After some advice : My sister is struggling at... - Thyroid UK

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After some advice

VLJones profile image
7 Replies

My sister is struggling at the moment if I could get some advice from the brilliant Admin.

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VLJones profile image
VLJones
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7 Replies
Jaydee1507 profile image
Jaydee1507Administrator

Can you tell us if your sister is taking Levo and diagnosed already or not?

She's hypo with. TSH above range.

VLJones profile image
VLJones in reply to Jaydee1507

Not diagnosed but waiting for appointment with endocrinology . Currently on LEVOTHYROXINE 125mg thank you jaydee1507

Jaydee1507 profile image
Jaydee1507Administrator in reply to VLJones

Thats a high TSH for someone on Levo. Clearly she needs an urgent dose increase of 25mcgs.

Is she taking her levo on an empty stomach 1 hour before food or caffeine containing drinks?

To really know where her thyroid levels are she needs to get a full thyroid panel - TSH, FT4 & FT3 and would need to buy a private test.

If she has been hypo long then she also needs to test ferritin, folate, B12 & D3. The more hypo we are the worse the vitamin levels get due to low stomach acid.

Private tests are available, see link for companies offering private blood tests & discount codes, some offer a blood draw service at an extra cost.thyroiduk.org/testing/priva...

There is also a new company offering walk in (includes free blood draw) & mail order blood tests in London, Kent, Sussex & Surrey areas. Check to see if there is a blood test company near you. onedaytests.com/products/ul...

Only do private tests on a Monday or Tuesday to avoid postal delays.

VLJones profile image
VLJones in reply to Jaydee1507

Thank you yes she is currently waiting for an appointment with an endocrinology depth. I thought the bloods needed attention . Thank you for your knowledge in this field.

SlowDragon profile image
SlowDragonAdministrator

Is your sister diagnosed as hypothyroid and on levothyroxine or trying to get diagnosed

Was test done early morning?

Is this first abnormal thyroid test result?

Has she had thyroid antibodies tested

Or vitamin D, folate, ferritin and B12 tested

TSH over 5

If on Levo she needs 25mcg dose increase in Levo

If not Levo and first abnormal test …..she needs 2nd test in 6 weeks

Meanwhile get vitamins and thyroid antibodies tested

Starting levothyroxine - flow chart

gps.northcentrallondonccg.n...

VLJones profile image
VLJones in reply to SlowDragon

She has had thyroid problems for 30 years was told her thyroid had stopped working properly so I suggested that she had an appointment with an endocrinologist which she is now waiting for an appointment from the local hospital. She is on LEVOTHYROXINE I think her dose is 125mg but will check tomorrow thank you Slow dragon

VLJones profile image
VLJones in reply to VLJones

Hi slow dragon thank you for your advise. My sister today had a telephone call from her gp who told her that her blood test on her thyroid were perfect when we know there not she is currently taking 150mg LEVOTHYROXINE. She has an appointment tomorrow with this gphave you any advice on how she should proceed? with this gp.

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