Help needed

[Janeh75]

Hi there I’ve had hypothyroidism for 3 years now , I’m now on 100mg Levothyroxine and in June I started getting palpitations so eventually had an ecg which showed extra beats , doctor says it’s nothing to worry about but past week I’ve had extremely severe ones which hurt my chest and it’s been giving me a spasm like feeling in my neck and head very tight feeling and feeling very dizzy, I’ve been to a and e and they said my heart is fine and won’t give me anything for them, I can’t carry on like this , does anyone know if it’s related to hypothyroidism? I also have muscle cramps and sore heads back yet my blood test has came back fine for my thyroid,

[bantam12]

If you are getting severe symptoms especially dizziness you need to be referred to cardiology for more testing. I was getting 1000s of ectopics every day which were causing pre syncope, I’m now on meds and have a pacemaker. Drs are all to quick to say these are not serious and don’t cause any problems but you need to be sure.

[SlowDragon Administrator]

How long have you been on 100mcg

Which brand of levothyroxine are you taking

Do you always get same brand

As per my reply to your previous post,

healthunlocked.com/thyroidu...

Next step you need to get FULL Thyroid and vitamin testing

Exactly what vitamin supplements are you taking

Please add most recent results

[Janeh75 in reply to SlowDragon]

I only take vitamin D tablets I shal get on to the doctors for a full blood check

[SlowDragon Administrator in reply to Janeh75]

How much vitamin D

If vitamin D tablets these need to be taken at least 4 hours away from levothyroxine

Test twice yearly when supplementing

Can test via NHS private testing service

vitamindtest.org.uk

Vitamin D mouth spray by Better You is very effective as it avoids poor gut function and doesn’t need 4 hour gap

There’s a version made that also contains vitamin K2 Mk7.

One spray = 1000iu

amazon.co.uk/BetterYou-Dlux...

It’s trial and error what dose we need, with thyroid issues we frequently need higher dose than average

Vitamin D may prevent Autoimmune disease

newscientist.com/article/23...

Web links about taking important cofactors - magnesium and Vit K2-MK7

Magnesium best taken in the afternoon or evening, but must be four hours away from levothyroxine

betterbones.com/bone-nutrit...

medicalnewstoday.com/articl...

livescience.com/61866-magne...

sciencedaily.com/releases/2...

Recipe ideas

bbc.co.uk/food/articles/mag...

Interesting article by Dr Malcolm Kendrick on magnesium

drmalcolmkendrick.org/categ...

Vitamin K2 mk7

betterbones.com/bone-nutrit...

healthline.com/nutrition/vi...

GP should advise on self supplementing if over 50nmol, but under 75nmol (but they rarely do)

mm.wirral.nhs.uk/document_u...

But improving to around 80nmol or 100nmol by self supplementing may be better

pubmed.ncbi.nlm.nih.gov/218...

vitamindsociety.org/pdf/Vit...

Once you Improve level, very likely you will need on going maintenance dose to keep it there.

[Janeh75 in reply to SlowDragon]

Update, I have an appointment for a transthoratic echo for these horrible palpitations, hopefully get to the bottom of what’s causing them to make me so dizzy and feel like blood is rushing to my head , I will look at getting these vitamins also , thank u for being so helpful, on holiday in the sun atm sorry for late reply

[SlowDragon Administrator in reply to Janeh75]

Could be

Low magnesium - are you now taking separate magnesium supplement afternoon or bedtime. At least 4 hours away from levothyroxine

Low iron - get full iron panel test is ferritin is low

Low thyroid hormone level - test TSH, Ft4 and Ft3

Next step get thyroid and vitamin testing

Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Testing options and includes money off codes for private testing

thyroiduk.org/testing/

Medichecks Thyroid plus BOTH TPO and TG antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes BOTH TPO and TG antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Medichecks and BH also offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee

Only do private testing early Monday or Tuesday morning.

Tips on how to do DIY finger prick test

support.medichecks.com/hc/e...

If ferritin is below 50 get a full iron panel test for anaemia

Test early morning, only water to drink between waking and test. Avoid high iron rich dinner night before test

If taking any iron supplements stop 5-7 days before testing

retest 3-4 times a year if self supplementing iron

It’s possible to have low ferritin but high iron

Medichecks iron panel test

medichecks.com/products/iro...

Low thyroid levels can cause ectopic heart beats

How much do you weigh in kilo

[arTistapple]

Yes it may be nothing. Non thyroidal illness (colds and other infections) can bring on this symptom as well as changes in dosage of thyroid hormones and necessary (needed but not yet applied) changes in dosage of thyroid hormones.

As a long-standing undiagnosed thyroid patient with heart issues, I have found that doctors have less than no idea of the connections between heart and thyroid. It’s pretty shocking their ignorance. Many patients with no heart issues come to the same conclusion.

So unfortunately if this keeps bothering you, you must keep bothering your doctor too. As ‘they’ did not seem to be able to help, I just went on dealing with it by myself for years. I feel such a fool. I believed them and honestly I knew better.

Doctors do really need to get a grip on the ‘real’ story of hypothyroidism.

[Bethea-Alice]

Just read your post and wonder if you have tried magnesium for palpitations? My daughter (who has a normal thyroid) suffered a while with these and, like you, was investigated and told her heart was fine. She then took a magnesium supplement (about 300 mg I believe) daily and they soon went away. Coffee can also be a factor for some people. Be careful about type of magnesium and I believe magnesium glycinate, taurate or malate are the ones to use and definitely not magnesium oxide. A quick Google or YouTube search will confirm.

[Janeh75 in reply to Bethea-Alice]

Thanks so much xx