Hypothyroidism and nerve damage

Good morning, has anyone experienced nerve damage due to Hypothyroidism? It's driving me mad & my Endo has no clue. I cannot attend appts currently due to being a recognised high risk patient so any advice greatly appreciated. Thank you and keep safe and well everyone

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Forgot to add I'm still overloaded with fluid everywhere & during my last hospitalisation was diagnosed with Joint Hypermobility Syndrome

[Marz]

Low B12 ? Needs to be a result over 500 to prevent neurological damage and cognitive decline ... I now inject weekly.

[Hidden in reply to Marz]

Thank you, I'm waiting for my bloods to be tested, adviced not to go to surgery at the moment

[Marz in reply to Hidden]

You can do them by post with finger prick testing. Special Offers today highlighted here weekly in the News Feed ...

[Hidden in reply to Marz]

ah I hadn't picked up by post! Fantastic thank you

[BadHare in reply to Marz]

GP didn’t tell me not to take B complex for 3 months prior to testing so both B12 deficiency tests were negative. 🤡I went back to pre thyroid hormone days of being exhausted if I poured a glass of water. I treated my symptoms with sublinguals which improved, then SI as it was cheaper. Best thing I’ve done beside taking thyroid hormones!!!

[Hidden in reply to BadHare]

Fab, thank you

[Marz in reply to Hidden]

healthunlocked.com/thyroidu...

[Hidden]

Thank you, I am riddle with AIs however my Rheumatologist says this damage isn't from any. I had Myxedema Crisis as hypothyroidism untreated for years.

[Hidden]

Thank you, I am due to see a Nephrologist however advised not to attend any apptts as very high risk, transplant patient, destroyed lungs, chemo four x a day. Challenging times

[Hidden in reply to Hidden]

I meant Neurologist, I see my Nephrologist for transplant x

[Hidden]

Thank you, you too! I have MPA Vasculitis, Fibromyalgia, CFS, EDS & the list keeps growing x

[BadHare in reply to Hidden]

Have you seen Shaws’ posts re Dr Lowe & low T3 causing FM?

T3 treatment (NDT/T3) worked for me, I didn’t have that, I was hypothyroid. 🤯

[Hidden in reply to BadHare]

No, this is all new to me so I shall Google that too x

[BadHare in reply to Hidden]

Look up Shaws (admin’s) recent replies & posts.

FM was invented when THT test was introduced rather than doctors being able to spot hypothyroid symptoms. FM/CFS/ME/hypothyroidism have almost identical symptoms. Why would big pharma want to sell one cheap to manufacture pill or an animal waste product when they can keep people sick & taking handfuls of tablets a day to mask their symptoms. 👹

[BadHare]

I have nerve damage from spinal trauma, & developed parenthesis in feet then hands (hot itchy wool socks & gloves, becoming burning itchy wool socks & gloves) around the time I was diagnosed, by a very bad GP, with FM. 🤥 The parenthesis lessened in severity when I started thyroid hormones, & disappeared when I started B12 injections. 🤗💉 Since increasing frequency, I’ve had more sensation in my “dead” leg rather than none or pins & needles, though now I can feel the pain in my ankle & foot from a wibbly ligament.

I also have hyper mobile joints, my son has too, & suggested we have EDS. My GP hadn’t heard of it. Sigh...

Maybe try sublingual methylcobalamin or ask for a trial of hydroxocobalamin. If your GP is non compliant, like mine, get your own.

[Hidden in reply to BadHare]

Goodness so sorry and how awful we are left to live with additional challenges due to 'ignorance'. I am so pleased your feeling has returned. I have no idea what those things are you have suggested and as a kidney transplant patient I will need to check to see if safe for me, appreciate the info. Thank you

[BadHare in reply to Hidden]

I am fearful of my doctors & consultants sheer ignorance & professional blindness. I thank my lucky stars for this forum for the lifesaving help I’ve had.

You might find B12 helps a lot of your other symptoms, & can only benefit your kidney issues, as would trialling T3 or NDT/glandular.

[BadHare]

Sublinguals increased my levels & reduced fatigue after a month. SI is much cheaper & I found the cost if needling offset by being able to reduce thyroid hormone by 20%. I assume I really needed that cofactor first. I self medicate both so it’s good that I have greater overall benefit with lower cost.

[Hidden]

😀😀😀

[SlowDragon Administrator]

EDS and Hashimoto’s may be linked

[Hidden in reply to SlowDragon]

Thank you and yes another consultant in hospital mentioned that however my antibodies were 0.06 so that was ruled out. However, I cannot get an answer as to whether the fact that I take immunosuppressants four times daily would this affect this result

[Hidden]

Would it be possible to PM me with which one you take and found the best. Thank you - I've just googled and overwhelmed with the choice