Is Hashimoto´s a chronic disease or not...? - Thyroid UK

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Is Hashimoto´s a chronic disease or not...?

Annacat69 profile image
30 Replies

So, I registered to get a flu shot. Priority is given to risk groups, such as people with chronic disease. One question was: "Do you suffer from any chronic disease? If so, please specify". So I ticked the "yes" box and added "Hashimoto´s thyroiditis". Not to end up in the priority group, but just answering the question honestly...the reply I got was "Hashimoto´s thyroiditis does not count as a chronic disease".

That´s a bit strange, isn´t it...?! Again, I am not trying to bypass anyone on the list, but I do find it strange that for instance diabetes counts as a chronic disease, whereas Hashimoto´s doesn´t...

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Annacat69 profile image
Annacat69
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30 Replies
RedApple profile image
RedAppleAdministrator

Annacat69, The problem is with their wording. In simple terms, chronic is used to describe a condition or disease that is long lasting or cannot be cured. So yes of course, Hashimoto´s thyroiditis is a chronic condition. You were not wrong to answer the way you did. The question should be worded differently to clarify their interpretation of what qualifies!

Annacat69 profile image
Annacat69 in reply to RedApple

I agree! I often have the feeling doctors don´t take thyroid disorders seriously...sometimes, I cannot help but wonder if it´s because mostly women are affected...?

Cooper27 profile image
Cooper27

I had hoped a google would turn up sites quoting this to be a chronic illness, and apparently Hashimotos Thyroiditis can also be known as chronic lymphocytic thyroiditis, so I mean "chronic" is even in the name!

mayoclinic.org/diseases-con...

But this one does pop up most years, unfortunately the flu jab powers that be don't classify thryroid disease as an at-risk illness. It's unfair for them to tell you your illness isn't chronic though.

RedApple profile image
RedAppleAdministrator in reply to Cooper27

If 'they' mean is your condition 'an at-risk illness', then that is what they should say. It's not up to the patient to second guess what 'they' mean!

Cooper27 profile image
Cooper27 in reply to RedApple

Absolutely! It's not down to us to interpret their definition of chronic illness.

helvella profile image
helvellaAdministratorThyroid UK

One of the things that the NHS has been building for some time is the NHS Data Model and Dictionary. Obviously only applicable as it stands within the UK, I nevertheless see it as potentially useful everywhere. There is certainly as much sense using these definitions as those put out, for example, by Mayo Clinic and other organisations around the world.

Although the data model and dictionary is primarily required for computer systems, the definitions they have collected and created is of general use.

Their definition is very much in line with what RedApple posted. And I cannot see any logical basis for excluding Hashimoto's - or Grave's, Riedel's, and so on. Including idiopathic hypothyroidism and hyperthyroidism so agree with Cooper27

Long Term Physical Health Condition

Description

A Long Term Physical Health Condition is a PATIENT DIAGNOSIS.

A Long Term Physical Health Condition (also known as a Chronic Condition) is:

A health problem that requires ongoing management over a period of years or decades

One that cannot currently be cured but can be controlled with the use of medication and/or other therapies.

This includes a wide range of health conditions including:

Non-communicable diseases (e.g. cancer and cardiovascular disease)

Communicable diseases (e.g. Human Immunodeficiency Virus (HIV) / Acquired Immunodeficiency Syndrome (AIDS))

Certain mental disorders (e.g. schizophrenia, depression) and

Ongoing impairments in structure (e.g. blindness, joint disorders).

Examples of Long Term Physical Health Conditions include:

Diabetes

Cardiovascular (e.g. Hypertension, Angina)

Chronic Respiratory (e.g. Asthma, Chronic Obstructive Pulmonary Disease (COPD))

Chronic Neurological (e.g. Multiple Sclerosis)

Chronic Pain (e.g. Arthritis)

Other Long Term Conditions (e.g. Chronic Fatigue Syndrome, Irritable Bowel Syndrome (IBS), Cancer) etc.

datadictionary.nhs.uk/nhs_b...

Annacat69 profile image
Annacat69 in reply to helvella

Hmmm...interesting that hypertension is considered a chronic illness...!

tattybogle profile image
tattybogle

It would be interesting to ask whoever gave you that reply how else they would categorise hashimotos thyroiditis, if it is not a chronic disease what else is it i wonder ?

Oh wait , we know the answer ... it's 'a chronic disease that we don't take seriously'

Annacat69 profile image
Annacat69 in reply to tattybogle

I will ask and let you know. I would actually like to know myself.

Annacat69 profile image
Annacat69 in reply to tattybogle

I did call for an appointment to get the flu shot, and asked about Hashimoto´s. The reply was: "It´s not considered a chronic disease as it´s treatable and does not cause complications".

helvella profile image
helvellaAdministratorThyroid UK in reply to Annacat69

Little do they know...

And let us emphasise the distinction between "is treatable" and "is being treated properly so all symptoms are fully resolved".

Annacat69 profile image
Annacat69 in reply to helvella

So true! I´d not say Hashimoto´s is "treatable" as much as "manageable" if you find the right drug and dosage for your needs...which is easier said than done given most doctors´ ignorance.

jrbarnes profile image
jrbarnes

Not to downplay other diseases and conditions but they probably would have accepted fibromyalgia over thyroid disease.

helvella profile image
helvellaAdministratorThyroid UK in reply to jrbarnes

Inasmuch the distinction between fibromyalgia and Chronic Fatigue Syndrome is uncertain - with different definitions around - and they do include Chronic Fatigue Syndrome in their examples, we could argue they do indeed accept fibromyalgia.

Of course, those who wrote the definition would most likely be perfectly happy to include thyroid disorders. It is those who appear to be misusing definitions and failing to ask the question they actually meant to ask, who are at fault. :-)

That's because what you have according to NHS is either myxoedema (as for free prescriptions) or hypothyroidism - it's not called Hashis in the UK. But probably doesn't qualify anyway. Having said that, it seems that some brands of flu jab may be particularly nasty this year (even some deaths soon after, not just feeling ill), so it might be worth waiting until some others have had it to see how they do

Annacat69 profile image
Annacat69 in reply to Angel_of_the_North

Thanks, a good idea and I won´t be insisting on a flu shot just yet...! I had not read that about this year´s batches, pretty scary though...

Angel_of_the_North profile image
Angel_of_the_North in reply to Annacat69

Well, it might not be the same ones we get here, but best to be sure.

Roadrunnergreg profile image
Roadrunnergreg

Lucky escape, you don't need a flu jab, just optimise your vitamins A and D3 levels and you'll be fine. I'm guessing your D could be low, also hashimotos is linked to a critter infection effecting the thyroid, commonly systemic candida overgrowth or EBV etc, kill that off and hashimotos could easily resolve itself

Vitamin D between 70-100 on your blood test results is enough to create Cathlicidens, cathelicidins are critter killers of Bacteria, Viruses, and fungus. Plus gives protection from certain cancers...

Annacat69 profile image
Annacat69 in reply to Roadrunnergreg

Thanks, good to know!

helvella profile image
helvellaAdministratorThyroid UK in reply to Roadrunnergreg

Discussing flu vaccination is fine.

Specifically advising someone that they do not need one is not acceptable.

There appears to be no evidence to support your claim about cancer protection.

Annacat69

Lora7again profile image
Lora7again in reply to helvella

I agree with what you have just posted and it is personal choice whether or not you have the flu vaccination. I have had it myself in the past and found it does not protect against all the the strains and I would still get the flu. My daughter has had it and has even had her small son vaccinated against the flu. Recently my husband was offered a free flu vaccination because he is 65 and he decided against it having had it for many years when he worked for the NHS.

helvella profile image
helvellaAdministratorThyroid UK in reply to Lora7again

Absolutely - it is PERSONAL choice. Advising someone that they do not need one is overstepping the mark.

When you tell an individual that they do not need a flu vaccination, you take on the responsibility for that advice. Neither we admins nor individuals posting are qualified, nor do we know sufficient about any individual member, to make that assessment for them.

Lora7again profile image
Lora7again in reply to helvella

Exactly ... I am feeling anxious about having the coronavirus vaccine because I am not sure how my immune system will react to it. Luckily I am 8th on the list so I can see how everyone else copes with it including my husband.😊

Roadrunnergreg profile image
Roadrunnergreg in reply to helvella

Well the Government's globally saying we have a Covid-19 pandemic with no proof is also unacceptable, freedom of information has no evidence it exists is a reason you don't need a vaccine destined for global depopulation is wrong too... that said heres some evidence on vitamin D at adequate levels and cancer protection... ncbi.nlm.nih.gov/pmc/articl...

helvella profile image
helvellaAdministratorThyroid UK in reply to Roadrunnergreg

Whereas this paper, which cites the one you mention, says:

Meta-analysis of randomized controlled trial (RCTs) proved that vitamin D supplementation reduces total cancer mortality but do not reduce total cancer incidence.

Your statement that there is no pandemic appears in conflict with evidence from many, many sources.

This is NOT a vaccination forum hence not an appropriate place for your conflation of vaccine and global depopulation.

Vitamin D Binding Protein (VDBP) and Its Gene Polymorphisms—The Risk of Malignant Tumors and Other Diseases

Dominika Rozmus,1 Alicja Ciesielska,1 Janusz Płomiński,2,3 Roman Grzybowski,2,3 Ewa Fiedorowicz,1 Natalia Kordulewska,1 Huub Savelkoul,4 Elżbieta Kostyra,1 and Anna Cieślińska1,*

Author information Article notes Copyright and License information Disclaimer

Go to:

Abstract

Vitamin D is an important component of the endocrine system that controls calcium homeostasis and bone mineralization. Because of the very short half-life of free serum vitamin D it is stabilized and transported to target tissues by being bound to the vitamin D binding protein (VDBP). The most common polymorphisms: rs4588 and rs7041 in the vitamin D binding protein gene may correlate with differences in vitamin D status in the serum. This review presents data that relate to the presence of genetic variants in the VDBP gene in correlation with certain diseases, mostly concerning cancers (breast, prostate, pancreatic, lung, colorectal, basal cell carcinoma cancer and cutaneous melanoma) or other related diseases (thyroid autoimmunity disorders, obesity, diabetes mellitus, bone metabolism, rheumatoid arthritis, ankylosing spondylitis, asthma, chronic obstructive pulmonary disease, tuberculosis and coronary artery diseases).

Keywords: vitamin D binding protein, vitamin D, VDBP, SNP, single nucleotide polymorphism, cancer, [25(OH)D]

ncbi.nlm.nih.gov/pmc/articl...

Roadrunnergreg profile image
Roadrunnergreg in reply to helvella

The only problem with all this is the same problem people are here and other sites on thyroid issues is optimal level is never discussed, things like vitamin D, and Zinc etc have almost as many jobs to do in the body as magnesium, and magnesium has 350+ and as I'm sure you understand there's a difference between in range and optimal level,. sub optimal levels is something we encounter far too often because the so called professionals don't understand that end point, just like most don't understand cofactor nutrients...

Optimal level of vitamin in D the body produces adequate Cathlicidens which goes round the body like pacman gobbling up bacteria, viruses, and fungus. Its one of natures perfect vaccines as it protects against all strains of the 200+ virus strains not the 5 or so predicted strains out of the 200+ strains in flu vaccines. (Not debating vaccines, just making a relevant point)

bantam12 profile image
bantam12 in reply to Roadrunnergreg

You assume everyone can safely take vitamins and "be fine", wrong !

Roadrunnergreg profile image
Roadrunnergreg in reply to bantam12

A lot of problems people have taking supplements is in ist cases they lack the cofactor nutrients needed for absorption, take vitamin D some people take it feel rough or just cannot raise their level, all because they lack magnesium, another is a methylation issue especially with B vitamins, due to low stomach acid... again most problems are a lack of cofactor nutrients...

bantam12 profile image
bantam12 in reply to Roadrunnergreg

And a lot of us have had all these tested and still cannot tolerate supplements.

Roadrunnergreg profile image
Roadrunnergreg in reply to bantam12

So what's your problem, maybe i can help, like a lot of folks I'm fed up with doctors and specialists that can't do their job because of a preloaded system for more drugs to be prescribed for the side effects of the side effects etc etc, that's why the Internet is loaded with people looking for answers the so called professionals can't answer cos their system like a thyroid issue has levels that aren't optimal so they can prescribe antidepressants and pain killers etc Again if they were the professionals the net would not be riddled with sites similar to this with millions if people looking for answers

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