Just a rant on....

[Sleepyachy]

So annoying when people just dismiss u got a under active thyroid. Awe just get on with it . Or they just think your lazy and fat.

They dont get the absolute exhaustion you feel

How small things become a massive effort.

Argh!!!!! Rant Rant!!!!!

[Buddy195 Administrator]

Many of us have felt like this sleepyachy; you are not alone. Please believe that when your thyroid medication & key vitamins are optimal you will feel better. You may also feel better if you try and focus on eating/ drinking nourishing foods and trial being gluten free.... this helps many people with thyroid conditions. Don’t try to do too much while you are feeling low, let your body rest and take small steps towards achieving your goals. Reaching out to forum members today is a great step forward! 👍

[Hidden]

I stopped telling people I had a thyroid issue and started telling them I was diagnosed with an autoimmune disease.

They're much more sympathetic now.

[shaws Administrator]

As GPs know very little about how to 'diagnose patients through clinical symptoms alone', then we have a disadvantage immediately.

Before blood tests were introduced (making more profits for Big Pharma) doctors diagnosed us upon clinical symptoms alone and we were given a 'trial of NDT.

Uunfortunately False Statements were made some months ago to withdraw this established original hormone replacement prescribed since 1892 and it saved lives - no blood tests then - but the skill of the doctors who knew all clinical symptoms and prescribed NDT until we felt well again with symptoms relieved. We have millions of T3 receptor cells and heart and brain contain the most.

T4 - levothyroxine - is inacive and has to convert to T3.

T3 - liothyronine - is the Active hormone and heart and brain have the most T3 receptor cells.

thyroiduk.org/?s=list+of+cl...

[Lotika]

I find that one friend who wasn’t terribly sympathetic is now very sympathetic. It is since I explained that when I am under medicated, EVERY CELL IN MY BODY - INCLUDING MY BRAIN - is not getting what it needs. Everything slows down. Including brain, digestion, everything you can think of. So, you can’t concentrate and feel depressed, achy tired... I then said I know it’s going to be a tough day when I have my coffee and can’t concentrate through an entire news paper article! It gave him a concrete example of what brain fog feels like as he didn’t know.

[Hidden in reply to Lotika]

I did similar but got really dramatic about it. 😂 Along the lines of 'you can't survive without a thyroid. It's a major organ and when mine was failing my body started shutting down, I was effectively dying '

I mean, I was a long way from death (but it didn't feel like it most days) but it makes the point!

[HungryHungryHypo in reply to Hidden]

And yet it is true... We shut down and not being to use your brain like you used to was the most terrifying and debilitating symptom for me.

[shaws Administrator in reply to Lotika]

It surprised me that not one medical professional could 'guess' what was wrong with me. Some even had the privilege of being paid for a wrong diagnosis and I even underwent an operation to remove a 'web' and he did not even have the courtesy after the op to tell me that his diagnosis was wrong.

Mind you I didn't get my monies refunded for an op and wrong diagnosis.

[HungryHungryHypo in reply to shaws]

That’s a very good point. But then even some endocrinologists struggle with the thyroid. My NHS one can’t have understood much about it since he diagnosed me with hashi but refused me treatment because, although my thyroid was around 5, he wanted to see how it’d react... Er... Did he think autoimmune diseases could spontaneously cure themselves?

[shaws Administrator in reply to HungryHungryHypo]

I believe, and someone will respond if I'm wrong, is that the medical professionals have been told not to diagnose us with a dysfunctional thyroid gland in the UK until the TSH reaches 10.

I diagnosed myself and history is in my Profile. Click on my name if you want to read it as I've put it on my page. You haven't put your history on your page - just your name. It is helpful as members then get information without the 'member' having to repeat it.

[shaws Administrator]

This is the place to rant and forget about those who haven't a clue what a dysfunctional thyroid gland means.

The hormones needed from the thyroid gland enables us to feel well and symptom-free and feel 'normal health' once more. Unfotunately the regulators seem not to understand this fact.

[DippyDame]

Feel free to rant, I've done that often enough! This amazing thyroid forum gives us the opportunity to do that....it is cathartic!

Medics failed to diagnose and correctly treat me until, I could barely function.

I could not read the page of a book far less the whole book. By half way down a page I had no idea what I had just read....now correctly medicated I've just finished 715 pages!

I was permanently exhausted and in pain...and all the rest.

I gave up bothering about how people perceived me...it was a waste of energy!

The people who mattered soon realised the truth as they watched me struggling.

My body was slowly shutting down, and had been for some time... I would contend.

Without the support of this group I hate to think how I might be now....if indeed I was here at all.

I will never understand why the medical profession have so little understanding of thyroid disease when it involves one of the most important organs in the body,....affecting the whole body. They need to look at the work of their predecessors who were more competent and relied on good old fashioned clinical evaluation rather than a list of numbers on a computer screen which so often do the patient a great disservice!

Now I'm ranting again!!

It is tantemount to medical neglect and a scandal of monumental proportions. Ah! But most of us are women so we must just be neurotic....stuff that for a game of soldiers!!

Take care

DD

[HungryHungryHypo]

I think we could all write at length about it. The worst part is, you have even less sympathy when you’re overweight because people make the short cut overweight=lazy even before you try to explain you’re poorly. I’ve been both, and I get a little bit more compassion now, yet I needed much more before! (I said “a bit more” because at least the first suggestion made to me isn’t to lose weight!)

It’s hard to comprehend what it feels like when your thyroid shuts down. But we know all too well, and I find this forum so helpful. Sometimes I read posts that do not concern me just because it’s refreshing and uplifting to see people understood and taken seriously.

I also believe having such a disease has made me much more compassionate towards other conditions too. I have a friend with endometriosis and PMDD and she often comes to me to vent because I “get it”.

[shaws Administrator in reply to HungryHungryHypo]

It is pitiful that the 'experts' blame patients weight gain or other unrelieved symptoms as being the reason we don't feel better. They are unaware of the fact that unexplained 'weight gain' is due to patients not being given approporiate thyroid hormone replacements at a dose that relieves all of their remaining clinical symptoms - one of the commonest is unexplained weight gain and that means their dose is on the low side. Rarely do they test Free T4 and Free T3 and I think they do not actually know why they should do so.

[SeasideSusie Remembering]

In over 45 years of being diagnosed hypothyroid I've never discussed it with anyone except my husband when he was alive, the doctor, or another person who tells me they are hypothyroid. People only understand illness and medical conditions when they have it themselves or are in very close contact with someone who has.

[serenfach]

A long while back I came across the "spoons theory" and have shown it to friends who said it helped them understand. If you type in spoons theory in the pooter, it will find it, and you may find it helpful.

[JennyWrenn4 in reply to serenfach]

Just read this - what a fantastic way to explain things - will be sharing with some who just either don't get it or don't want to.