Thyʀᴏɪᴅ ᴅɪꜱᴇᴀꜱᴇ: ... - Thyroid UK

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Thyʀᴏɪᴅ ᴅɪꜱᴇᴀꜱᴇ

kaskey profile image
52 Replies

𝐠𝐫𝐞𝐞𝐭𝐢𝐧𝐠𝐬 𝐭𝐨 𝐞𝐯𝐞𝐫𝐲𝐨𝐧𝐞 𝐰𝐡𝐨.𝐬𝐞𝐞𝐬 𝐦𝐲 𝐩𝐨𝐬𝐭.

𝐚𝐦 𝟏𝟗 𝐲𝐞𝐚𝐫 𝐨𝐥𝐝 𝐛𝐨𝐲. 𝐚𝐚 𝐡𝐲𝐩𝐞𝐫𝐭𝐡𝐲𝐫𝐨𝐢𝐝 𝐩𝐚𝐭𝐢𝐞𝐧𝐭 𝐟𝐨𝐫 𝐦𝐚𝐧𝐲 𝐲𝐞𝐚𝐫𝐬. 𝐥𝐚𝐭𝐞 𝟐𝟎𝟐𝟎 𝐰𝐬 𝐚 𝐛𝐚𝐝 𝐲𝐞𝐚𝐫 𝐟𝐨𝐫 𝐦𝐞 𝐭𝐡𝐚𝐭 𝐰𝐚𝐬 𝐰𝐡𝐞𝐧 𝐢 𝐟𝐞𝐥𝐭 𝐬𝐢𝐜𝐤 𝐚𝐧𝐝 𝐮𝐧𝐭𝐢𝐥𝐥 𝐧𝐨𝐰 𝐚𝐦 𝐬𝐭𝐫𝐮𝐠𝐠𝐥𝐢𝐧𝐠 𝐭𝐨 𝐫𝐞𝐜𝐨𝐯𝐞𝐫 𝐛𝐮𝐭 𝐧𝐨 𝐢𝐦𝐩𝐫𝐨𝐯𝐞𝐦𝐞𝐧𝐭 𝐚𝐭 𝐚𝐥𝐥.𝐚𝐦 𝐟𝐞𝐞𝐥𝐢𝐧𝐠 𝐟𝐚𝐭𝐢𝐠𝐮𝐞 ,𝐧𝐞𝐫𝐯𝐨𝐮𝐬,𝐬𝐰𝐞𝐚𝐭𝐢𝐧𝐠 𝐚𝐥𝐥 𝐭𝐢𝐦𝐞,𝐬𝐥𝐞𝐞𝐩𝐢𝐧𝐠 𝐝𝐢𝐬𝐨𝐫𝐝𝐞𝐫,𝐛𝐫𝐚𝐢𝐧 𝐟𝐨𝐠,𝐜𝐨𝐧𝐬𝐭𝐚𝐧𝐭 𝐡𝐞𝐚𝐫𝐭 𝐛𝐞𝐚𝐭 𝐰𝐡𝐢𝐜𝐡 𝐢 𝐟𝐞𝐞𝐥 𝐢𝐭𝐬 𝐭𝐡𝐮𝐦𝐛𝐢𝐧𝐠 𝐟𝐫𝐨𝐦 𝐦𝐲 𝐜𝐡𝐞𝐬𝐭. 𝐢 𝐡𝐯𝐞 𝐬𝐞𝐞𝐧 𝐦𝐲 𝐄𝐍 𝐡𝐞 𝐠𝐯𝐞 𝐦𝐞 𝐝𝐫𝐮𝐠𝐬 𝐚𝐧𝐝 𝐟𝐨𝐫 𝐭𝐡𝐞 𝐩𝐚𝐬𝐭 𝐭𝐰𝐨 𝐦𝐨𝐧𝐭𝐡 𝐢 𝐰𝐚𝐬 𝐨𝐧

𝟏-𝐩𝐫𝐨𝐩𝐚𝐫𝐚𝐧𝐨𝐥𝐨𝐥 𝟒𝟎𝐦𝐠 𝐭𝐰𝐢𝐜𝐞 𝐚𝐝𝐚𝐲

𝟐-𝐜𝐚𝐫𝐛𝐢𝐦𝐚𝐳𝐨𝐥𝐞 𝟓𝐦𝐠 𝐭𝐡𝐫𝐢𝐜𝐞 𝐚 𝐝𝐚𝐲

𝐦𝐲 𝐥𝐚𝐭𝐞𝐬𝐭 𝐭𝐡𝐲𝐫𝐨𝐢𝐝 𝐫𝐞𝐩𝐨𝐫𝐭 𝐚 𝐰𝐞𝐞𝐤 𝐚𝐠𝐨 𝐰𝐚𝐬

𝐓𝐒𝐇 𝐥𝐞𝐬𝐬 𝐭𝐡𝐚𝐧 𝟎.𝟏 (𝐫𝐚𝐧𝐠𝐞𝟎.𝟒-𝟒.𝟐)

𝐓𝟒 𝐢𝐬 𝟏𝟑𝟑 (𝟔𝟔-𝟏𝟖𝟏)

𝐓𝟑 𝐢𝐬 𝟒.𝟐𝟑(𝟏.𝟑-𝟑.𝟏)

𝐭𝐡𝐞 𝐦𝐨𝐬𝐭 𝐢 𝐚𝐦 𝐬𝐜𝐚𝐫𝐞𝐝 𝐢𝐬 𝐭𝐡𝐢𝐬 𝐩𝐚𝐥𝐩𝐢𝐭𝐚𝐭𝐢𝐨𝐧 𝐰𝐡𝐢𝐜𝐡 𝐝𝐨𝐞𝐬𝐧𝐨𝐭 𝐟𝐚𝐝𝐞 𝐚𝐰𝐚𝐲 𝐞𝐯𝐞𝐧 𝐚 𝐬𝐞𝐜𝐨𝐧𝐝.

𝐢𝐬 𝐭𝐡𝐞𝐫𝐞 𝐚𝐧𝐲𝐨𝐧𝐞 𝐰𝐡𝐨𝐦 𝐰𝐞 𝐚𝐫𝐞 𝐫𝐞𝐥𝐚𝐭𝐞𝐝 𝐢𝐧 𝐭𝐡𝐢𝐬 𝐜𝐨𝐧𝐝𝐢𝐭𝐢𝐨𝐧 .

𝐭𝐞𝐥𝐥 𝐦𝐞 𝐰𝐡𝐚𝐭 𝐢𝐭 𝐢𝐬 𝐥𝐢𝐤𝐞 𝐭𝐨 𝐛𝐞. 𝐝𝐨𝐜𝐭𝐨𝐫 𝐭𝐨𝐥𝐝 𝐦𝐞 𝐭𝐡𝐚𝐭 𝐚𝐦.𝐢𝐧 𝐚 𝐜𝐨𝐧𝐝𝐢𝐭𝐢𝐨𝐧 𝐜𝐚𝐥𝐥𝐞𝐝 𝐓𝟑 𝐭𝐨𝐱𝐢𝐜𝐨𝐬𝐢𝐬.

𝐛𝐮𝐭 𝐦𝐲 𝐦𝐢𝐧𝐝 𝐢𝐬 𝐭𝐞𝐥𝐥𝐢𝐧𝐠 𝐦𝐞 𝐢𝐭 𝐭𝐡𝐲𝐫𝐨𝐢𝐝 𝐜𝐧𝐜𝐞𝐫.

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kaskey profile image
kaskey
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52 Replies
PurpleNails profile image
PurpleNailsAdministrator

Have you had hyperthyroidism for 3 years but only had propranolol & carbimazole for 2 months?

kaskey profile image
kaskey in reply to PurpleNails

𝐮 𝐡𝐚𝐯𝐞 𝐭𝐡𝐞 𝐩𝐨𝐢𝐧𝐭. 𝐢 𝐰𝐚𝐬 𝐡𝐲𝐩𝐞𝐫𝐭𝐡𝐲𝐫𝐨𝐢𝐝 𝐟𝐨𝐫 𝟏𝟑𝐲𝐞𝐫𝐬 𝐛𝐮𝐭 𝐥𝐚𝐬𝐭 𝐭𝐢𝐦𝐞 𝐢 𝐭𝐨𝐨𝐤 𝐢𝐭𝐬 𝐦𝐞𝐝𝐢𝐜𝐚𝐭𝐢𝐨𝐧 𝐰𝐚𝐬𝐬 𝟐𝟎𝟏𝟕 𝐛𝐜𝐳 𝐭𝐡𝐞 𝐝𝐨𝐜𝐭𝐨𝐫 𝐭𝐨𝐥𝐝 𝐦𝐞.𝐭𝐨 𝐬𝐭𝐨𝐩 𝐭𝐡𝐢𝐬 𝐦𝐞𝐝𝐢𝐜𝐢𝐧𝐞 𝐬𝐢𝐧𝐜𝐞 𝐥𝐞𝐯𝐞𝐥𝐬 𝐰𝐞𝐫𝐞 𝐧𝐨𝐫𝐦𝐚𝐥. 𝐲𝐞𝐚 𝐟𝐨𝐫 𝐚 𝐩𝐞𝐫𝐢𝐨𝐝 𝐨𝐟 𝟑 𝐲𝐫𝐬 𝐢𝐰𝐚𝐬𝐧𝐭 𝐨𝐧 𝐦𝐞𝐝𝐢𝐜𝐢𝐧𝐞 𝐢 𝐡𝐚𝐯𝐞 𝐫𝐞𝐬𝐭𝐚𝐫𝐭𝐞𝐝 𝐚𝐠𝐚𝐢𝐧 𝐰𝐡𝐞𝐧 𝐢 𝐡𝐚𝐝 𝐟𝐚𝐥𝐥𝐞𝐧.𝐬𝐢𝐜𝐤 𝟐 𝐦𝐨𝐧𝐭𝐡𝐬 𝐚𝐠𝐨

PurpleNails profile image
PurpleNailsAdministrator in reply to kaskey

What is the cause of your hyperthyroidism? Have you had is since you were born?

kaskey profile image
kaskey in reply to PurpleNails

𝐧𝐨! 𝐰𝐚𝐬 𝟔𝐲𝐞𝐚𝐫𝐬 𝐨𝐥𝐝 𝐰𝐡𝐞𝐧 𝐢𝐭 𝐰𝐬 𝐧𝐨𝐭𝐞𝐝

PurpleNails profile image
PurpleNailsAdministrator in reply to kaskey

At age 6 you had medication? But normal levels at age 16. Restarting medication age 19?

kaskey profile image
kaskey in reply to PurpleNails

𝐲𝐞𝐚

kaskey profile image
kaskey in reply to PurpleNails

𝐝𝐨𝐜𝐭𝐨𝐫 𝐬𝐚𝐲𝐬 𝐭𝐡𝐚𝐭 𝐢 𝐡𝐯𝐞 𝐞𝐮𝐭𝐡𝐲𝐫𝐨𝐢𝐝 𝐠𝐨𝐢𝐭𝐞𝐫

PurpleNails profile image
PurpleNailsAdministrator in reply to kaskey

A euthyroid goitre means you have a thyroid swelling but normal levels. You clearly have abnormal high levels. Do you have Graves or was the cause not determined?

Apart from medication have other options ever been discussed?

kaskey profile image
kaskey in reply to PurpleNails

i dont think it is graves. am going to try Surgery if possible now am preparing for national exam when i finish the exam is when i will handle this case.

what is your suggestion?how doyo.see my condition please

Lora7again profile image
Lora7again in reply to kaskey

Why are you having surgery? I have a multinodular goiter and I have regular scans to make sure none of the nodules have got bigger etc. I intend to hold onto to my thyroid as long as I can because I have seen how other people struggle to get the correct treatment after they have had their thyroid removed.

kaskey profile image
kaskey in reply to Lora7again

other altenative for taking antithyroid and beta blocker drugs hve failed let me ask do you have a lump on your neck?

Lora7again profile image
Lora7again in reply to kaskey

My thyroid has multiple small nodules and is slightly enlarged. Do you have the results of the ultrasound of your thyroid to share with us? I think you are very young to think about having your thyroid removed unless it is cancerous or is interfering with your breathing etc. Just to add some people can take Carbimazole for many years and as long as they have regular blood tests are ok. I would do more research if I was you.

Here is a link to Elaine Moore's site it is full of useful information for you to read.

elaine-moore.com/

kaskey profile image
kaskey in reply to Lora7again

ok may be i will go bqck to that decision. have you exprienced constant palpitation that doesnt fade away even a second

Lora7again profile image
Lora7again in reply to kaskey

I have in the past when my levels were not under control and you can read my story on my profile page if you are interested. I would join Elaine's site and ask her what you have asked us and see what she says. She has helped me a lot in the past and had RAI which she regretted so she then started a support site for other sufferers.

kaskey profile image
kaskey in reply to Lora7again

i will thanks for your suggestion

shaws profile image
shawsAdministrator in reply to kaskey

To read a member's profile, click on their name and you can read their journey with autoimmmune diseases (if they have completed it).

kaskey profile image
kaskey in reply to shaws

ok

PurpleNails profile image
PurpleNailsAdministrator in reply to kaskey

Graves can go into remission and relapse (stop & then restart) so it is possible, have your doctors ever tested your antibodies?

kaskey profile image
kaskey in reply to PurpleNails

yeah normal

PurpleNails profile image
PurpleNailsAdministrator in reply to kaskey

Do you see a specialist? Or does a General family doctor treat you? You haven’t put your country in your profile. Most on this forum are from UK. Where are you?

ling profile image
ling

kaskey. Sounds like yours is a long standing issue which medication is not controlling well.

But given u are in the midst of exams, that should be causing u a fair bit of stress which should be aggravating your condition.

Have u had any thyroid antibodies tested?

When was the T3 toxicosis diagnosed?

What was the issue identified at 6 years old? What medication were u on?

kaskey profile image
kaskey in reply to ling

yea. iwass on carbimazole

ling profile image
ling in reply to kaskey

Have u had any thyroid antibodies tested over the years?

When was the T3 toxicosis diagnosed? What was the cause?

kaskey profile image
kaskey in reply to ling

On 6 november I had used red dyed food which contains too much iodine then after 2hours from eating i noticed palpitation and vomiting the red food i consumed. That was were the journey of began. Since 3yrs it has now relapsed

ling profile image
ling in reply to kaskey

This is very important.6 November which year?

kaskey profile image
kaskey in reply to ling

2020

ling profile image
ling in reply to kaskey

Noted.What did u mean by -

"That was were the journey of began. Since 3yrs it has now relapsed"

U have been well for the last 3 years till the Nov 2020 iodine?

kaskey profile image
kaskey in reply to ling

Yea

ling profile image
ling in reply to kaskey

So the T3 toxicosis diagnosis was as a result of the 6 Nov iodine?

kaskey profile image
kaskey in reply to ling

Most probaly. What is your suggestion

ling profile image
ling in reply to kaskey

Definitely do NOT take anything with iodine in it.

It sounds like u could have some type of hyperthyroidism.

To find out, you need to have thyroid antibodies tested.

A high FT3 causes heart symptoms, which would explain the palpitations. Stress, be it mental or physical, can also cause and make symptoms worse.

You mentioned surgery in one of your replies. Before u make that decision, make sure u find out what condition have and if its manageable. A thyroidectomy is irreversible.

Lastly, dial back on the stress as much as possible. Get sufficient rest and eat a balanced diet. Stay hydrated. At the moment, do not exercise when the palpitations are still going on.

Btw, do u have any tummy issues?

kaskey profile image
kaskey in reply to ling

no

ling profile image
ling in reply to kaskey

If u have a goiter, its also possible there are active nodules there that are causing the hyperthyroidism. See an endo for evaluation.

kaskey profile image
kaskey in reply to ling

ok thanks .let me ask hve managed ur thyroid disorder through surgery

ling profile image
ling in reply to kaskey

No, I have been managing it through medication carbimazole and propranolol.

I have Graves confirmed by a blood test with high TRAb antibodies.

Over the years, I have considered surgery when symptoms got particularly bad. It is a serious consideration because u cannot put back the thyroid once its cut out. But there can be serious situations when symptoms are so bad, it threatens your life or long term health, then the hard decision has to be made.

You are still young, but it sounds like u have lived with hyperthyroidism since young, so u know something about it. Research well before u make any decision.

Once your thyroid is taken out, and u become hypothyroid, that means learning to live with a different condition and u have to take thyroid hormones for life.

Best wishes.

kaskey profile image
kaskey in reply to ling

in your experience with thyroid pateints have met with patient with constnt palpitation and chest pain. please about how thy have managed it. am asking beqcuse i hadnt ever involved with hyperthyroid pteint soi want to know how othrs feel about this codition. note my blood pressuure is 97/69

kaskey profile image
kaskey in reply to ling

i can feel.yur emotions thanks so.much. butam wondering why this palpitation cant be managedby my doctors yet thy are saying its due to overactive thyrod

ling profile image
ling in reply to kaskey

kaskey.

If you are experiencing chest pains, u have to go to the hospital. You don't want it to end up as something worse that affects your heart and causes u long term health problems.

At least go and have it checked. There is a limit to which this forum can assist you, and most of us are not doctors here, so we should know our limits, and the best advice now, is to ask you to go and get professional help.

Please take care of yourself.

You can update us if u want to after u see the doctor.

With best wishes.

kaskey profile image
kaskey in reply to ling

i went yeterday ad thy told tht chest pain is due to palpitations and it will fix wen your thyroid level come to normal

ling profile image
ling in reply to kaskey

Good to hear.

So the constant palpitations have caused the chest pains.

Aside from getting the FT3 under control, you need to cut down your stress levels. Stress definitely makes hyperthyroid symptoms worse.

Aside from studying for the exams, what is your lifestyle like?

Are u having regular meals?

The BP 97/69, any symptoms?

When are u going to see the endo?

Did u ask the doctor about increasing your medications?

kaskey profile image
kaskey in reply to ling

iused to do exercise but now i have stopped it. yes i do hve regular meals. my appointment is 15 of this month.

ling profile image
ling in reply to kaskey

That's really good to hear.

See if he can find the root cause of the high FT3.

I would think if the 6 Nov iodine is the trigger, its effect should have left the body by now unless u have still been eating the food. But this iodine subject is not something I am familiar with, so can't say how it really works.

And if the 6 Nov iodine is a trigger, then there has to be a hyperthyroid condition there for it to trigger. In which case then the question becomes which condition is it? A multinodular goiter? Graves? Anything else? U did say u were fine before 6 Nov, so what gives?

kaskey profile image
kaskey in reply to ling

its MNG . yea iwss fine for 3 good yers

ling profile image
ling in reply to kaskey

What's MNG?

Before the 3 years, how was your health?

kaskey profile image
kaskey in reply to ling

MNG means multinodulat goiter. i was felling comfortable and continuing with my studies. untill i stopped going to school since i was felling unwell however my national.exam will be on match thiss year. although i wsnt well i decided to stay at home and preparee for.it. but i wonder why icnt concentrate in reading immediately i take book to read i fell exhausted and tired.

helvella profile image
helvellaAdministratorThyroid UK in reply to ling

Abbreviations and Acronyms

Some years ago, I started compiling a list of many of the abbreviations and acronyms that appear on the Thyroid UK forum ( healthunlocked.com/thyroiduk/ ) regularly. The idea was to make it relatively quick and easy to look up abbreviations and acronyms without being waylaid by the many irrelevant possibilities that web searches tend to return.

I continue to update the document quite frequently!

dropbox.com/s/2423slilh0or6...

You might never have downloaded a copy, or not for some time, perhaps months or years :-) If so, I suggest you download a copy and save it (or a shortcut) somewhere easy to find.

Please, if you think there is anything missing or wrong, let me know. Post on the forum or send me a Private Message.

If I have posted this because you asked about, or referred to, an abbreviation or acronym, please take this as intended, a way of helping you now and into the future. Not a criticism that you asked.

ling profile image
ling

Ps perhaps it might be better to continue here after your exams?

kaskey profile image
kaskey in reply to ling

Do you thing tht this site can help me

ling profile image
ling in reply to kaskey

I'm guessing that folks here can only help if there's enough information. Frankly we know almost nothing about your condition. In order to advise, we need more info.

Re palpitations. Without doubt its a serious heart symptom that warrants dealing with. But to fix the problem, u need to know the cause.

Some causes can be dealt with with medicine and lifestyle changes. Other more serious causes or heart symptoms that cannot be brought under control, may require a more definitive fix.

Best wishes.

kaskey profile image
kaskey in reply to ling

Yea. Doctor told me to continue with proparanolol though palpitation remains but my heart rate normal. So am wondrring if palpitation can occur with normal heart rate

PurpleNails profile image
PurpleNailsAdministrator

Have you spoken to any doctor about your heart symptoms. Wouldn’t they best be able to advise if this heart issue is solely related to your high FT3 or if it merits further investigation & treatment. Have you had a electro cardio gram?

kaskey profile image
kaskey in reply to PurpleNails

Yea. I hadnt had heart condition. This has happened (constant palpitations) after the relapse of my thyroid. Hope T3 and heart has some connections

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