looking to get some proper answers and not just being GP led as feeling awful on high dose of levothyroxine
im trying to find an endocrinologist that does... - Thyroid UK
im trying to find an endocrinologist that does thyroid as a specialism.I m based in Gloucestershire but willing to travel.
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Welcome to the forum
How long have you been on levothyroxine
How long at current dose and what is your dose
Do you always get same brand levothyroxine at each prescription
What vitamin supplements are you currently taking
When were vitamin D, folate, ferritin and B12 last tested
Do you have autoimmune thyroid disease also called Hashimoto’s, usually diagnosed by high thyroid antibodies
Before considering booking any consultation, with any thyroid specialist you need to get FULL Thyroid and vitamin testing done
Get all four vitamins optimal
ALWAYS test thyroid levels early morning, around 9am latest and last dose levothyroxine 24 hours before test
Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins
List of private testing options and money off codes
thyroiduk.org/getting-a-dia...
Medichecks Thyroid plus antibodies and vitamins
medichecks.com/products/adv...
Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins
bluehorizonbloodtests.co.uk...
If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3
£29 (via NHS private service ) and 10% off down to £26.10 if go on thyroid uk for code
thyroiduk.org/getting-a-dia...
If autoimmune thyroid disease, have you had coeliac blood test done
Are you on, or tried strictly gluten free diet
Please add most recent results and ranges
Meanwhile Email Thyroid U.K. for list of recommended thyroid specialist endocrinologist and doctors
tukadmin@thyroiduk.org
Thanks, that's a lot of information that I'll take time time out to review. Yes same brand but I've never improved from when diagnosed. I've got a GP referral and need to get my head round the tests. I don't eat gluten as purely keto to stop my weight getting worse.Thanks for the help xx
Hi,
I normally post on Pernicious Anaemia Society forum on HU.
A large number of the people who post there also have thyroid issues.
People with other causes of B12 deficiency besides PA also use the forum so worth a look if you suspect B12 deficiency.
Link to Pernicious Anaemia Society website
pernicious-anaemia-society....
Link to B12 Deficiency Info website
I'm not medically trained.
Thank you for your reply, B12 is tickety boo as i had that checked. I've had some great help and glad I reached out xx
Hi a lot of doctors say your ok when actually patients are very low b12 … what were your blood results …. … trying to help … the range is quite wide
From personal experience, possible to have severe B12 def. symptoms with normal serum (total) B12, I had dementia and spinal symptoms with normal range results.
Blog post from B12 Deficiency Info website about normal range serum (total) b12 results
b12deficiency.info/your-ser...
The UK area you are in, has a poor reputation on PAS forum for diagnosis/treatment of B12 deficiency.
B12 deficiency symptoms can overlap with those of thyroid disease.
If you have time, have a look at symptoms lists on the two websites I listed in other reply.
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As Sleepybunny says …it’s possible to have Paradoxical B12 deficiency with hypothyroidism
If you have time, look up Functional B12 deficiency, this is where there is plenty of B12 in the blood but it's not getting to where it's needed in the cells so the person develops the symptoms of B12 deficiency.
Functional B12 deficiency is mentioned in links below.
nhs.uk/conditions/vitamin-b...
See Point 5 in next link