Help? : I don’t know whether this is the right... - Thyroid UK

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Help?

Maymoonah profile image
15 Replies

I don’t know whether this is the right place to post or what...

I feel as though I’m showing symptoms of under active thyroids but I don’t know whether this is the right time to get tested or even ask my local gp to get tested...(considering the Covid 19)

What should I do?

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Maymoonah profile image
Maymoonah
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15 Replies
SlowDragon profile image
SlowDragonAdministrator

Yes, GP may only want phone consultation initially

Do you have any close family with any thyroid or other autoimmune diseases?

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies

Ask GP to test thyroid including thyroid antibodies and vitamin levels

You may need to get full Thyroid testing privately as NHS refuses to test TG antibodies if TPO antibodies are negative

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies

thyroiduk.org.uk/tuk/testin...

For thyroid including antibodies and vitamins

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random

If antibodies are high this is Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease).

About 90% of all primary hypothyroidism in Uk is due to Hashimoto's.

Low vitamins are especially common with Hashimoto's. Food intolerances are very common too, especially gluten.

So it's important to get TPO and TG thyroid antibodies tested at least once .

Link about thyroid blood tests

thyroiduk.org/tuk/testing/t...

Link about antibodies and Hashimoto's

thyroiduk.org.uk/tuk/about_...

thyroiduk.org.uk/tuk/about_...

List of hypothyroid symptoms

thyroiduk.org.uk/tuk/about_...

Come back with new post once you get results

Maymoonah profile image
Maymoonah in reply toSlowDragon

Results came back normal- is it possible that the thyroids were undetected?

Will have to go fill out a form At the gp to get exact results.

My mother and aunty have rheumatoid athritis/ two of my aunties, an uncle and cousins have under active thyroids.

SlowDragon profile image
SlowDragonAdministrator in reply toMaymoonah

GP rarely tests more than a TSH, which is completely inadequate

You are legally entitled to printed copies of your blood test results and ranges.

The best way to get access to current and historic blood test results is to register for online access to your medical record and blood test results

UK GP practices are supposed to offer everyone online access for blood test results. Ring and ask if this is available and apply to do so if possible, if it is you may need "enhanced access" to see blood results.

In reality many GP surgeries do not have blood test results online yet

Alternatively ring receptionist and request printed copies of results. Allow couple of days and then go and pick up.....or ask that they are posted to you in current virus situation

Important to see exactly what has been tested and equally important what hasn’t been tested yet

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12

Maymoonah profile image
Maymoonah in reply toSlowDragon

Hi,

Just Received My results in the post... I assume they are normal!

2020

TSH - 1.4 ( 0.3 - 5.0)

Vitamin B12 - 358 ng/L (220.0- 700.0)

Folate - 6.5 ug/L (2.6 - 17.3)

Ferritin - 22 ug/L (10.0 - 420.0)

2017

T4 - 14 pmol/L (9.0 - 25.0)

TSH - 0.96 Miu/L (03. - 5.0)

Many thanks,

Maymoonah

SlowDragon profile image
SlowDragonAdministrator in reply toMaymoonah

B12, folate and ferritin all low and likely causing symptoms

Low vitamin levels frequently linked to Hashimoto’s

Just testing TSH and Ft4 is completely inadequate

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies

So you also need vitamin D tested

Very easy test via NHS postal kit

vitamindtest.org.uk

GP highly unlikely to agree to test thyroid antibodies

NHS also refuses to test TG antibodies if TPO antibodies are negative

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

Private tests are available as NHS currently rarely tests Ft3 or thyroid antibodies or all relevant vitamins

List of private testing options

thyroiduk.org.uk/tuk/testin...

Medichecks full thyroid test including antibodies (but not vitamins)

medichecks.com/products/thy...

Medichecks Thyroid plus ultra vitamin

medichecks.com/products/thy...

Medichecks often have special offers, if order on Thursdays

Thriva Thyroid plus vitamins

thriva.co/tests/thyroid-test

Blue Horizon Thyroid Premium Gold includes vitamins

bluehorizonbloodtests.co.uk...

Blue Horizon Full thyroid test but not including vitamins

bluehorizonbloodtests.co.uk...

folate and B12 are both low. This often linked to low vitamin D

Suggest you get vitamin D tested first

Meanwhile perhaps consider taking a daily good quality vitamin B complex . This will improve low folate and low B12

Ideally a vitamin B complex, with folate in not folic acid

chriskresser.com/folate-vs-...

B vitamins best taken in the morning after breakfast

Igennus Super B complex are nice small tablets. Often only need one tablet per day, not two. Certainly only start with one tablet per day (Or even half a tablet for first week) after breakfast.

Or Thorne Basic B or jarrow B-right are other options that contain folate, but both are large capsules

If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before any blood tests, as biotin can falsely affect test results

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

Low B12 symptoms

b12deficiency.info/signs-an...

Low ferritin

As GP for full iron panel testing for anaemia

Are you vegetarian or vegan?

Assuming you are male looking at ferritin range ?

Maymoonah profile image
Maymoonah in reply toSlowDragon

I’m female, 21, omnivore, Asian British and I feel like I sleep all the time.

What is the test for anaemia called?

Is there a way to post a picture of results?

Maymoonah profile image
Maymoonah in reply toMaymoonah

I have attached blood count above

SlowDragon profile image
SlowDragonAdministrator in reply toMaymoonah

So vitamin D is likely very low...unless you supplement

nice.org.uk/guidance/ph56/c...

People with darker skin are at increased risk of deficiency as their skin is less efficient at synthesising vitamin D. In other words, they need to expose their skin to sunlight for longer to make the same amount of vitamin D as people with paler skin. People of African, African-Caribbean and South Asian family origin, and those who remain covered when outside, are at particular risk. Almost 75% of Asian adults may have low vitamin D status in the winter

surrey.ac.uk/news/concern-o...

GP will often only prescribe to bring Vitamin D levels to 50nmol.

Some CCG areas will prescribe to bring levels to 75nmol

leedsformulary.nhs.uk/docs/...

Or advise on self supplementing if over 50nmol, but under 75nmol

mm.wirral.nhs.uk/document_u...

Deficient is under 25nmol and requires loading dose

Loading dose vitamin D is 300,000iu over 6-8 weeks.thats typically 5000iu per day for 8 weeks or 7000iu per day for 6 weeks. Important to get levels retested at end of prescription

ouh.nhs.uk/osteoporosis/use...

Maymoonah profile image
Maymoonah in reply toSlowDragon

Thank you so much; really appreciate it.

Should I get my antibodies tested or leave it?

SlowDragon profile image
SlowDragonAdministrator in reply toMaymoonah

Suggest you seeGP to discuss anaemia and possibly needing iron supplements

Push GP to test vitamin D as you are in high at risk group

Work on improving all four low vitamin levels for minimum of 2-3 months

Then consider testing FULL thyroid and vitamin levels via Medichecks or other private options

Improving vitamin levels frequently dramatically improves thyroid function

Come back with new post once you get vitamin D result from GP or via postal kit

Plus say what GP has prescribed for low iron

Eating iron rich foods like liver or liver pate once a week plus other red meat, pumpkin seeds and dark chocolate, plus daily orange juice or other vitamin C rich drink can help improve iron absorption

dailyiron.net

Links about iron and ferritin

irondisorders.org/Websites/...

Maymoonah profile image
Maymoonah in reply toSlowDragon

GP won’t give me time of day.

Previous Vitamin D level in September 2017 was 23nmol/L - is that considered low?

SlowDragon profile image
SlowDragonAdministrator in reply toMaymoonah

Yes extremely deficient and GP should prescribe LOADING dose

Deficient is under 25nmol and requires loading dose

Loading dose vitamin D is 300,000iu over 6-8 weeks.thats typically 5000iu per day for 8 weeks or 7000iu per day for 6 weeks. Important to get levels retested at end of prescription

ouh.nhs.uk/osteoporosis/use...

GP will often only prescribe to bring levels to 50nmol.

Some areas will prescribe to bring levels to 75nmol

leedsformulary.nhs.uk/docs/...

Or advise on self supplementing if over 50nmol, but under 75nmol

mm.wirral.nhs.uk/document_u...

But improving to around 80nmol or 100nmol by self supplementing may be better

ncbi.nlm.nih.gov/pubmed/218...

vitamindsociety.org/pdf/Vit...

Once you Improve level, very likely you will need on going maintenance dose to keep it there.

Test twice yearly via vitamindtest.org.uk

Vitamin D mouth spray by Better You is very effective as it avoids poor gut function. There’s a version made that also contains vitamin K2 Mk7

As high risk having dark skin you likely need to supplement all the time

Government recommends everyone supplement October to April

gov.uk/government/news/phe-...

Also read up on importance of magnesium and vitamin K2 Mk7 supplements when taking vitamins

betterbones.com/bone-nutrit...

medicalnewstoday.com/articl...

livescience.com/61866-magne...

sciencedaily.com/releases/2...

Magnesium citrate: mild laxative, best for constipation.

Magnesium taurate: best for cardiovascular health.

Magnesium malate: best for fatigue – helps make ATP energy.

Magnesium glycinate: most bioavailable and absorbable form, non-laxative.

Magnesium chloride: for detoxing the cells and tissues, aids kidney function and can boost a sluggish metabolism.

Magnesium carbonate: good for people suffering with indigestion and acid reflux as it contains antacid properties.

Worst forms of magnesium: oxide, sulphate, glutamate and aspartate.

Vitamin K2 mk7

betterbones.com/bone-nutrit...

healthline.com/nutrition/vi...

Vitamin D and Covid

Research suggests low vitamin D is clinically significant

bmj.com/content/356/bmj.i6583

Vitamin D supplementation was safe and it protected against acute respiratory tract infection overall. Patients who were very vitamin D deficient and those not receiving bolus doses experienced the most benefit.

healthunlocked.com/thyroidu...

Low vitamin D and low B vitamins may be linked as explained here

drgominak.com/sleep/vitamin...

In YouTube video when Dr Gominak talks about vitamin D levels ...vitamin D at 40ng/ml (USA units) is equal to 100nmol (UK units)

youtu.be/74F22bjBmqE

Maymoonah profile image
Maymoonah in reply toSlowDragon

Thank you; that’s been extremely helpful!

Thought I’d share symptoms I’m currently having:

Weight gain and difficulty losing it (completed fitness boot camps and slimming world and yet it’s increasing)

I’ve developed a stutter

Dark underarms and inner thighs

Irregular periods

Body aches - back especially.

Tiredness

Cold all the time

Numbness and tingling in hands, feet and legs

Thinning hair and dry hair

Leg cramps during the night

Depressive episodes

Constipation

And very recently light headed ness and dizzy ness

I have been going to and from the doctors with period irregularity/ heavy ness and Numbness and tingling in hands, feet and legs.

If I increase all vitamin levels and iron would that decrease the above symptoms?

SlowDragon profile image
SlowDragonAdministrator in reply toMaymoonah

Well it should certainly help

Vitamin D isn’t a vitamin at al, but an essential pro-hormone and vital to have good levels

Iron is extremely important for good health

Anaemia can really badly affect people

Ask for full testing for Pernicious Anaemia before starting on any B vitamins

Low B12 symptoms

b12deficiency.info/signs-an...

Also request coeliac blood test ....gluten intolerance can affect vitamin absorption from food

SlowDragon profile image
SlowDragonAdministrator in reply toMaymoonah

Ferritin top of range is usually up to 200 for females and up to 400for males

Full blood count shows

Low MCH = anaemia

medicalnewstoday.com/articl...

Mean cell volume just one point from bottom of range - suggests anaemia

medlineplus.gov/lab-tests/m...

Do you have heavy periods? Obviously can be contributing to low iron levels

Heavy periods are common when hypothyroid too

High cholesterol linked to hypothyroidism

nhs.uk/conditions/statins/c...

If you have an underactive thyroid (hypothyroidism), treatment may be delayed until this problem is treated. This is because having an underactive thyroid can lead to an increased cholesterol level, and treating hypothyroidism may cause your cholesterol level to decrease, without the need for statins. Statins are also more likely to cause muscle damage in people with an underactive thyroid.

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