Sorry, need to vent a bit!

[Penny_babe2001]

I was diagnosed with hypothyroidism way back in the early 90s, and also have a Hashimotos diagnosis with multinodule goitre.

I’ve been struggling a lot for a while, and blood test showed a TSH of 15, up from 0.001. I asked for a referral to endo as gp is useless with thyroid; little did I know that the endo was worse!! I have had to fight for every test so far, and endo’s final stance is that it is all my fault because I am not taking levo and refuse to try it! (Am on T3 only as I wasn’t converting T4) yet he also refusesto test my T3 and then tells me that my T4 is too low!! 😫 At my last appointment ge even asked me if I had considered gastroc surgery to lose weight and has decided to discharge me back to GP, even though TSH was still 14 on last bloods that he ordered.

It’s scary just how useless and clueless these so called “specialists” are!! 😡

Sorry, just needed to vent to people who understand 😔

[Penny_babe2001]

Sorry about the amount of typos; am on my phone with tiny keyboard!!

[SlowDragon Administrator]

it’s a complete waste of your time (and sanity) if you don’t personally organise your own FULL private thyroid and vitamin tests BEFORE any consultation

How much T3 are you currently taking

which brand is it and do you normally split the dose into 2 or 3 smaller doses spread through the day

Day before test ALWAYS split T3 into 3 doses and last 1/3rd of daily dose approx 8-12 hours before test

What vitamin supplements are you currently taking

Bloods should be retested 6-8 weeks after each dose change or brand change in levothyroxine or T3

 

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested.

Very important to test vitamin D, folate, ferritin and B12 at least once year minimum

Do you have autoimmune thyroid disease?

Recommended on here that all thyroid blood tests early morning, ideally just before 9am

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

List of private testing options and money off codes

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3

£29 (via NHS private service ) and 10% off down to £26.10 if go on thyroid uk for code

thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/

NHS easy postal kit vitamin D test £29 via

vitamindtest.org.uk

Only do private testing early Monday or Tuesday morning. Watch out for postal strikes, probably want to pay for guaranteed 24 hours delivery 

[greygoose]

To be fair - although I don't know why I should be! - I don't think they claim to be thyroid specialists. The vast majority of endos are diabetes specialists. I know the name suggests that they should know about all hormones, but they really don't. And, it's my personal opinion that they shouldn't even be consulted with thyroid problems. I know that raises the question 'who can we consult, then?' and I don't have an answer for that. I just know that you really can't trust the majority of endos with your thyroid. They very often make things a whole lot worse!