How did you know when you were on enough Levoth... - Thyroid UK

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How did you know when you were on enough Levothyroxene?

Dahliasanddaisies profile image
12 Replies

Just pondering this as I've never really felt 'well' on any dose. Now going up to 112.5mg (week 3 urgh) and might need to go up again to 125mcg but I'm worried about overshooting, so going slowly. I'll get bloods done of course in 4 weeks time and see my thyroid GP.

I've seen some people say it took them many, many months on an optimal dose to feel better.

What are people's experiences of finding theor optimal dose? Did you suddenly have more energy or did it take a lot longer?

All my results are in my bio

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Dahliasanddaisies profile image
Dahliasanddaisies
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12 Replies
greygoose profile image
greygoose

Complicated question! But I know I'm on MY dose of T3 only because I feel generally OK, but worse if I increase and worse if I decrease. This is the dose I feel best on.

If you want to know how I got to that dose, it's all explained on my profile. :)

Dahliasanddaisies profile image
Dahliasanddaisies in reply togreygoose

Thanks GG

greygoose profile image
greygoose in reply toDahliasanddaisies

You're welcome. :)

TiggerMe profile image
TiggerMeAmbassador

When I was getting near to my optimal dose I'd have moments of feeling like myself again which would come and go, energy wise again I'd wake up some mornings thinking I was cured I'd rush around doing things only to over do it and slump back for days or longer.

I'd also say that optimal dose only really happens when you have all your other vits and mins sorted out too which helps with resilience, also balancing thyroid with your sex hormones...oh and adrenals 🙃

Dahliasanddaisies profile image
Dahliasanddaisies in reply toTiggerMe

Thanks Tigger, that really helpful. I've had some fleeting moments when on 100mcg. It was very exciting!so here's hoping for more once I'm settled on this dose. Think all my vits are good (I'll test again next month). Sex hormones, who knows! HRT didn't agree with me but that was when I was very undermedicated on levo, so I may try again next year. Adrenals are another issue and I'm planning to test my cortisol again once on a stable dose.

Tea7light profile image
Tea7light

My feeling better happened over months. I had been on NDT, and that was good… normal. But now I’m on T4/T3, things happened slowly. T4 and I didn’t get on I’d hives & a lot of brain fog and stress.

It was only after 3 mths on T4/T3 that I could remember enough to have confidence to speak out. It happened slowly during Covid! Knowing what was right came with getting a good nights solid sleep. Helped by walking.

Now I still get very tired as if my batteries are poorly charged. My yearly blood check up is next month, so we will see…… I feel I’d like my T3 tweaked but it maybe vits & minerals and those poor old adrenals…

Dahliasanddaisies profile image
Dahliasanddaisies in reply toTea7light

Oh why did you swap from NDT? Cost? It's been mentioned by my clinician as a possible next step but I think I'd rather try t4/t3 first as it's a big jump and commitment.

It's a slow old road :(

Thelostboys profile image
Thelostboys

Hi i am fairly new to this page but i have learned a lot from it i was on Levothyroxine and was told HRT can not be taken with it.Patches are ok because they don’t have to be processed through the liver. But oral tbs interfere with the thyroid tbs ⭐️

Dahliasanddaisies profile image
Dahliasanddaisies in reply toThelostboys

Yep, patches or gel only. Which is most commonly prescribed now anyway

Thelostboys profile image
Thelostboys in reply toDahliasanddaisies

Yes my doctor has put me on patches good luck 🤞

Tea7light profile image
Tea7light

At the time my supplier ran into legislation problems and couldn't supply the same Good stuff. Also I moved countries so I was advised to try T4 on the NHS, by my doc. But those elusive little T1 & T2 elements are missing, if only we could find their % that might help us all.

It is a slow road, but it’s good to be able to share our journeys with others. I wish I’d found this forum some 10 years back. Knowledge and understanding are wonderful.

A good nights solid sleep is key I believe for me.

Dahliasanddaisies profile image
Dahliasanddaisies in reply toTea7light

Thank you for sharing, yes it's so good having this forum! I'd be lost that's for sure. You're right sleep is crucial, that's why it's even more frustrating when I'm a bit up and down emotionally as it impacts on my sleep. The difference between 7 hours and 8 hours for me is huge for some reason!

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