Help! GP confusion : under to over active? Plea... - Thyroid UK

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Help! GP confusion : under to over active? Please help

Moonlight5 profile image
16 Replies

My GP called me and said I'm now overactive and stopped being under active.I attach last 3 results :-

June 24, Feb 24 and Dec 23.

She said to reduce my Levothyroxine from 100mcg to 50mcg.

I can't be believe this is true. What is a sensible course of action.

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Moonlight5 profile image
Moonlight5
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16 Replies
sandi profile image
sandi

I can only see the Dec 23 results (but that may just be me). Whatever the current results are I don’t think a reduction of 50mcg would ever be sensible in one go.

Moonlight5 profile image
Moonlight5 in reply tosandi

Can you see them

June results
TiggerMe profile image
TiggerMeAmbassador in reply toMoonlight5

They are only looking at your TSH, when you look at your actual thyroid hormone levels... you are under replaced and could do with an increase, you are very definitely Hypo! Refuse the dose drop and ask for a second opinion, perhaps someone there actually understands thyroid levels

Free T4 (fT4) 13 pmol/L (9 - 23) 28.6%

Free T3 (fT3) 3.8 pmol/L (2.4 - 6) 38.9%

T4:T3 Ratio 3.421 

Lottyplum profile image
Lottyplum in reply toTiggerMe

Crap GP again!!!!!

Sparklingsunshine profile image
Sparklingsunshine

I can only see December blood results. If your GP is dosing just by TSH then you are going to have to argue your case but without upto date results we can only speculate. And we only suggest dose changes of upto 25mcg at a time. 50mcg is too much.

Moonlight5 profile image
Moonlight5 in reply toSparklingsunshine

Can you see the older results this is February

February results
Hay2016 profile image
Hay2016

You’re not losing the plot!! Suggest they hand your care over to someone more knowledgable as he clearly doesn’t understand thyroid. You may be overmedicated (not on Dec 23 results) but you aren’t hyperthyroid!!! Only ever change by 25mcg a day or alternate days 50mcg is way too much.

Moonlight5 profile image
Moonlight5

The endo declined the referral

pennyannie profile image
pennyannie

Hello Moonlight :

How ridiculous can things get ?

You are not over medicated - though your TSH is low suppressed and this is all the doctor has looked at and or mis - understands.

Once on any form of thyroid hormone replacement the TSH is the least important reading and we must monitored and dose on the T3 and T4 blood tests - which are all in range.

December 2023 - T4 - 13.90 Range 9 - 23 - 35% T3 - 4.30 Range 2.40 - 6.00 - 53%

February 2024 - T4 - 18.50 Range 12 - 22. - 65% T3 - 4.40 " 3.10 - 6.80 - 35%

June 2024 - T4 -13.00 Range 9 - 23 - 28% T3 - 3.80 " 2.40 - 6.00 - 39%

You do have very high antibody readings and with a thyroid auto immune disease - referred to as Hashimoto's and liable to swings in symptoms as your immune system systematically attacks, destroys and ultimately disables your thyroid - but swings swing back - and your thyroid liable to erratic own hormone production with you becoming increasing reliant on thyroid hormone replacement.

I should have looked back - but if I do now I'll loose the ' maths ' which I hope are correct and enable you too see better that you are not even optimally medicated on T4 - Levothyroxine -

as we generally feel best when the T4 is up in the top quadrant of its range at around 80% with the T3 tracking behind at around 60/70% through its range.

No thyroid hormone replacement works well until the core strength vitamins and minerals of ferritin, folate, B12 and vitamin D are up and maintained at optimal levels - do you have current readings of these as when hypothyroid internal bodily functions are slowed and we can have low stomach acid and struggle to extract key nutrients through food no matter how well and clean we eat.

With Hashimoto;s there can be stomach and gut issues - ( why I should have looked back ) and have you been checked out for food sensitives such as gluten, dairy, wheat, etc -

Many forum members follow the research and suggestions of Dr Izabella Wentz who writes as thyroidpharmacist.com

I don't doubt the NHS endo did not agree to see you as he can't do anymore than your doctor can - as you are not over medicated and your doctor should be able to adjust your medication at the surgery.

There will come a time when you may find T4 only medication doesn't seem to work as well as it once did - and that is when you need to see an endo with a view to adding in a little T3 -

but this will be after you have built up and maintained your T4 at a decent level for some months - and find you are not able to convert well the T4 into T3 at around a 1/4 ratio T3/T4.

Is there another doctor there who might have some knowledge of thyroid health issues ?

P.S. Sorry about the results not being all under each other and tabbed - they are on my reply but prints out like this - apologies ????

PPS - So I've just looked back and see a year ago SDragon gave you very detailed information regarding Hashimoto's and stomach/gut issues etc etc.

Just wondering if you might find things less stressful if you pay to see a specialist -

Thyroid UK - the charity who support this patient to patient forum have a list of recommended thyroid specialists NHS and Private - maybe get the list and see who's there - many still do video consults - so distance need not be the stumbling block - contact admin @ thyroiduk.org for the Patient Recommended list of Thyroid Specialists.

You can also ask forum members for recommendations and your replies will be by Private Message - then the Chat icon ( looks like a paper plane and lights up ) and found alongside the Profile-My Hub -Post and Alert icons - as there is another private screen for one to one conversations where forum members can talk openly about who to, and not to waste time and money - seeing.

Maybe start a new post just asking for recommendations ?

Moonlight5 profile image
Moonlight5

Thanks I'm going to go through your guidance and see what I can do

greygoose profile image
greygoose in reply toMoonlight5

Whatever you do, don't reduce the levo! :)

Shaza-1970 profile image
Shaza-1970

Just know ur not alone in mistakes being made. Only difference is mine would only drop my meds by 25mg at a time I am diabetic and under active thyroid. I hadn’t had bloods done in 11 months. Due to that many health issues I didn’t notice. He’s reduced me 25mg 6 weeks ago and 25mg this week. Has told me to get bloods done again in 4/6 weeks. I have been feeling lousy for over a year and trying to help feel better so really peeved this has been done. I can’t remember what level I was I believe it was 0:022 and 0:023. I tried googling over medicated so I can have a hope that this soreness and infections calm down. Everything that was wrong with me in last while was put down to being perimenopausal Any adobe.

mrskiki profile image
mrskiki

They wanted to drop my levothyroxine from 150mcg daily to 125 or 100 which I felt was too far. Following advice on here I managed to convince them to just retest in 3 months instead. For the next 3 months I dropped just one 50mcg tablet a week to see what happened and it brought my TSH and FT4 back into range, my FT3 stayed about the same, it dropped badly at week6 but was back up at 3 months.

This hasn’t solved my thyroid problems but it seems to have stopped them messing with my prescription and dropping my dose too far, as I haven’t heard from them since.

Shaza-1970 profile image
Shaza-1970 in reply tomrskiki

I think I’ll pay to get mine done fully. Or ask my insurance to do it once I get my injection. See can they send me to an endocrinologist. I’m fed up feeling like I do.

Moonlight5 profile image
Moonlight5

Thanks for your input, I was on 100, I'm so confused. I think I will have to book the specialist - it's so v expensive

Shaza-1970 profile image
Shaza-1970

I have now been reduced to 100mg levothyroxinen

So way over half of what was needed. I have BENENDEN insurance so wondering if they'd cover full blood tests. Not what our dr would check. Free t3 and free t4 Et

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