Endocrine Society contact: There is a bit of good... - Thyroid UK

Thyroid UK

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Endocrine Society contact

diogenes profile image
diogenesRemembering
28 Replies

There is a bit of good news that I can pass on today. Our team leader Rudolf Hoermann has been approached by the Endocrine Society to fully explain our model of thyroid function control in health and disease and have asked some very pertinent questions to which we gave comprehensive answers. The Endocrine Society is no small entity. It is based in Washington DC but has many clinicians from elsewhere in its membership. This is now putting our concept on a par with Bianco's and extends the concept. Publicity like this is essential to overcome national barriers to new thinking.

Its CV is as follows

We are a global community 18,000 strong energized by the promise of unraveling the mysteries of hormone disorders to care for patients and cure disease.

We are devoted to advancing hormone research, excellence in the clinical practice of endocrinology, broadening understanding of the critical role hormones play in health, and advocating on behalf of the global endocrinology community.

Written by
diogenes profile image
diogenes
Remembering
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28 Replies
helvella profile image
helvellaAdministratorThyroid UK

That is most excellent news.

One of the first things I read when getting involved with thyroid issues was that research to patient takes 17 years. And that was (in context) very obviously the simple things...

I really hope they break all records in changing their polices, guidance, education, etc.

diogenes profile image
diogenesRemembering in reply to helvella

In "olden" times, messages of studies in one country were slow to reach others but nowadays the world can see them in a flash of pressing buttons. This should liven things up a little more.

DippyDame profile image
DippyDame in reply to diogenes

Without the internet I would most likely now be dead!

It's all out there so lack of knowlege amongst medics is no excuse.

pennyannie profile image
pennyannie in reply to helvella

So now I know how long I have to wait to even see a glimmer of change in the treatment options for Graves Disease and RAI removed as an option.

ncbi.nlm.nih.gov/pubmed/306... dated March 2019 : and counting :

helvella profile image
helvellaAdministratorThyroid UK in reply to pennyannie

I think diogenes is right - things have changed a lot.

Whereas when I started, availability of online access to things was still fragmentary, and real paper journals were being produced, that is no longer the case.

Why, we even see papers being discussed in depth while in their pre-publication state!

Still has to get into heads, convince minds and then be implemented. But the difference is astonishing.

It's hard to glean any benefits from Covid, but the need to ramp up the research and publication cycles has had a huge impact.

pennyannie profile image
pennyannie in reply to helvella

Your last sentence says it all - but it does seem as though we face a Mount Everest in all aspects of mainstream medical.

amala57 profile image
amala57

Wow, this is great news. Thank you.

lynmynott profile image
lynmynottPartnerThyroid UK

Oh, this is really good news! Thank you all for your most excellent and hard work getting to this stage!

dolphin5 profile image
dolphin5

Brilliant!! Thank you 🙏.

PaulRobinson profile image
PaulRobinson

Great news!

tattybogle profile image
tattybogle

excellent

(adjective) in the sense of outstanding

Definition

exceptionally good

We complimented him on doing an excellent job.

Synonyms

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superlative

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bakgat (South Africa)

TiggerMe profile image
TiggerMe in reply to tattybogle

Nothing left to add 💃

TSH110 profile image
TSH110 in reply to tattybogle

Magic!

Zephyrbear profile image
Zephyrbear in reply to tattybogle

How about “Way to go!!!” (U.S. ?surfer slang)

Musicmonkey profile image
Musicmonkey

That is wonderful news indeed! Thank you again for your continued efforts on our behalf. You are (and have been) succeeding. Hopefully real significant changes are on the way 🙏

LindaC profile image
LindaC

Excellent - not before time! Best news in a long while!! Thank you.

pennyannie profile image
pennyannie

Well that is amazing but so well deserved :

It's just alarming that it's taken so long for anything to happen - whilst we try and understand and follow through we are met with brick walls :

At the very least you will be able to talk to people who may have some clout rather than keep getting sidelined.

DippyDame profile image
DippyDame

Brilliant!

The light is now getting through the cracks.

Well done all

1tuppence profile image
1tuppence

A bright ray of sunshine....such tremendously good news. Thank you for all of your efforts.

wellness1 profile image
wellness1

If the Endocrine Society is true to its mission statement then it only makes sense for them to pay attention to your team's research. Let us hope this is an important step toward getting your work recognised and advancing excellence in the clinical practice of endocrinology.

Well done and thank you!

TSH110 profile image
TSH110

great news!

nightingale-56 profile image
nightingale-56

So pleased for another step forward. You all deserve the recognition.

Dandelions profile image
Dandelions

Fantastic! Well done.

Thanks for sharing.

Regenallotment profile image
Regenallotment

WOOOP! good work 👏 I live in hope that your work and the coverage/networking/sharing with organisations like this mean those that come after us have an easier time of it. It has been said before but without this forum I'd be very unwell by now. 🌱🦋🌱

BB001 profile image
BB001

At last! Excellent news and well deserved. I look forward to you communicating the link when it's a published article.

NieuwOndaatje profile image
NieuwOndaatje

Many thanks to you all!

This is really exciting news and a very promising development from many shared and mutual perspectives! I won’t yet dare to suggest we might be approaching a panacea moment as we have had a few false dawns for Thyroid and other Endocrine and/or Hormone imbalances, diagnostics and treatments but this news has the potential to shine new lights in places where the sun hasn’t shone for a long time.

I hope that this is taken up by the broader church of patients groups and the more enlightened practitioners in the thyroid and endocrine community and that finally all the advocacy on behalf of long suffering patients gains traction in the medical profession to embrace the complexity of hormone replacement treatments and tailored to patients symptoms and their individual requirements.

Muchas Gracias to Diogenes, Rudolf and the team behind these new and emerging insights into thyroid function controls in both health and disease.

crimple profile image
crimple

Really good news and sincere thanks to all who worked so hard to bring their research to the attention of the Endocrine Society. Let's hope it doesn't take too many years for things to improve with respect to diagnosis and treatment of thyroid patients.

Aurealis profile image
Aurealis

Great news! Thank you

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