Where do I find or how do I get my Genova test results

[missmayple]

I've had Genova test, the company tells me my results have been sent to "ThyroidUK practitioner".......no idea who that is or how to get my results could you please advise? thank you!

[SlowDragon Administrator]

Email Thyroid UK for results

[e-mail]

[humanbean]

The info on how the system works is given here :

thyroiduk.org/help-and-supp...

If you want to avoid these hassles you could use Regenerus labs in future.

thyroiduk.org/help-and-supp...

Regenerus deal directly with the public, unlike Genova who are a US-based company.

[missmayple in reply to humanbean]

Thank you! & I just checked Regenerus does the reverse T3 too.

[SlowDragon Administrator in reply to missmayple]

Reverse Ft3 is not recommended on here

Very expensive test (bloods flown to USA for processing)

How much levothyroxine are you currently taking

[missmayple in reply to SlowDragon]

oh? I was giving Levothyroxine in 2012, like many my hypo symptons did not improve but infact worsened - I gained even more weight, more hair fell out, I went from sleeping 16 hours in 24 to being in an unconscious state most of the time - I would fall asleep mid-sentence even. I failed to get out bed except to move to the sofa and sleep there, arthritis lumps appeared on my finger joints, all over pain increased especially remember the pain in my joints. There were more horrible reactions, my guts were a mess but I can't remember them all. In 2014 I was able to access NDT through a good doctor and all the recommended supplements, I began to get my life back in stages.

On January 7, 2020 I took Levo again as I couldn't afford or access any NDT or T3 all the same awful things occurred but my partner and I were able to monitor this time. The reason being as I was in a better state than I had been in 2012 before I started Levo this time...................................... I put on a kilo of weight every week for 10 weeks............on Levothyroxine.......... by the time the NDT & T3 arrived on March 10th I was bed/sofa bound unable to hold a conversation, almost unable to walk without pain, had not been able to use the oven or hob safely or do most anything myself.....I was straight back to where I had been years earlier in a matter of weeks. No alternative was ever offered to me in 2012 by the dire doctor I went to then. I was diagnosed with Fibromyalgia and depression. Having discovered and NDT, B12, D3, and more recently T3 in combination with NDT my life has changed for the better - but it's been very difficult to afford and to maintain the supply especially during Covid times. I am now based in Lancashire and am incredibly grateful to discover that here unlike Bristol they will prescribe T3 on an NHS prescription! It's made all the difference to the cost and continuity of my treatment. ........I was looking into the possibility of Rt3 as although I am the best I have been in over 12 years I seem to need to sleep 9-10 hours a night and still struggle in the mornings, also still feel unable to cope with stressful situations in a normal way and have 2-3 migraines a week. I truly believe from my expererience and many women I have spoken to that Levo is a worse than useless prescription, it can be extremely harmful. If as a hypo patient a person is still struggling with symptoms, over weight then Levo is not working - the NHS has alternatives to Levo they can offer but many doctors don't seem to know this or as I found it depends where you live - Tirosint as an alternative was finally offered to me in 2020 on the NHS but by that time the NDT had arrived & I stuck with what I knew worked. I had tried Tirosint once before in combination with T3 and it does work, my partner noticed that I got my sense of humour back almost overnight - but over time my body responded better with NDT & T3 .....I've done a great deal of reading and experimenting over the years. But then when your hypo it takes ages for the info to sink! I hope this post of my experience can be helpful to others

[SlowDragon Administrator in reply to missmayple]

If you’re on T3/NDT definitely not worth testing RT3

It’s only worth testing if on high dose levothyroxine….which isn’t working

[missmayple in reply to SlowDragon]

Thank you for taking the time to give me feedback. I hope the image will expand once posted - it'smactually the first time I'm ever posting results - just because I had such an old computer before it wouldn't do it. I have cut off the personal details - hope this is acceptable format?

That's so interesting re not testing for RT3, here are my results on NDT , haven't had Levo (& then only for 10 weeks) since the first week of March 2020. If I am understanding my results correctly there is RT3 here. I believe because I was taking too much NDT for a short while as I was having trouble getting my NHS prescription for T3 so I upped the NDT to try and compensate- it didn't work - I got tired and symptomatic again. I reduced the NDT back to 2 grains and soon after I was able to add 20g of Liothyronine again. These test results reflect NDT 2.5 grains or 150mg and no T3 for the preceding 1-2 weeks, and of course I didn't take any NDT on the day of test. I'm feeling better now - again the best in 12 years now I've got the 20mg of Liothyronine as well as 2 grains of NDT. I feel so sad that all hypothyroid patients who are suffering and lets face it, they wouldn't be here if they weren't aren't able to access T3 and just try it as well as the alternative T4's like Tirosint. It's such an unjust medical world we live in. Any how love to hear your thoughts on the RT3 here...when you have time....much appreciated

Genova Thyroid test including RT3

[SlowDragon Administrator in reply to missmayple]

We only recommend testing after 6-8 weeks on constant unchanging dose NDT, T3 (or levothyroxine)

SeasideSusie has a comprehensive list of reasons for high Reverse T3

She might pop along and comment

[SeasideSusie Remembering in reply to missmayple]

missmayple

I would mention that the rT3 test is pretty useless, it can tell you if your rT3 is high but it can't tell you why it's high. It's expensive and takes about 3 weeks to get the results.

High rT3 can be caused by many things, only one of which has anything to do with the thyroid and that's when there is an excess of unconverted T4 and you will know this from the FT4 and FT3 results, you don't need a rT3 test to show this.

High rT3 could be caused by low ferritin, by an infection, by low-calorie diets, selenium or zinc deficiency, cortisol issues, stress, dieting, chronic illness, inadequate or low iron, chronic inflammation, high cortisol, or liver issues and any other chronic health issues, and probably several more things.

Other conditions that contribute to increased Reverse T3 levels include:

· Chronic fatigue

· Acute illness and injury

· Chronic disease

· Increased cortisol (stress)

· Low cortisol (adrenal fatigue)

· Low iron

· Lyme disease

· Chronic inflammation

Also selenium deficiency, excess physical, mental and environmental stresses. Also Beta-blocker long-term use such as propranolol, metoprolol, etc. Physical injury is a common cause of increased RT3, also illnesses like the flu. Starvation/severe calorie restriction is known to raise RT3. Diabetes when poorly treated is known to increase RT3. Cirrhosis of the liver. Fatty liver disease. Any other liver stress Renal Failure. A fever of unknown cause. Detoxing of high heavy metals.

Articles

thyroidpatients.ca/2019/01/...

zrtlab.com/blog/archive/rev...

verywellhealth.com/reverse-...

[missmayple in reply to SeasideSusie]

Well this is super feedback, thank you - lots of information to be getting on with. where to start! Thank you - many causes can easily be illiminated but still so many to work through. Low iron, low ferritin always an issues - so hard to raise them. What are some of the methods found to work in this group? The liver is interesting, I haven't drunk alcohol in years as even just a small glass of wine results in feeling extremely hung over as if I had been binge drinking and usually triggers a migraine. So I might have a single unit of alcohol once in blue moon and only if I have milk thistle to hand. Shame as I do like a good whiskey!

[SeasideSusie Remembering in reply to missmayple]

Low iron, low ferritin always an issues - so hard to raise them. What are some of the methods found to work in this group?

If it's iron deficiency then GP should be prescribing iron tablets and monitoring regularly. Other than that we can help raise Ferritin by eating iron rich foods such as liver, liver pate, black pudding, etc.

[missmayple in reply to SeasideSusie]

ah but black pudding has gluten- surely not? Thank you for the reply- what iron do you get from NHS? In Bristol all they gave me was ferrous iron which was like a champagne cork stuck up me you know what! ridiculous form of iron to offer patients with a slow metabolism....also have people been able to get the 4 point iron test on the NHS? been eating iron rich food for ages and taking a variety of iron supplement with vit c or lemon at night and never got over 68 ferritin....not sure I can find my last iron test results for saturated and TIBC. This just has been one of the most confusing issues to deal with. ha! btw read it Seasick Susie - as in the woinderful bluegrass musician Seasick Steve - & thought it was a very clever name for this site - still Seaside Susie is good just not as funny

[SeasideSusie Remembering in reply to missmayple]

ah but black pudding has gluten- surely not?

Not if you buy a gluten free one, Bury Black Pudding Company, for example, do a gluten free one.

what iron do you get from NHS?

Probably ferrous fumarate is the usual one but if it doesn't suit there are other options I believe.

also have people been able to get the 4 point iron test on the NHS?

I can't remember but I can't see why not, I think I have seen iron panel results from GP shown on here from time to time.

Seasick Susie

I'm not a good sailor, I did spend a lot of time with my head on a table trying not to spew on the Isle of Wight ferry many years ago 🤢

[missmayple in reply to SeasideSusie]

Seaside Susie, with her feet firmly planted in the sand, thank you for the thorough reply. Excuse the late thank you, our cellular mast is broken in our area & as I use the phone's hot spot for internet, I've had no internet, phone etc for over a week - it's just about working now - so finally I can thank you - took screen shots of your answers so I have them to hand to work on - as well as the artices you listed for me- have a merry Christmas & a Happy New Year!