Women in England urged to help shape reproductive health policy - National Survey

[HealthStarDust]

We know women with thyroid diseases and their fertility need much more attention than they currently get. So, I wanted to add the above survey link via the Guardian article link if you want to know more for any woman who want to share their views.

theguardian.com/society/202...

[helvella Administrator Thyroid UK]

I agree that those of us with thyroid issues need to join in with such surveys. I sometimes get the feeling that some with thyroid issues actually exclude themselves (quite understandably) when taking part is likely a better choice in terms of being seen.

I'm adding the selection criteria - as it is England-only.

Why have I been asked to take part?

You have been invited because you are a woman or were described as female at birth, are aged 16-55, and reside in England.

[HealthStarDust in reply to helvella]

Yes. Even in some of latest miscarriage guidelines developments suggestions (initiated by Tommy’s) on the ‘Graded Model of Care’ seeks to test thyroid after 2 miscarriages! tommys.org/about-us/news-vi...

In my experience, all women need to be screen preconception, but even then the interpretation of tests remains a major obstacle.

Edit: I should add, I do not know which thyroid tests are proposed by the Graded Model of Care.

[helvella Administrator Thyroid UK in reply to HealthStarDust]

Many here argue for thyroid panels (however defined!) for all at 18 or so. That would fit with future preconception testing by providing a baseline for the individual. This helping with interpretation in future. As well as acting as a screening test.

[humanbean]

“That’s why we’re asking women and girls to share their experience, whether it’s about periods, menopause or endometriosis. We need your voice to shape a new system of healthcare that gives women what they need.”

The survey is open to all women in England aged between 16 and 55 and will run for six weeks from Thursday. It is being run by the London School of Hygiene & Tropical Medicine (LSHTM).

My experiences of "periods, menopause or endometriosis" are apparently of no interest because I'm older than 55, despite me having experienced all three. Bah!

[HealthStarDust in reply to humanbean]

Do it anyway? Why should any historic data of you be missed out, when it still so relevant to the experiences of many. And, you won’t be the only woman to be doing so either I expect.

[HealthStarDust in reply to HealthStarDust]

P.S. humanbean I think you are fab.

[humanbean in reply to HealthStarDust]

Thank you! 😁

[Hidden in reply to HealthStarDust]

I think that too!

[humanbean in reply to Hidden]

Thank you too! 😁

[nightingale-56 in reply to humanbean]

Having been through it all humanbean , our experience should be quite valuable!

[humanbean in reply to nightingale-56]

I agree!

[Delgor in reply to humanbean]

I'm also too old and don't feel that age should come in to it😢 I also think you are fab😁

[HealthStarDust in reply to Delgor]

Exactly. Some person who is too young or for whatever reason ignorant that designed the research, should not get in the way of taking part in the survey. If anything, I feel the age group the are focusing on may not yield enough responses that capture the true experiences of what is happening in practice and women currently going through any kind of reproductive difficulties may not yet be able to emotional even engage with such a survey.

I’ve done it, and based my responses carefully on all my experiences rather than just the last 12 months as I believe they are all relevant.

Such a stupid exclusion criteria.

[Delgor in reply to HealthStarDust]

That sounds good to me - basing it on all your experiences 👍🤗