Is heart pain common with hyperthyroidism?Have dull chest pain even though I am 6 weeks into taking carbimazole and levels coming down fast

[Felixgb]

Heart pain

[SlowDragon Administrator]

Welcome to the forum

Do you have results from diagnosis

For full Thyroid evaluation you need TSH, FT4 and FT3

Before starting on Carbimazole have you had TSI or Trab antibodies tested for Graves’ disease

plus important to test both TPO and TG thyroid antibodies tested for autoimmune thyroid disease (hypothyroid) also called Hashimoto’s. Hashimoto’s frequently starts with transient hyperthyroid results and symptoms before becoming increasingly hypothyroid

Also EXTREMELY important with Hashimoto’s or Graves’ disease to test vitamin D, folate, ferritin and B12

Link about thyroid blood tests

thyroiduk.org/getting-a-dia...

Link about Graves’ disease

thyroiduk.org/hyperthyroid-...

Graves Disease antibodies test

medichecks.com/products/tsh...

[Felixgb in reply to SlowDragon]

T4 was 38 now 22 T3 was 14 now 8

TSH was nonexistent - still no change

High antibodies but doing another test to narrow down

Endo happy with what’s going on - more bloods next week.

I feel awful still - my main concern is my chest/heart - have had numerous ecg - they all say normal - also had echocardiogram (4weeks ago) 55% ejection fraction so normal.

[SlowDragon Administrator in reply to Felixgb]

So did they also prescribe propranolol?

Or just Carbimazole

Which antibodies?

TSI or Trab

Or TPO or TG

Have you had vitamins tested yet

Or coeliac blood test

[Felixgb in reply to SlowDragon]

Yes to propranolol- but my heart rate is back to more or less normal. Not sure on antibodies - doc said probs Graves which is why he wanted another one!?No idea on vitamins etc

[SlowDragon Administrator in reply to Felixgb]

Request vitamin levels tested too

[PurpleNails Administrator in reply to Felixgb]

Doctors often diagnose Graves by the low TSH. They do not always test the right antibodies. Often testing only TPO or TGab as this indicates thyroid autoimmune but not specific to Graves. Its a good sign they are testing further antibodies but you will need to confirm it, don’t just accept what the doctor thinks.

You can obtain printouts of your blood test results practice reception (don’t ask doctor) or arrange online access for GP records, which is extremely useful. For hospital results approach department secretary.

Don’t accept verbal or hand scribbled notes you need a printed copy with ranges (ranges vary between labs so essential). They shouldn’t ask why but if they do try to resist just say they are for your records. You are legally entitled to them.

[Felixgb in reply to PurpleNails]

Thank you 😊

[Valarian in reply to Felixgb]

I had chest pain which was brought under control by calcium channel blockers (rather than propranolol because of age and high blood pressure). However, propranolol will have helped while your thyroid levels are coming down. Excessively high thyroid levels make some of the systems in your body, including the heart, work faster.

The antibody test you need for Graves’ is TRAb or TSI… but if you’re being treated, your levels may come back to ‘normal’ anyway.

if you do have Graves’, TSH can remain suppressed for ages.

[Felixgb in reply to Valarian]

Thank you for your reply.So if your TSH levels remain low for a long time does that mean the symptoms will persist or just higher doses of carbimazole will remain in place for longer?

[Valarian in reply to Felixgb]

For people with Graves’, carbimazole dose must be based on FT3 and FT4, TSH may remain suppressed even when thyroid levels are quite low in range.

My specialist warned me that delayed recovery of TSH was often a sign that (semi) permanent remission wouldn’t be achieved with antithyroids, and this proved to be the case for me. TRAb remaining high is another indicator.

It has been suggested that TRAb may bind to the same pituitary receptor as TSH, leading to TSH suppression.

You may find these articles on TSH suppression and Graves’ interesting.

academic.oup.com/jcem/artic...

ncbi.nlm.nih.gov/pmc/articl...

[Felixgb in reply to Valarian]

Thank you so much. 😊

[pennyannie in reply to Valarian]

NIKEGIRL

[PurpleNails Administrator]

Hello & welcome to forum

Being hyper can accelerate the heart rate (as you mention in your profile). Heart palpitations are commonly felt and if hyper is untreated for a long time a fib can be diagnosed.

Being hyper can also cause muscle aches & pain, unfortunately carbimazole can also cause aches.

Has this been getting worse for a while or a new symptom?

Has the cause of your hyper been Determined?

What results do you have for full thyroid function you need: TSH, FT4. FT3, Folate, ferritin B12, vitamin D. TPO, TG Antibodies & TSI Trab if Graves suspected.

6 weekly testing is standard when commencing carbimazole has your dose been corrected (usually adjusted down) to keep you in range?

[humanbean]

I've never been hyper so this may be irrelevant.

I'm hypothyroid. I've also had a life long problem with absorbing and hanging on to iron. I started treating my own iron and ferritin levels about 8 years ago at a time when I had severe chest pain. I had a lot of iron to make up and very slow absorption. It took quite a long time but eventually my chest stopped hurting.