Hey, just wondering when ppl started to feel better taking Carbimazole. Its only been 5 x days since I started taking but been feeling pretty rubbish now for about 8 weeks and just wanting a little relief.
I was diagnosed with pregnancy induced thyroiditis 3 weeks ago. I'm also taking 40mg (2 x 20mg) of propananol daily.
I split my dose of Carbimazole 10mg am and 10mg 12 hrs later I found this way I dnt get the ware off I take 20mg of propananol alongside this
Just still feeling lethargic, tired, horrid anxiety hot flushes dry mouth and my heart rate has been up and down dropping to 52 and going up to 120 seems to be all over the place
Was also told today my endocrinology apt is going to be 8 to 10weeks. 3 weeks ago when I was referred I was told 6 weeks so thoight I was close to getting an apt.
TIA
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Teaforthesoul
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You are right to separate out "start working" and feel better" - unfortunately.
Its initial effect is to stop more thyroid hormone being produced and released - but it has no impact on the thyroid hormone in your body - largely in your bloodstream. That simply reduces over time. But while it remains high, you will continue to feel bad.
However, as the level drops, you should feel the worst effects fade. I'd hope you are past the peak and on the way down.
Time from start of treatment to having thyroid hormone levels within range can't be predicted. And people are very individual. But a few weeks is sometimes quoted.
Reading through your earlier Posts and Replies it concerns me you may have been mis-diagnosed. As others have mentioned. The lack of anti-body testing to confirm Graves is missing.
As your B12 is seriously low then it could well follow other nutrients will be too. This could be why you feel so poorly.
I was treated by block and replace some years ago, I took 40 mcg carbimazole a day for three months (I took it all at once because I didn’t know any better. One doctor asked how I was taking it and I said ‘all at once’ and he said ‘that’s fine’ so I carried on 🤔) then levothyroxine was added in and I would say I didn’t feel great until I started levothyroxine which was the replace part, and my bloods reached a good level.
Even then once you feel / are better I think it takes a while for your body to get used to feeling ‘normal’ because it has been so ‘off’ for so long
Like the others have said you need to know what antibodies were tested and if none were you need that done and you also need your vitamins and m8knerals to be well up in their range.
If you can afford it do one of Medichecks home fingerprick blood tests. There is one that covers all of that. I started doing them because my hospital did the bare minimum of thyroids and nothing in the way of vitamins and minerals. It takes all the worry out because you know exactly what your results are and you don’t have to beg / plead with doctors to have things tested that they don’t want to spend money testing. I used to like gong along to my endo appointments knowing before I got there what they were likely to say - well in fact knowing more than they did because my blood tests tested so much.
Good luck, get as much rest as you can, that helps.
I've had Graves since 2016 and on 3rd episode. Currently on 40mg Carbim (and 100 Levo as on block & replace now as couldn't get stable otherwise) but in past was just on Carbim.
It does take time to work especially if severe for you to feel better. Carbimazole doesn't work quickly it reduces the thyroid hormone that your body produces over time but works more slowly so I was told it can take 6 - 8 weeks or more depending for you to feel much better. Don't get me wrong you might start to feel a bit better after a couple of weeks or so but to feel more back to kind of normal may take a bit longer - with me normally a coulpe of months or so. But everybody is different and depends on how high your thyroid hormones were as well (blood results) as these would need to be reduced more if higher.
But carbim is not a quick overnight fix like taking a paracetamol for a headache, it has a slow effect and the stores of thyroid hormone in your body need to be depleted first and which is why you are given beta blockers usually at first to control symptoms on your heart and on anxiety until the carbim has had enough time to control your thyroid hormone levels after which the beta blockers are usually stopped.
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