My GP called me and said I'm now overactive and stopped being under active.I attach last 3 results :-
June 24, Feb 24 and Dec 23.
She said to reduce my Levothyroxine from 100mcg to 50mcg.
I can't be believe this is true. What is a sensible course of action.
I can only see the Dec 23 results (but that may just be me). Whatever the current results are I don’t think a reduction of 50mcg would ever be sensible in one go.
Can you see them
They are only looking at your TSH, when you look at your actual thyroid hormone levels... you are under replaced and could do with an increase, you are very definitely Hypo! Refuse the dose drop and ask for a second opinion, perhaps someone there actually understands thyroid levels
Free T4 (fT4) 13 pmol/L (9 - 23) 28.6%
Free T3 (fT3) 3.8 pmol/L (2.4 - 6) 38.9%
T4:T3 Ratio 3.421
I can only see December blood results. If your GP is dosing just by TSH then you are going to have to argue your case but without upto date results we can only speculate. And we only suggest dose changes of upto 25mcg at a time. 50mcg is too much.
Can you see the older results this is February
You’re not losing the plot!! Suggest they hand your care over to someone more knowledgable as he clearly doesn’t understand thyroid. You may be overmedicated (not on Dec 23 results) but you aren’t hyperthyroid!!! Only ever change by 25mcg a day or alternate days 50mcg is way too much.
The endo declined the referral
Hello Moonlight :
How ridiculous can things get ?
You are not over medicated - though your TSH is low suppressed and this is all the doctor has looked at and or mis - understands.
Once on any form of thyroid hormone replacement the TSH is the least important reading and we must monitored and dose on the T3 and T4 blood tests - which are all in range.
December 2023 - T4 - 13.90 Range 9 - 23 - 35% T3 - 4.30 Range 2.40 - 6.00 - 53%
February 2024 - T4 - 18.50 Range 12 - 22. - 65% T3 - 4.40 " 3.10 - 6.80 - 35%
June 2024 - T4 -13.00 Range 9 - 23 - 28% T3 - 3.80 " 2.40 - 6.00 - 39%
You do have very high antibody readings and with a thyroid auto immune disease - referred to as Hashimoto's and liable to swings in symptoms as your immune system systematically attacks, destroys and ultimately disables your thyroid - but swings swing back - and your thyroid liable to erratic own hormone production with you becoming increasing reliant on thyroid hormone replacement.
I should have looked back - but if I do now I'll loose the ' maths ' which I hope are correct and enable you too see better that you are not even optimally medicated on T4 - Levothyroxine -
as we generally feel best when the T4 is up in the top quadrant of its range at around 80% with the T3 tracking behind at around 60/70% through its range.
No thyroid hormone replacement works well until the core strength vitamins and minerals of ferritin, folate, B12 and vitamin D are up and maintained at optimal levels - do you have current readings of these as when hypothyroid internal bodily functions are slowed and we can have low stomach acid and struggle to extract key nutrients through food no matter how well and clean we eat.
With Hashimoto;s there can be stomach and gut issues - ( why I should have looked back ) and have you been checked out for food sensitives such as gluten, dairy, wheat, etc -
Many forum members follow the research and suggestions of Dr Izabella Wentz who writes as thyroidpharmacist.com
I don't doubt the NHS endo did not agree to see you as he can't do anymore than your doctor can - as you are not over medicated and your doctor should be able to adjust your medication at the surgery.
There will come a time when you may find T4 only medication doesn't seem to work as well as it once did - and that is when you need to see an endo with a view to adding in a little T3 -
but this will be after you have built up and maintained your T4 at a decent level for some months - and find you are not able to convert well the T4 into T3 at around a 1/4 ratio T3/T4.
Is there another doctor there who might have some knowledge of thyroid health issues ?
P.S. Sorry about the results not being all under each other and tabbed - they are on my reply but prints out like this - apologies ????
PPS - So I've just looked back and see a year ago SDragon gave you very detailed information regarding Hashimoto's and stomach/gut issues etc etc.
Just wondering if you might things find things less stressful if you pay to see a specialist -
Thyroid UK - the charity who support this patient to patient forum have a list of recommended thyroid specialists NHS and Private - maybe get the list and see who's there - many still do video consults - so distance need not be the stumbling block - contact admin @ thyroiduk.org for the Patient Recommended list of Thyroid Specialists.
You can also ask forum members for recommendations and your replies will be by Private Message - the Chat icon ( looks like a paper plane lights up ) alongside the Profile-My Hub -Post and Alert icons - and there is another private screen for one to one conversations.
Thanks I'm going to go through your guidance and see what I can do
Whatever you do, don't reduce the levo! 
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