Please can anyone help, taking Levo and now 7 w... - Thyroid UK

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Please can anyone help, taking Levo and now 7 weeks Pregnant

LynneG profile image
8 Replies

Hi, I am posting on behalf of my daughter inlaw. She was diagnosed Hyper/then Hypo following the birth of her 1st baby. Antibodies sky high in 400's and 300's. Is still being treated by Endocrinologist who will not test her antibodies anymore and she has been on Levo since the birth 2.5 years ago. She has occasional private test of antibodies and full thyroid panel.

She is now pregnant again

She is worried re what she has seen as some NHS lack of care re thyroid care and wonders what she should expect and if there is any danger to the new pregnancy?

My question would be has anyone here had experience of antenatal care with thyroid issues whether on medication or not and would give advice?

Also is there a need or can anyone recommend private antenatal care practitioners? Or any certified Institute of Functional Medicine practitioners in the UK that may have an understanding of care and risks during pregnancy?

Many thanks x

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LynneG
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SlowDragon profile image
SlowDragonAdministrator

How much levothyroxine is she currently taking

High antibodies confirms hashimoto’s

When were levels last tested?

What vitamin supplements does she currently take??

She needs Full thyroid and vitamin testing ASAP and Management by specialist endocrinologist

Pregnancy guidelines

thyroiduk.org.uk/tuk/about_...

gp-update.co.uk/files/docs/...

thyroiduk.org.uk/tuk/guidel...

especially ....See pages 7&8

btf-thyroid.org/Handlers/Do...

LynneG profile image
LynneG in reply to SlowDragon

Thank you for such a quick reply

Do you mean last antibodies tested ? or standard tests with Endocrinologist?

I will have to ask her re Levo and get back

They went to GP Wednesday to confirm pregnancy following blood loss and she was then referred to maternity care re thyroid issues - again I will find info out

By full thyroid, do you mean what the NHS standard thyroid tests? are they enough or does she need reverse T3 etc?

Is the vitamin testing part of NHS care or can you recommend a private mineral /vitamin testing panel choice. I have heard for instance that magnesium needs to be is it, Red Blood Cell test rather than just standard blood test which tells you very little? Which is why I have always steered away from vitamin testing other than vit D so know very little about it.

Thanks for the superb links. Obviously I have a busy afternoon ahead xx

LynneG profile image
LynneG in reply to SlowDragon

My daughter inlaw just recvd her results from Medichecks

Could you please help and look at and advise

Just for background info - she did raise her Levo on her own as soon as she thought

she was pregnant at 4 weeks. (So complied with the guidelines you have kindly sent )

Now 8 weeks - appointment recvd re referral from GP, presumeably for specialist maternity/endo care, for next week so will be 9 weeks pregnant by then

And info you sent stated foetus own thyroid not developed enough to kick in until 12 weeks and I suppose that is also only if the development hasn't been delayed

So imperative that she can provide enough FT3 to support the foetus to prevent neurogical development issues in the foetus

Her FT3 is 4.74 pmol/L (range 3.1 - 6.8 ) and of course that's a non pregnancy range

Results:

TSH 0.856 mIU/L (range 0.27-4.2)

Free T3 4.74 pmol/L (range 3.1 - 6.8)

Free Thyroxine 20.000 pmol/L (range 12-22)

Autommunity

TGB antibodies x 632.000kiU/L (range <115)

TPO x 171 k iU/L (range ,34)

Serum Folate >19.8 ug/L (range >3.89)

Active B12 103.00 pmol/L (range > 37.5)

Vit D 138 nmol/L ( range deficient <30, consider reduce dose at >175)

Ferritin 66.4 ug/L (range 13 - 150)

CRP HS 1.16 mg/L (range <5)

Taking 100/125 alternate days

Taking zinc, magnesium, K2, D3 , methyl folate, probiotics and

Wild Nutrition's Food Grown Pregnancy supplement

Many Many Thanks Lynne

SlowDragon profile image
SlowDragonAdministrator in reply to LynneG

I think she just posted this herself as new post ?

I agree with SeasideSusie.....results look pretty good

healthunlocked.com/thyroidu...

LynneG profile image
LynneG in reply to SlowDragon

Oh right, I had told her about HU and how helpful, good to know she has posted.

So we can relax if her results look pretty good. Thank you xx

greygoose profile image
greygoose

There's no point in retesting antibodies. Once they have been over-range one time, it shows you have Hashi's, and Hashi's doesn't go away. However antibodies fluctuate, but it is meaningless.

She doesn't need an rT3 test, it doesn't give you any useful information and is very expensive. :)

LynneG profile image
LynneG in reply to greygoose

Thanks x

greygoose profile image
greygoose in reply to LynneG

You're welcome. :)

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