Hiya
Eventually Plymouth Live agreed to post my story. Sadly they wouldnt put in about the T3 debacle unless I could find an NHS Professional who would prepared to be interviewed by them on this subject. They have said they will do an update if I can find one, so if there is anybody here who would be prepared to do this please let me know.
Many thanks
Janexxx😊❤️
well done
Great pity it’s virtually impossible to get any medic to put their head above the parapet and admit that levothyroxine alone doesn’t work for many people
Still you’re likely to get a lot more members to the group with this publicity
Thwnk you SlowDragon. Yes I had 12 in one day! Would be lovely to be able to get GPs to support thyroid patients instead of dismissing them and blaming it on anxiety, depression or mental problems. 😊❤️
It's shocking, just shocking how many lives have been blighted by a disease which is meant to be so easy to treat! It's truly hard to believe that we haven't progressed where some things are concerned and the amount of needless suffering is going on an on. Well done you for trying to get it publicised and I sincerely hope all will go well for you and your family in the future.
Shocking, but not surprising! This sort of thing has been going on for decades. I was born in the 1960s when the medical profession were virtually in denial about asthma and went through five years of being an undiagnosed asthmatic as a young child. This was despite our GP having treated me for really quite severe eczema in my first year of life and acknowledging that I had allergic rhinitis. There was also a history of asthma elsewhere in the family. But all that counted for nothing! My mother was told I had a tendency to bronchitis!
Well done to you Jane!
Brilliant work Jane -one step at a time -maybe could approach from list of factors that block conversion for some people taking Levo from Thyroid UK and how a percentage of people struggle to convert even when those factors /supplements are all optimal
I applaud you Jane. However don’t they realise this is the crux of the matter? This is the story! I totally understand the idea of ‘both sides’ of the story but ……. Everybody too worried about who is going to sue who! What about Dr. Peter Taylor? From what I have seen of him, he seems quite adept at skipping about the issues without attracting too much flack. Inform him that this could mean a big support for his quest for funding re: his petition. Open it up to a much wider audience, potentially.
Thank you. I have just sent a letter to Pete Taylor so hope he will respond, we shall see.
Janexxx😊❤️
Excellent. Fingers crossed.
gosh thank you for that ☺️ I told my GP that I felt “gaslighted” when two other Drs in my GP practise didn’t believe me 😔🙈🙈 I’m from Exeter 🙈
Hi Doris11
What was his response? Im Exeter based to and get no support from my GP nor endo for that matter. Im on T3 only they just dont want to know!
if you are on FB please feel free to join my Group:
facebook.com/groups/1035323...
Janexxx😊❤️
Hi Jane how do I private message you on here?
Just go to my profile Jane Chapple where you can send a private message.😊❤️
Janexxx
Good article, well done.
I read this comment :
According to the British Thyroid Foundation, they are often described as 'invisible illnesses' as psychological symptoms can often go unnoticed.
and thought it was absolutely typical that the BTF would mention "psychological symptoms" rather than the physical symptoms. There are far more physical symptoms of thyroid disease than there are psychological symptoms, but the medical profession takes every opportunity to minimise thyroid (and other) conditions and to pretend that if every woman was on an anti-depressant the world would be a better place.
Yes Humanbean, thats typical of BTF. Sadly they dont really support thyroid patients and Julia Priestly BTF CEO helped update the T3 Guidance with Pearce and others.😩Sadly many thyroid patients are diagnosed with FND (Functional Neurological Disorder) and given antidepressants when what they really need is some T3 medication and most would not need ADs!
Janexxx😊
Tell me about it! Been there (with a different medical condition to thyroid). “It’s probably down to stress - or anxiety”. I wonder whether the medics ever consider the fact that they might actually cause stress! There’s nothing more likely to cause it than being told there’s nothing really wrong with you when you know full well there is!
Well said Jane, a brilliant article that hits the spot, hopefully articles like yours and the growing chorus of voices can reverse the supertanker that is the UK medical fraternity in regards to the thyroid.
At long last I've decided to go private and will hopefully get some T3 to trial with my levo.
I've just come across Professor Antonio Bianco from the USA - he's on a number of Youtube videos, he talks a lot of sense and has recently written a book which I've just ordered.
Hi Devonlad
Thank you, yes very poor treatment here in Devon and most places in the UK sadly.
Antonio Bianco is great but he still feels in most cases TSH should not be suppressed and he certainly wouldnt like my results on T3 only.
Good luck with your private referral, who have you decided to see?
Please feel free to join my group if you are on FB.
facebook.com/groups/1035323...
Janexxx😊❤️
Well done Jane! But it shouldn't be down to you to provide a journalist with someone to speak to - surely that's their job?
Absolutely, it was bad enough trying to get them to send me the article to read. Apparently its not normally their practice to do this. Just as well they did as they got the name of the Group wrong!
Hi,
What I think is particularly terrible, is that things aren't improving at all. Over thirty years ago, I started having problems - sleeping over twenty hours a day, gaining three and a half stone over three months and really, really heavy and long lasting monthlies - I lost count of the number of doctors that told me, " it sounds like typical thyroid to me, lets do a test." When the test came back, " Normal", I was diagnosed with premature menopause. My doctor did not agree with the blood test and steadfastly refused my request for a menopaus test. I had no famaily history of premature menopause. I was just forty. In fact, all my femail antecedants had late menopauses. I was passed from my gp surgery to a menopause clinic! I had months scrolling through different forms of HRT. Each making me more ill than the last - about a dozen in total. I finally refused to try any more. Then I was turned away from the menopause clinic. Back to the surgery. I was seeing the same femail gp any way. This time I was diagnosed as severely depressed and offered anti depressants. I refused to take them. I was given a couple of months to change my mind and told I would be removed from the gp practice if I still refused. I haad repeatedly asked to be referred to a consultant. It had been repeatedly refused. That was the best thing that could have happened. By this time, I had been really unwell for almost three years. How had I left it so long?? I went to a different surgery a bit further a way. I saw a really helpful male doctor. First thing he said, "It sounds like thyroid." Then he ordered a menopaus test, just to elliminate that. It clearly showed I was not in the menopause!! HRT had been flooding my body with chemicals it did not need. No wonder it had made me so ill!! I then got a referral to a gynenecologist, who elliminated everything and diagnosed me as hypo.
I thought for years, that my experience was just a one off, that I was unlucky. There was no internet, therefor no communication with other sufferers. It was years before I found out, that I wasn't a one off. There are hundreds of people treated like this. In over thirty years, I don't think there has been any real progress for thyroid sufferers. We need all the publicity we can get. So thank you for publicizing this.
Im so sorry for what you went through, its unforgivable the way (mostly)women are so badly trested wth this (and other diseases) and its appalling that things really have not changed for the better in the last 30 years. If anything its getring worse. I admin for another UK Tgyroid group called Throid Heslth Support UK and the stories I read on there are shocking. It has almost 3,600 members since last June.😊❤️
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