant extent what has enabled so many others to make their fortunes out of selling things (information, products) to those in desperate need.
I agree with you totally and will use better judgement in the future. My report is honest on me . My big message is people have to educate themselves , trust themselves, and share with one another ! Again thank you for taking the time to respond.
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