Feeling so so so so low, getting absolutely nowhere really really slowly.
Was hoping people who've made some serious steps forward in their journey might be able to share how they did it and what dose they're on and how they take it, just to give us all some hope.
Thank you people 🤗
Stick with all the great information available here, obviously there is no single route that suits all... I joined 18 months ago knowing nothing and feeling like I had one foot in the grave and I have just spend the last 6 weeks feeling really good... If you click on Tigger and Eeyore I've pretty well logged my journey with all the ups and downs 🤗
I'm definitely still at the Eeyore stage, but it's totally awesome that you've been 'Tigger-fied' 👍•🐯•🙌 •👍•🐯•🙌 •👍•🐯•🙌 •👍•🐯•🙌 •👍•🐯•🙌 •👍•🐯•🙌 •👍•🐯•🙌 And you know what, hearing about your success has cheered me up no end, so thank you!
I'm so pleased🤗 honestly don't give up, just keep optimising everything and one day you wake up and recognise your old self is still within you and ready to make a comeback 😅
It's not a quick fix but chances are, like most of us you have taken years to get to rock bottom, so be kind to yourself and let the healing begin🙂
love this x
I am pretty good and have been for a year into a 1 1/2 years of knowing I was AI underactive thyroid. I am also gluten intolerant.
Find this forum very helpful.
125 levo and 12 to 18 mg of T3 I 2 doses AM and PM . T3 is DIY based on low T3 bloods and info from here.
I use vit D spray with Vit K and Igneus B complex
It is hard sometimes as you do not know if you feel off for being just ill, glutened or thyroid replacements not being quite right.
It is a slow journey which is frustrating in itself.
Ooooo! Nicely played sleepman!
👍•😴•🙌•👍•😴•🙌•👍•😴•🙌•👍•😴•🙌• 👍•😴•🙌•👍•😴•🙌•👍•😴•🙌
Is that a misnomer now? Should you be ‘the member formerly known as sleepman’ ? 😃But that is Interesting 🧐 as that’s a not too dissimilar dose to TiggerMe . Thank you 🙏 for taking the time to reply.
How do you do the split 50/50 and what times? And do you just increase the 2nd dose on the days you decide to take 18/ or is that increase of t3 dictated by blood test results? Oh, and sorry to overload u with questions, but also, what do your blood test levels tend to look like?
Thank you so much again and your success also also brings me joy. You done good (member formerly known as) sleepman! 😎
9I am a lot better but not without issues." SometimesSleepman"?
My T3 was 20 odd percent on 150 mg T4. T4 upper range. I added 6 mg of T3 every few days. TSH shot down but T4 still high. Not much change on T3.
After a couple of months went to 6 mg each morning T4 was 100%.
Had really good summer and autumn on this.
By Nov not quite right. T4 was 140%. No T3 result as NHS not expecting it 11AM.
I wrongly stopped T3 and felt worse. Dropped to 125 mg T4 as well as T4 too high.
Jan did own tests again. T4 110%. T3 about 15%. I had restarted T3 some weeks before. I upped to 12 mg in the morning with levo. Still 125 mg. That dropped my blood sugar in a morning, so I split it for a few weeks with some in PM.
I am now at 12 mg in the morning and 6 mg every day or so in the evening or afternoon.
T3 is at 40%. T4 80% and TSH 0.04 a week or so ago.
Did you ever try gluten free? I stopped a year before thyroid diagnosed. Celiac blood test clear but I felt better without it.
I learned on here that a lot of gf shop bread and cakes are full of not great stuff so I just avoid all that. Most is horrid anyway.
I am not a patient person but you have to be with this condition.
Have you read the pernicious anemia threads where they have to inject b12 daily for a while and then improve?
healthunlocked.com/thyroidu...
Thank you so much for your detailed reply and the link 'sometimes sleepman'. I hope it becomes 'never sleepman' really soon. 🤗
I am going to post about modafinil to get wider input. I was using it a little before I was diagnosed with gluten and thyroid problems. It has helped me get to where I am now.
I think one of the worst things about this whole condition is that NHS seems to be completely missing it. Thank goodness for this forum.
Read as much as you can here. There are many who are much MUCH better than they were, due to this lovely forum. Remember it is only those of us who are not well on the standard dose who come here, and we all help each other. I was where you are now, had just been told "take this pill, dont bother us again" and could not cope with daily life. I had no idea T3 existed but badgered my GP after reading here, and changed from a slug to a bit of a broken butterfly. Then NDT changed that for the better again.
The more knowledge you have, the more you can control your own health, the better. You will get there, but it takes time and knowledge. Keep going, there is an army of quite angry people behind you at the way we are treated. We have to take responsibility for our own health, which I know is really difficult at first. It gets easier, you will feel better. Hug.
Thank you so much serenfach - what a beautiful name 'little star'. I am so glad you are so much better. May you continue to twinkle brighter and brighter! ⭐✨⭐✨⭐✨⭐✨⭐✨⭐ ✨⭐✨⭐✨⭐✨⭐✨⭐✨⭐ ✨⭐✨⭐✨⭐✨⭐✨⭐✨⭐
And thank you for the hug, I really needed that today, woken up to a face that's been becoming increasingly balloon-like over the last few days. 🤗
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