Portion of long covid funding intentionally allocated to ME/CFS research

[helvella]

As the title says: Portion of long covid funding intentionally allocated to ME/CFS research.

Finally!

From The Guardian "Can long Covid research unlock other great medical mysteries of our time?" healthunlocked.com/redirect...

The entire article is good, but this bit is especially interesting:

Perhaps the most notable effort to understand long Covid is spearheaded by the US National Institutes of Health (NIH), which has allocated some $1.15bn to the Researching Covid to Enhance Recovery (Recover) project. And one of its taskforces explicitly aims to track the similarities between long Covid, ME/CFS and other post-viral conditions.

I hope the research won't just be 'what fancy expensive pharmaceuticals can we develop'. I personally would like to see research on whether these viruses are acting as a trigger for underlying autoimmune diseases, or perhaps triggering thsm by altering the immune system in some way. As we know, ME/CFS is often hypo/hyper thyroidism, low b12/PA, (borderline) Addison's, and similar. I hope fibromyalgia is included too, as it's in the same category as ME/CFS in my opinion.

{The above was posted to Parnicious Anaemia Society forum here: healthunlocked.com/pasoc/po... by jade_s with an invitation for me to post it here! You might wish to check comments over there as well.)

[DippyDame]

frontiersin.org/articles/10...

Higher Prevalence of “Low T3 Syndrome” in Patients With Chronic Fatigue Syndrome: A Case–Control Study

Douglas Adams wrote...

The Answer to the Ultimate Question of Life, the Universe, and Everything is 42.

I might argue it's T3 !!!!

[userotc]

Thanks for this Of course it will be development of pharmaceuticals (fancy or otherwise)!! It's already indicated in the article.

I seriously doubt that any of the funds will be dispersed to acknowledged, naturopathic experts like Dr Sara Myhill who has specialised in those areas for many years. Correction: I know they won't!

[Batty1]

I just got over Covid and it’s strange my crippling psoriatic arthritis pains that Ive been suffering with for 6 years just disappeared… I still have very mild pains but nothing like I was having prior to Covid.

[helvella Administrator in reply to Batty1]

Very interesting - and it is the sort of thing that really, really should be looked at and investigated thoroughly. For you and everyone else.

[Batty1 in reply to helvella]

Im definitely going to bring this up to my Rheumatologist who also is also a psoriatic arthritis researchers Ive been participating in her studies for past 3 years ….. Im worried if the pain will eventually return but its been 3 weeks and Im still pretty pain free ….

[AmandaK]

It's tragic that it takes a global pandemic for those who have been suffering from ME/CFS for years/decades to finally be taken seriously.

Having experienced both sympathetic and dismissive GPs and empathetic individuals and those far from empathetic (you really find out who your friends are when you're chronically ill) it's heartening to read this.

Interestingly, I now find that those who were sceptical (despite seeing first hand the impact on me and my life) who have either experienced Covid/Long Covid or know others who are/have been ill with it are coming to me either for advice or to find out more about my ME experience. If only they had asked the pertinent questions all those years ago rather than boldly present to me their prejudiced views (some extremely insensitive). I gave up engaging with them on the subject as it angered me so much. And it cost me more than one friendship.