I posted on here earlier in the week and felt an instant feeling of relief to have found you all. Knowing that I am not alone going through this. Reading other people's stories and getting comfort from them as well as sharing the anger and frustration this disease brings to our lives. I have hit a bit of a low today thinking back on the past 12-18 months. I was sure that I was perimenopausal and filled my head with all the knowledge I needed to battle the NHS to get the medication I needed. In my head I would be prescribed these and the goal was coming out the other side and getting the old me back. Being diagnosed with Hashimotos is a totally different situation. There is no short journey and get back to being me this is forever.....
Yes I can empower myself with a whole new set of knowledge and fight a whole new battle but I am already tired and I am already worn out so the fight has disappeared for a bit.
I do know it will come back once I have processed what is happening to my body and what I can do to help it and look after it. Of which I know this page is going to help me do all of this.
One day at a time. 🩷
Written by
Crazylegs16
To view profiles and participate in discussions please or .
I found this place in my darkest hour too at the time of diagnosis (all more or less in my profile) and I can share you in the right place.
Like you, I think many of us went down some kind of rabbit hole with our symptoms. You are not alone.
Ask questions, share frustrations… it’s a lot to process which is even more harder when your body and mind is simply not up to much processing. Take your time to learn via the forum and doing your own research. Over time, you’ll be the boss of your medical care. It may not feel like it now, but peer support like this and the wealth of knowledge the admins and others have is blessing and empowering.
We are all here for you because we’ve been where you are.
Hang in there. Now you know what’s the matter, you will want to take charge of it. That’s why you are here and I think you can pay yourself on the back for this act of pre advocacy.
For now, be kind to yourself. Indulge in comforts whatever they may be, within limits of course. Sometimes the best thing you can do is cuddle up in a blanket and binge watch whatever is easy on your brain to follow.
HealthStarDust I had a much better day yesterday. Was kinder to myself and listened to my body and stopped for a bit to recharge x again thank you for your kind words x
One day at a time. I spent 2 years housebound and all but in bed. I'm writing this from my son's house where I'm on holiday! So there is light at the end of the tunnel Learn as much as you can. But also learn to be kind to yourself. Sometimes we just have to sit back for a little while before putting our big girls pants on and getting on with things.
Welcome to the forum best place I found in all the years I've struggled, now have a better understanding & taking steps to assist my body instead of just accepting things as there are. Biggest difference is the correct blood test & optimal vitamins, your journey will enlighten you with help from here good luck.
Welcome to the forum and yes its been a God send for many of us, the support, advice and camaraderie is second to none. As someone who has battled and continues to battle several chronic conditions, as well as hypo, I guess I wanted to interject something I've had to painfully learn here.
The hankering to be the old you can be overwhelming and it can lead you to go down rabbit holes, and obsess over symptoms, Dr Google and feel really sad and angry at the unfairness of it all. I know I felt that with several other conditions to cope with why was I getting another, hadn't I suffered enough?
I've come to the realisation that the old me is probably gone for good, which sounds very depressing but I think I've gained in other ways, adversity can teach us patience, inner fortitude, determination and empathy for others. It changes your priorities and can teach you to be kinder to yourself, which many people aren't.
Taking time out each day and practicing self care isnt selfish, but necessary for wellbeing, and it means we are more able to meet the demands of other people and the world. Women, I think are always taught to put others first and end up at the very back of the queue when it comes to their own needs.
I'm not saying this will be your experience and I wish you all the best on your thyroid journey and with the support and advice on this forum you have every chance of getting back to how you were,maybe even better, if your thyroid has been failing for some time.
I read your post about 15 minutes after I wrote this in my symptom journal:
“Feeling consistently like garbage, although I’m not completely dysfunctionally exhausted like before, I am emotionally stressed. Maybe it’s the stress of just how long it’s been since having lost my old self.”
It was very coincidental timing! I didn’t want to reply immediately because it felt too depressing -pondering this loss of old self- so waited until I woke up to a new day and other replies came in with some hope and encouragement.
Crazylegs16 , I also recently bookmarked this post (there must be many like it in the forum, but it helped me feel better to read it recently, so sharing in hopes it helps you in this moment too.)
nancypapa Not sure my friends and family really understand but saw an open letter that explains it that I need to be brave and share with them so they start to know what I am dealing with x My husband goes through waves of understanding and then seems frustrated but I think that ismore that there is nothing he can do to sort it.
Hello crazylegs 16 what a wonderful name ,I just wanted to say you can do this ,that’s what I tell myself,you will get your mojo back , good luck ,xxx sending big hugs
@kowbie Thank you, it is a nick name I gained back in the day when I had energy and loved to go out dancing plus I am nearly 6foot so fitted. We will get our mojo back indeed and I might actually have the energy to go dancing. Thank you for commenting x
I posted on here earlier in the week and felt an instant feeling of relief to have found you all.
I know just how you are feeling. I first used the internet for support with a health problem nearly 15 years ago. I first looked for help with thyroid a year or two after that. Just knowing that there is a group of people who understand how I feel and don't dismiss my symptoms as "all in my head" was a huge relief.
Same here ! found this forum and yes a godsend 🥰 it’s given me the confidence to stand up for myself when talking to GPs and also steered me to to PA forum! Which has also been fab too Re B12 information ❤️
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Confused and angry .
So Frustrated
Sad ... so disappointed
