New drug trial for Graves patients:

[pennyannie]

British Thyroid association looking for Graves patients for a clinical trial of a new drug : please check out website for further details if interested :

[RedApple Administrator]

pennyannie, can you post a link for this please, or at least say where you got the info from

[pennyannie in reply to RedApple]

Sorry I can't do cut and paste, I just glaze over, it's on TPA forum posted by Lindsayp.

[bantam12 in reply to pennyannie]

Do you mean Project DAVIAD on BTF site ? It's from last year. Not found anything on BTA site.

[pennyannie in reply to bantam12]

No - Seasidesusie has kindly found the link for me below ;

[SeasideSusie Remembering]

btf-thyroid.org/Pages/Categ...

From that page :

"The company is now actively recruiting for their final cohort so please contact the site urgently, before the end of September 2020"

[pennyannie in reply to SeasideSusie]

Thank you for helping me and posting the link for me :

[Lalatoot]

You can only access this post if you are a member of Thyroid Patient Advocacy

[pennyannie in reply to Lalatoot]

SeasideSusie has kindly put the link up for me ;

[Lora7again]

I heard something about this but I would be surprised if anything comes of it. There are fewer people with Graves' disease than people that suffer with hypothyroid. I wonder if more men suffered with thyroid disease would the medical profession actually look for a cure or even give better treatment. Sorry to any men who suffer with thyroid disease but it is man's world in my honest opinion. When I used to take my husband to my appointments to see my Endocrinologist he would talk to my husband instead of me. I felt like telling him I was the actual patient not my husband.

[Valarian in reply to Lora7again]

Just wondering why you (or even your husband) didn’t point this out,,,

[Lora7again in reply to Valarian]

I felt too ill to fight my corner because I was virtually bedridden because I had been left untreated for over 2 years. I was very thin and I was balding with shaking and sweating. Now I feel well I would not have stood for it and I tell doctors exactly what I think if I disagree with them.

[Dorey69]

It’s for people who has had thyroid cancer for the trial, wish we could just get the drugs we need, instead of being left with nothing

[Sweeneythyca in reply to Dorey69]

Its for people with graves.....

This is a copy and paste of what i read

"Patients who were diagnosed and treated for thyroid cancer more than five years ago may also be eligible to take part in the trial"

[Dorey69]

Thanks, I read that too