You are my sanity check…

[Lotika]

… thank you.

Just checked in and read a few posts and it reminded me that a) I’m not making this crazy world up, in which doctors don’t listen to thyroid patients and b) therefore I’m not crazy myself…

… I wonder sometimes, on a bad day… either every doctor I’ve ever spoken to about this is wrong or I’m crazy… or… if it is the world of thyroid treatment that is crazy for that approximate 15% who don’t respond optimally to LT4 monotherapy… The check in reminded me that it’s them not us.

Keep on keeping on.

Xxx

[Buddy195 Administrator]

You are perfectly fine Lotika! 👍😊Having a thyroid condition is hard enough to deal with, without having to jump through hoops to get the right treatment. It is a postcode lottery out there and some people have access to better medical support than others. Sending you very best wishes!

[Lotika in reply to Buddy195]

Back taking (black market!) T3 before the endos appointment because not taking it made me feel unwell and half crazy! I think he’s going to not prescribe long term anyway and meanwhile I’m done with feeling bad on the advice of doctors, as crazy as I sometimes think that sounds! Thanks, Buddy195 - always reassuring to be in that place where people I respect understand!

[Hidden]

How right you are!You don't need to look any further than to wonder why no doctor seems to quite understand why it is simply insane to be told that nothing further can be done for somebody like myself (without a thyroid) than to consider whether the patient has actually been correctly diagnosed with hypothyroidism.

Or, where is all that evidence they claim to have which identifies levothyroxine as the "gold standard" for the treatment of hypothyroidism?

Maybe, why does NDT cause osteoporosis, when calcitonin (used to treat osteoporosis and produced by the thyroid gland) is contained within natural NDT but not within synthetic levothyroxine? By definition, therefore, the primary suspect when osteporosis is diagnosed, should be levothyroxine!

When levothyroxine, for example, fails to work properly, EVERY doctor is INSTRUCTED by the GMC to inform patients of any medicine that they believe may help the patient, but most doctors fail to tell their patients that they should try NDT which, unfortunately, is usually not available from the NHS. In my opinion, the "recommendations" written by the doctors of the CCG, NICE, BTA or whoever should therefore include a statement to say that patients should perhaps try NDT for themselves. Perhaps this does not happen as the hypocritical new "recommendations" would prove conclusively that the previous wholly negative "recommendations" they used to promote were a load of c**p!

[tattybogle]

"take this little pill Alice .. it will make you all better".. ....down and down the rabbit hole she swirled ... in the Palace garden she was chased round the rose bushes by the Queen of Endo's ... "Off with their Thyroids! " .But all was well .. at the bottom of the garden she came across a mad bunch having a T3 party , where everyone had the wrong name , but spoke the truth.

"thank fuck " said Alice

[Lotika in reply to tattybogle]

About right 😂🤣😂 But seriously…!

[Yeswithasmile in reply to tattybogle]

Brilliant 🤩

[Lotika in reply to tattybogle]

Wish I could “like” that multiple times!