Help appreciated!: I'm in my mid 20s and have... - Thyroid UK

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Help appreciated!

waterlover79 profile image
9 Replies

I'm in my mid 20s and have been feeling tired the last few weeks but have been busy with uni so didn't think too much of it until last week where I started feeling really off - weak, dizzy, and exhausted with a spacey/brain foggy feeling. I thought it might be anemia as I'm vegetarian (although have quite a good diet) and came home for a few days to try and feel better.

Over the weekend I started feeling worse and my brain fog became so bad I could barely think clearly and had to abandon all attempts at uni work. I got a doctors appointment for Monday as I couldn't shake this feeling something was 'wrong' in my body. I mainly mentioned anemia to the doctor but also asked if it could be my thyroid as my nan has a history of thyroid issues and so do some of my friends. She didn't seem sure but said she'd test for it anyway. My results came back today and everything she tested for was within range - B12, Foliate, Ferrin (although all these were right at the low end) and my serum TSH was 3.09.

I had thought if anything I might have a hyperactive thyroid as I was having heart palpitations as well but this result seems to suggest my range is closer to an underactive thyroid I think? It's still in range, however I read online that there is some debate that the range should be shifted for to 2.5 for the max for young women as 4.0 tends to be the upper range for men, is this right?

I've read a few posts here and it seems that doctors aren't always the best at diagnosing stuff like this - I have a history of anxiety and depression and I think my doctor was convinced this was the cause of what I'm feeling, especially as a uni student in my final year. Personally I don't think it is as it feels completely different to any anxiety/depression symptoms I've had before and I was in a fairly good place mentally before I felt ill.

I'd really appreciate any insight anyone might have regarding this - apologies for the long message!! Thank you 😊😊

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waterlover79 profile image
waterlover79
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9 Replies
tattybogle profile image
tattybogle

Hi , and welcome waterlover .really sorry to hear how rubbish you feel .

you are correct ~ a TSH (Thyroid Stimulating Hormone) result of 3 is higher than most people, but not high enough to show a problem with hypothyroidism as far as the NHs is concerned.

This graph healthunlocked.com/thyroidu...

shows the % of healthy people who have TSH at various levels .. as you can see 1 / 2 ish is by far the most common ... 3 is getting a bit unusual., and could be an early sign the the thyroid is beginning to struggle to make enough T4 for you .,, or it could be a result of rubbish vitamin levels , or something else that is just causing a temporary blip.

NHS wont usually test fT4 (the thyroid hormone) until TSH is over the lab range . (and they rarely test fT3 at all ).

Before they can consider treating hypothyroidism NHs need "2 consecutive over range TSH results, taken 3 months apart ,and symptoms of hypothyroidism.

What time of day was this TSH test taken ? (time of day affects result)

If you post the actual results you got for B12 /ferritin /folate and [lab ranges] people can help you see what to do to improve them.

waterlover79 profile image
waterlover79 in reply totattybogle

Thank you so much for your reply, that is all really good to know! Time was just past 11am but I had not had any breakfast beforehand so had (unintentionally) fasted.

These are my vitamin levels - I was quite surprised to see my folate so low as I eat broccoli literally almost every day and have a pretty good diet with pulses, wholewheat pasta/rice etc. I don't eat eggs and am obviously veggie so thought maybe it was B12 but I do eat cheese, yoghurt, and have oat milk (which is B12 fortified).

I have been taking liquid iron which also has B12 and B9 since last week and have been eating as many iron rich foods as possible, and only had the blood test yesterday so not sure if this impacted results at all.

.
tattybogle profile image
tattybogle in reply towaterlover79

i will tag SlowDragon to have a look at your vit's cos i'm rubbish at that bit

x

SlowDragon profile image
SlowDragonAdministrator in reply towaterlover79

B12 and folate are too low as well

As a vegetarian you should be supplementing B12 daily. Have you been doing so ?

Low B12 symptoms 

b12deficiency.info/signs-an...

methyl-life.com/blogs/defic...

With serum B12 result below 500, (Or active B12 below 70) recommended to be taking a B12 supplement as well as a B Complex 

Then once your serum B12 is over 500 (or Active B12 level has reached 70), you may be able to reduce then stop the B12 and just carry on with the B Complex.

If Vegetarian or vegan likely to need ongoing separate B12 few times a week 

B12 drops 

healthunlocked.com/thyroidu...

B12 sublingual lozenges 

amazon.co.uk/Jarrow-Methylc...

cytoplan.co.uk/shop-by-prod...

B12 range in U.K. is too wide

Interesting that in this research B12 below 400 is considered inadequate 

healthunlocked.com/thyroidu...

A week or so after starting B12

To improve low folate

supplementing a good quality daily vitamin B complex, one with folate in (not folic acid) 

This can help keep all B vitamins in balance and will help improve B12 levels too

Difference between folate and folic acid 

chriskresser.com/folate-vs-...

Many Hashimoto’s patients have MTHFR gene variation and can have trouble processing folic acid.

thyroidpharmacist.com/artic...

B vitamins best taken after breakfast

Thorne Basic B recommended vitamin B complex that contains folate, but they are large capsules. (You can tip powder out if can’t swallow capsule) 

Thorne currently difficult to find at reasonable price, should be around £25. Try iherb.com

IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before ALL BLOOD TESTS , as biotin can falsely affect test results

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

In week before blood test, when you stop vitamin B complex, you might want to consider taking a separate methyl folate supplement and continue separate B12

SlowDragon profile image
SlowDragonAdministrator in reply towaterlover79

Have you had vitamin D tested

If not get tested

Test twice yearly via NHS private testing service when supplementing 

vitamindtest.org.uk

PurpleNails profile image
PurpleNailsAdministrator

Welcome to forum,

Sorry you are having symptoms.

Very common for doctors to assume anxiety / depression related.

Low ferritin can cause palpitations.

Many doctors are taught thyroid doesn’t need treating until TSH reaches 10 or there are 2 over range TSH results. 

Unfortunately the TSH doesn’t tell you much.  The TSH - thyroid stimulating hormone is a pituitary hormone which signal thyroid to reduce / increase production. It’s an assumption that thyroid hormones are at right level because TSH is in range.  

Most have a TSH around 1 so as it rises the thyroid is struggling more to keep up. 

You many have read younger women should have a TSH under 2.5 as this is a level thought to be appropriate level for those planning conception.  

What you really need to know is what your thyroid levels are, the free thyroxine & Triiodothyronine or FT4 & FT3 for short. 

Can you add folate,ferritin & B12 results & lab ranges (lab ranges vary between labs, so needed for every test) 

In range is not same as optimal for nutrients. You may help symptoms by improving levels.

Having low nutrients can also lower TSH.

Many use private home fingerprick tests to obtain full thyroid testing as GPs often won’t test everything. 

I think you should full function also test thyroid antibodies as this will show if autoimmune damage is occurring & you then have a strong argument to start treatment as you approach low levels rather than having to wait until they are severe.  

For consistency it’s recommended for thyroid test you fast overnight, book draw for close to 09.00.  Stop any supplements containing biotin 3 days before as biotin can skew results. 

Medichecks offers an advanced thyroid including TPO & TG antibodies, key nutrients including vitamin D. 

Monitor my health (MMH) offers an advance thyroid but only test TPO.  but this is an NHS lab so more accepted by doctors.  Some do accept private results but often doctors prefer to ignore private tests altogether but the results gives you grounds to push for repeat testing.  

There are other companies & options,  this page list them with discounts codes available.  

thyroiduk.org/help-and-supp...

waterlover79 profile image
waterlover79 in reply toPurpleNails

Thank you very much for your really comprehensive reply, I've added my levels in the comment above.

I'm considering thinking about getting a private thyroid test if these symptoms carry on so really appreciate you laying out the best options for that :)

SlowDragon profile image
SlowDragonAdministrator

Your ferritin is EXTREMELY low

As a vegetarian it’s extremely difficult to maintain iron and ferritin

Has your GP done FULL iron panel test

cks.nice.org.uk/topics/anae...

Serum ferritin level is the biochemical test, which most reliably correlates with relative total body iron stores. In all people, a serum ferritin level of less than 30 micrograms/L confirms the diagnosis of iron deficiency.

Never supplement iron without doing full iron panel test for anaemia first It’s possible to have low ferritin but high iron 

If GP doesn’t do full iron test

Use Medichecks for iron panel test 

medichecks.com/products/iro...

and retest full iron panel test 3-4 times a year if self supplementing.

Look at increasing iron rich foods in diet 

Eating iron rich foods like liver or liver pate once a week plus other red meat, pumpkin seeds and dark chocolate, plus daily orange juice or other vitamin C rich drink can help improve iron absorption

List of iron rich foods

dailyiron.net

Links about iron and ferritin

An article that explains why Low ferritin and low thyroid levels are often linked 

preventmiscarriage.com/iron...

irondisorders.org/too-littl...

davidg170.sg-host.com/wp-co...

Great in-depth article on low ferritin 

oatext.com/iron-deficiency-...

drhedberg.com/ferritin-hypo...

This is interesting because I have noticed that many patients with Hashimoto’s disease and hypothyroidism, start to feel worse when their ferritin drops below 80 and usually there is hair loss when it drops below 50.

Thyroid disease is as much about optimising vitamins as thyroid hormones

healthunlocked.com/thyroidu...

restartmed.com/hypothyroidi...

Post discussing just how long it can take to raise low ferritin 

healthunlocked.com/thyroidu...

Iron and thyroid link

healthunlocked.com/thyroidu...

Excellent article on iron and thyroid 

cambridge.org/core/journals...

Posts discussing why important to do full iron panel test

healthunlocked.com/thyroidu...

healthunlocked.com/thyroidu...

Chicken livers if iron is good, but ferritin low

healthunlocked.com/thyroidu...

Shellfish and Mussels are excellent source of iron 

healthline.com/nutrition/he...

Heme iron v non heme

hsph.harvard.edu/nutritions...

Ferritin over 100 to alleviate symptoms 

healthunlocked.com/thyroidu...

Low Iron implicated in increasing risk of developing hypothyroidism 

healthunlocked.com/thyroidu...

Ferritin range on Medichecks 

healthunlocked.com/thyroidu...

healthunlocked.com/thyroidu...

We have received further information the lab about ferritin reference ranges. They confirm that they are sex dependent up to the age of 60, then beyond the age of 60 the reference range is the same for both sexes: 

Males 16-60: 30-400 ug/L

Female's: 16-60: 30-150

Both >60: 30-650 

The lower limit of 30 ug/L is in accordance with the updated NICE guidance and the upper limits are in accordance with guidance from the Association of Clinical Biochemists. 

Recommend you read the many posts and replies by humanbean on iron and ferritin

Low ferritin will often cause palpitations

Omowa profile image
Omowa

I feel for you , my daughter has just recently been diagnosed with thyroid issues. She should be a second year law student but is now at a different university as a first year doing a less exhausting course as she put it as she suffered from anxiety and fatigue . She’s had a load of symptoms all her life and been constantly miss diagnosed even though I asked the doctors to check her thyroid readings as she has family on both sides with thyroid issues . They always say it’s within range . They had given her hypermobility , dyslexia , depression diagnosis over the years but she has battled on. She has had shakes. Tremors for the past few years and we have been back and forth to numerous consultants. Private and NHS only go get recently diagnosed with something called essential tremors. We were soo happy at the consultation thinking finally we had a result and he gave us a prescription that she would have to take for life. That elation lasted exactly 5 minutes when I googled essential tremors and realised that was a diagnosis for a tremor that wasn’t understood . Even worse when I googled the side effects of the drugs prescribed and saw the side effects I had to break the news to my daughter that she would not be taking the prescription . I also promised her that I would discover what was wrong with her . She was emotionally exhausted by now as her tremors are truly noticeable . I won't go into how I can across the clinic in Belgium for my hormone needs (HRT) , I thought , it’s a long story . The upshot of all of this is that going there has saved my daughters life and mine . Although are blood results show we are in range re thyroid . Low readings though . Our 24 hour urine test shows quite clearly that I am greatly deficient in T3 and by daughter has a serious deficiency in t3 and t4 . All of the miss diagnosis over the years on all her many symptoms are due to Thyroid issues . Both she and I are on ERFA. Basically you need to take your care into your own hands . Rely on the thyroid 24hr urine tests not blood tests . If you message me I can send you the clinic details and also where you can get the 24 hr urine test done in the UK . Maybe no need for Belgium .Good luck

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